I think I will be a newbie on this board

[sgerrard]

Can I still be a member of this group?  You guys are just so awesome.

Well if you put it that way, then I suppose so.   

We actually have a fair number of not-AN members, including various menigiomas, hemangiomas, and other-omas, plus folks with hearing issues, balance issues, sinus issues, Meniere's disease - all sorts of things that can make you wonky headed. The more the merrier.

I'm glad to hear Les doesn't have an AN. I hope you find a doctor and a diagnosis that brings some relief of symptoms.

Steve

[wendysig]

Norma,

I'm also glad ot hear that Les doesn't have an AN.  If we can help, that's what we're here for.  As Steve said, not all our members  have ANs.

Good luck in finding the cuase to Les' problems and keep us posted.

Wendy

[CHD63]

Norma .....

So glad it is not an AN ..... but, I want to congratulate you on being persistent until finding a diagnosis.  We have too many stories of people who ignored their symptoms or were misdiagnosed (brushing people off without doing an MRI with contrast).  Now maybe you can relax just a bit ..... and I know you will stay vigilant to lack of improvement or changes in his symptoms.

And, by all means stick around.  That's what we are here for ..... to support!   

Let us know how the otologist appointment goes.  That could be helpful information since the auditory nerves are greatly involved in AN patients.

Clarice

[Debbi]

Belated greetings from NJ!

So glad to hear that it is not an Acoustic Neuroma.  However, that doesn't mean you can't hang out with us!  I think our only requirment is having an ear (functional or not) and a brain.    Hope you keep us posted on what you learn.

Debbi

[Jim Scott]

Norma ~

As I stated in my original post to you on this busy thread, I really hoped Les wouldn't be found to have an acoustic neuroma, so like everyone else, I'm delighted to learn that he doesn't, after all.  His permanent hearing loss is unfortunate and we can readily empathize with that, whatever the cause.  I hope the doctors can find and help alleviate the source of Les' symptoms.   

Along with many others, I'm flattered by your kind words about the folks on these forums and impressed at your desire to remain a member.  Of course you can!  We have to follow your story and learn how the doctors solve the mystery of Les' symptoms!  Seriously, Norma, thanks for posting and we all wish you and your husband better days - and look forward to reading your posts in the weeks and months to come.  You're among friends here and most welcome, anytime, so - don't be a stranger! 

Jim

[leapyrtwins]

Norma -

I'm so glad to hear that Les does not have an acoustic neuroma 

An MRI with contrast is the way to diagnosis one - so since his showed nothing (tumor-wise, that is) I wouldn't worry about a possible mis-diagnosis.

Jan

[ncutt]

Well, the story goes on...

Went to an ENT, he looked in Les' ears, nose and throat and said, "I looked at your MRI and I think what you have is Sudden Sensoriineural Hearing Loss but can't know for sure unless we do an autopsy.  Guess he had a sense of humor.  He doesn't think Les will get back his hearing in that ear and needs hearing aids.  I told him, thank you, but we would like a second opinion, so now we are waiting to get an appt with an otologist in Bend, OR. 

Can't find any great support groups for that condition.

[wendysig]

Hi Norma.

Your ENT  does seem to have a rather droll sense of humor!  I think you and Les are wise to see the otologist.  Even if his diagnosis is the same, at least that will put your minds at rest.

Wendy

[sgerrard]

Can't find any great support groups for that condition.

What do you mean? You have already found one. 

I'm pretty sure that "Sudden Sensorineural Hearing Loss" means that Les suddenly lost his hearing, and they don't really know why. 

Steve

[ncutt]

Oops!  Didn't finish my sentence!

Can't find any great support groups for that condition like this one, so guess you guys are stuck with me!