Author Topic: Anyone have surgery fal,i then cyber knife fail & tried cyber knife again?  (Read 3315 times)

Kathleen Brown

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Hello. In 2007 I was diagnosed with AN . Year of first surgery- Feb 5, 2007
Left retrosigmoid craniectomy – endoscopic resection of left acoustic neuroma, cranioplasty.
Size of tumor then was 3.5 cm. After surgery I lost all hearing in one ear AND they did not get it all. The tumor began growing again...So in April of 2012 I tried Cyber knife.  After two MRI's...tumor is growing again.
 CP angle measures 13 mm in SI by 15 mm in AP by 12 mm in transverse dimension.  The right CP angle structures and labyrinth are normal. Size now – CP angle measures 1.8 mm in AP by 1.5 cm in transverse by 1.3 cm in SI dimension. The right CP angle and skull base are normal. I am afraid of surgery again. I want to try Cyber knife a second time. Does anyone have any experience with this? Thanks so very much!

Kathleenellen

 

PaulW

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Hi Kathleen,
Many tumours swell for at least two years.. some for as long as four years.
I wouldn't be hitting the panic button just yet....  Keep talking to your doctors..
Keep in mind it has only got bigger between your first and second MRI... All the growth could have been in the first 6 months and it is already shrinking.
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!

Kathleen Brown

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Thanks Paul. Did you do surgery for your AN or Cyber knife? SO happy it all went  so well for you!
Kathleen

PaulW

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Did CK Only.....
Booked in for an MRI in an hours time..... Hopefully it all looks good at 4.5 Years Post CK
10x5x5mm AN
Sudden Partial hearing loss 5/28/10
Diagnosed 7/4/10
CK 7/27/10
2/21/11 Swelling 13x6x7mm
10/16/11 Hearing returned, balance improved. Feel totally back to normal most days
3/1/12 Sudden Hearing loss, steroids, hearing back.
9/16/13 Life is just like before my AN. ALL Good!