DISTURBING WORDS FROM OPTHAMOLOGIST.....PLEASE GIVE ME SOME REASSURANCE

[Zanybrainy]

I had a Gold weight for approximately 16 months and I too had my tumor debulked in order to preserve my facial nerve.  Five months after surgery I had an emg done on my face and the Doctor could not detect any movement.  He told me to not give up.  Gradually things started happening.  I had the most improvement from 12 to 18 months.  It seems to me there is no normal with acoustic neuromas.  I found Prayer, great doctors (I would stay away from that negative one) and a positive outlook helped it get better. My face is about a one on the House-Brackman scale. I really wanted my smile back and I have it.  Have you ever noticed how many people have crooked smiles or faces naturally?  Hope you heal completely. Blessings, Cath

[suboo73]

...I have many of you praying for me, friends and family praying for me....so I know it will happen and when it does I'm having a big party!  It's going to be the happiest day in my life when I can smile again.  Laura Lynn  

Laura Lynn, 

I am late to this thread...but so glad to hear your dumped that crazy eye doc!
My thoughts and prayers are with you too.
And BTW - i think you should have a party now AND a party later - you deserve it!
I believe your smile is already shining thru and will only get better as time goes on!

All my best and continued healing.
Sincerely,

Sue

[lauralynn]

Thank you all again for your sweet and encouraging words.  I met with the new ophthamologist yesterday.  What a difference!  He is super nice and took his time with me.   He even apologized for what the other doctor said to me.  He told me that every AN is different and he  encouraged me to continue my facial exercises.  He took a picture of my eye and showed me on the computer the "scar tissue" that I have on my cornea.  He said he would describe it more as a haze than scar tissue.  He referred me to a cornea specialist and I will see him Sept. 9th.  So of course I will keep you updated on that appt.  The new ophthamologist answered every question I had and I felt very comfortable with him.  I will add that the nurse that I spoke with there used to work w/ the other (jerk) ophthamologist.  All she said to me was, "I used to work with him."  In other words she was telling me w/out saying anything that he was not pleasant to work with.  Wow.  The new doctor wants to see me in 2 months.  The jerk didn't want to see me for 4-6 months.  I'm very happy w/ the new doctor and so relieved that I don't have to go back to the other one.  I will pay him a visit though when I get my smile back....because I know I will get it back.  As always I will keep you all posted on things.  Thank you all again for responding.  You all are so sweet.

Laura Lynn

[4cm in Pacific Northwest]

Laura Lynn,

That is great news!  Good for you for taking the bull by the horns...

Keep moving forward.

HUGS

DHM

[sgerrard]

All's well that ends well.

Steve

[leapyrtwins]

Laura Lynn -

it sounds like this new doc knows his stuff.

Thank goodness!  Please keep us updated.

Jan

[Jim Scott]

Laura Lynn ~

Thanks for letting us know what happened with the new ophthalmologist.  You've obviously found a caring and patient-friendly doctor who respects you.  Things are looking up!  I believe this experience demonstrates the sometimes vast differences between doctors, aside from their diplomas.  You did the right thing and I'm pleased to learn that its paid off for you.  Good work! 

Jim

[Kaybo]

LL~
Glad to hear things are going well and the new doc was SO MUCH BETTER!  YEA!!  I am sure that you will get your smile back on your own, but if you ever need to talk about other options, please PM me!! 

K 

[CHD63]

Laura Lynn .....

Late here but wanted to add that I am very relieved to read that you now are in the hands of a qualified, experienced, AND compassionate doctor ...... the combination we all strive for!

Just relaxing under his care should let your body "do its thing" and heal much more quickly!

My prayers for a steady, reassuring progress.

Clarice

[wendysig]

Hi Laura Lynn,

It sounds like your found yourself a keeper!  It's amazing what a jerk the other doc was and wonderful that you found someone so caring and compassionate as this new doc.  Keep doing your exercises things will get better and better.  Keep us posted!!!

Wendy

[GRACE1]

Thank goodness you found a good doctor!  Please keep us updated. 

Both my husband and I have had our shares of jerk doctors - it is so frustrating and hopeless to deal with some of them. 

Grace