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« Last post by donjehle on April 14, 2024, 07:11:20 pm »
Welcome to the ANA Forums, nyori, and thanks for posting!
I felt so sad when I read your original post. I wish someone had ordered an MRI when you started experiencing the tinnitus. Then maybe they would have discovered your acoustic neuroma much sooner. But that is water under the bridge now.
I'm glad skier posted. skier is wise and gives good counsel.
I lost the hearing in my left ear while I was waiting for my second MRI. So, I definitely understand the concern you have. And I have learned, as skier said, that SSD can become a normal part of life. Still, no one wants to lose their hearing if they can help it.
I also experienced debilitating loss of balance and kept falling down. In fact, I fell down five times while they were testing me for my balance. I sought out a highly recommended vestibular therapist who helped me regain my balance through vestibular therapy.
I don't know how the specialists are in the Netherlands, but I just want to encourage you to hang in there! With proper treatment, life will either become better, or you will learn to adapt to your new 'normal' as many have on these forums.
I wish you the very best in your journey!
Don