Author Topic: This is it!  (Read 4237 times)

Helga

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This is it!
« on: July 12, 2009, 05:02:32 pm »
It's Sunday evening, tomorrow I am heading to Boston, check in 6 am Tuesday morning at Tufts. Had a rollercoaster weekend  :-\ (oh no, I made the wrong decision), feel quite calm and ready now. I set up a webpage at the same website that Allegro/Laura did, for anyone interested following my progress: the website is "thestatus.com", click on "visit a patient page" then sign on my name "Lacroix" and password "sauerkraut1" (I am sure you all know that a grumpy German is a sauer kraut?). My sweetie will hopefully be able to update the page until I am ready to jump in. So long, see you on the other side, thanks for all the support,  ;)
Helga (hlmsrd)

msmaggie

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Re: This is it!
« Reply #1 on: July 12, 2009, 05:15:33 pm »
Good luck w/your treatment!  You will be glad to be on the other side of this thing.  Just coast for 2-3 days, and then see if you are up to walking, bathing, etc.  Keep us posted....soon-to-be postie! :D

Priscilla
Diagnosed  left AN 8/07/08, 1.9 CM
Surgery 12/10/08 at Methodist Hospital w/Vrabec and Trask for what turned out to be a cpa meningioma.

LisaP

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Re: This is it!
« Reply #2 on: July 12, 2009, 05:25:32 pm »
Helga,

Best of luck to you, keep us posted.

You will be in my thoughts and prayers.

LisaP ;D
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

CHD63

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Re: This is it!
« Reply #3 on: July 12, 2009, 07:09:50 pm »
Helga .....

My thoughts and prayers for an uncomplicated, successful surgery.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

NancyMc

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Re: This is it!
« Reply #4 on: July 12, 2009, 07:10:40 pm »
Seems like yesterday we were at the brunch meeting for the first time, . . . you all indecisive.  You've come a long way, Baby!
You'll be outa there in no time.
We'll be checking up on you, so behave yourself.
Nancy
Watch and Wait since 9/19/01
Increased from 1.1 x 1.9 to 1.9 x 1.9 cm as of 10/27/08
Right SSD, tinnitus, compensating balance
Dr. McKenna at Mass Eye and Ear and Dr. Barker at MGH
Translab April 8, 9 hours, 18 mm Tumor all gone SSD some facial weakness

wcrimi

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Re: This is it!
« Reply #5 on: July 12, 2009, 09:49:48 pm »
Best of luck.
1 cm, 6mm, 4mm on Left side. Surgery performed 11/6/2008 by Dr. Kalmon Post and Eric Smouha at Mt. Sinai Hospital in NYC.
Normal hearing before, 85%-90% now, dizziness when walking or turning head, annoying hissing and high pitched tinnitus on and off, eyes have trouble adjusting to rapid head move

leapyrtwins

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Re: This is it!
« Reply #6 on: July 12, 2009, 09:58:16 pm »
Good luck, Helga.

We'll be anxiously awaiting the updates from your sweetie!

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Helga

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Re: This is it!
« Reply #7 on: July 13, 2009, 06:42:10 am »
Thanks to all of you! It means so much to have the good thoughts of people who knwo what it's like and have been there/are there. Off to Boston.
Helga

Dan

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Re: This is it!
« Reply #8 on: July 15, 2009, 12:27:55 am »
Helga,
viel Glück und gute Besserung.

LG Dan in Germany
US Army Retired, age 51,  residing and working in Germany.
Retrosigmoid 21 Sept 07 left side 1.76cm AN, Prof. Mann, Uniklinik Mainz Germany