Author Topic: Boston  (Read 111 times)

v357139

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Boston
« on: April 22, 2024, 08:38:22 pm »
Hi all.  I have someone looking for radiosurgeons in the Boston area.  Does anyone have a name?  Preferably someone well known for this or who they had a good result with.  Thanks.
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!

skier

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Re: Boston
« Reply #1 on: April 23, 2024, 06:20:52 am »
Hi,
I'm in New England, and when first diagnosed in Oct 2021, I spent some time trying to find radiosurgery options and expertise in the Boston area.

If the searcher looks back at my oldest posts, they will see a few comments from others when I asked for recommendations, but I never got very much direct advice on current options.

Ultimately, I wanted surgery for a fast-growing tumor in fall 2023, and I went to UCSD for the quality of care and expertise. Happy about that decision for myself.

I did read on the discussion board that Tufts in Boston area had expertise in Gammaknife radiosurgery and in surgery. That was where I was leaning towards. Searching on "tufts" or "carl heilman" here shows a lot of very positive comments. Tufts Acoustic Neuroma team had a fairly simple route to a consult, based on their website. (I didn't have a consult myself, so that's all I know.)

Dr. Carl Heilman: https://www.tuftsmedicine.org/doctor/carl-heilman
Gamma Knife: https://www.tuftsmedicine.org/services-treatments/neurosurgery/gamma-knife-surgery#conditions

Hope this is a little helpful.
Best,
Skier
« Last Edit: April 24, 2024, 09:02:12 am by skier »

DanFouratt

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Re: Boston
« Reply #2 on: April 23, 2024, 04:57:52 pm »
Radiation is a "simple" process.  I was one and done, other take a few treatments.  Regardless, both are a sort time in overall commitment.  You may want to open up your search territory. 

Good Luck in your decision journey.

Dan
Dan Fouratt             63 years old
Vestibular Schwannoma
Discovered 9/15/21  5mm x 11mm
MRI 4/11/22            No change
MRI 1/9/23              7mm x 13 mm
MRI 6/19/23            No change
CK  9/15/23             TBD Not Scheduled

v357139

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Re: Boston
« Reply #3 on: April 23, 2024, 06:31:54 pm »
Thanks all I will pass it along.
Dx 2.6 cm Nov 2012, 35% hearing loss.  Grew to 3.5 cm Oct 2013.  Pre-op total hearing loss, left side tongue numb.  Translab Nov 2013 House Clinic.  Post-op no permanent facial or other issues.  Tongue much improved.  Great result!!