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Author Topic: Got a date - August 17  (Read 7100 times)

foodsmarts

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Got a date - August 17
« on: July 17, 2009, 05:00:08 pm »
Hi. I'm scheduled for CK with Dr. Chang week of August 17th. Hurray! Thanks everyone for posting so much information
which was extremely helpful in coming to a decision. Now I can't wait to get it over with.

Helen
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5.4mm X 3.2mm X 3.88 mm at diagnosis 8/28/08; 1.1 cm X .5 cm 6/16/09; CK Stanford Drs. Chang and Soltys 8/19/09

CHD63

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Re: Got a date - August 17
« Reply #1 on: July 17, 2009, 05:29:23 pm »
Yeah, Helen .....

Glad you have your date ..... it is always a relief to me to have a target for things, then I can go about planning and getting ready.

Be sure to put it on the AN calendar (see the link on my signature).  One of the moderators may put it on for you ......

Best wishes and keep us posted on how you are doing.

Clarice
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Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

foodsmarts

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Re: Got a date - August 17
« Reply #2 on: July 17, 2009, 06:12:31 pm »
Thank you Clarice. I'll add my date to the calendar.

Helen


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5.4mm X 3.2mm X 3.88 mm at diagnosis 8/28/08; 1.1 cm X .5 cm 6/16/09; CK Stanford Drs. Chang and Soltys 8/19/09

sharonov

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Re: Got a date - August 17
« Reply #3 on: July 17, 2009, 08:16:42 pm »
Hooray!  I think you made an excellent choice.  It was going to be my choice too.
Sharon
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ppearl214

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Re: Got a date - August 17
« Reply #4 on: July 18, 2009, 05:00:50 am »
Helen

congrats on completing the decision-making process! I'm sure you feel a huge weight off your shoulders now!  You are in fab hands with Dr. Chang and will be cheering you on during your treatment.

Congrats!
Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

suboo73

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Re: Got a date - August 17
« Reply #5 on: July 18, 2009, 09:32:40 pm »
Hi Helen,

So glad to hear you have made your decision!
If i have a choice it would be the same.

Take care and best wishes for your treatment!
Please post your updates as you are able.
My thoughts and prayers to you and your family.

Sincerely,
Sue
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suboo73
Little sister to Bigsister!
9mm X 6mm X 5mm
Misdiagnosed 12+ years?
Diagnosed Sept. 2008/MRI 4/09/MRI 12/09/MRI 1/21/11
Continued W & W

eab

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Re: Got a date - August 17
« Reply #6 on: July 26, 2009, 06:09:24 pm »
Congrats on making a decision and setting a date... what a relief that can be.  There is only good news about Dr. Chang on this site - I wish you lots of luck and one dead tumor with no side effects.

We'll be thinking of you!
Beth
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Left side AN 2.5x1.7x1.5cm, limited hearing loss, limited tin., good balance
GK 7/6/09 Hoag Hospital; MRIs at 2, 6 & 12 months show no change in tumor size - hearing etc. same as before GK.

Tumbleweed

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Re: Got a date - August 17
« Reply #7 on: July 27, 2009, 12:23:38 am »
Helen, you've chosen a really great procedure and doctor. Dr. Chang was also my doctor and I hold him in the absolute highest regard. My CK treatment has been wildly successful and I now feel better than I have in the last 9 years. And the people at Stanford are wonderful -- empathetic and unusually competent and on top of things. You are in terrific hands.

Here is a link to some information that might help your treatments go easier for you: http://anausa.org/forum/index.php?topic=6910.0

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Jim Scott

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Re: Got a date - August 17
« Reply #8 on: July 27, 2009, 03:07:49 pm »
Helen ~

Congratulations on securing a date for your CK with Dr. Chang (at Stanford).  I join many others in wishing you a successful treatment  and a trouble-free recovery.  :)

I've entered your CK date on the renowned 'AN Treatment Calender'.  http://my.calendars.net/an_treatments/d17/08/2009?authenticate=&display=M&style=B

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

bubbles

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Re: Got a date - August 17
« Reply #9 on: July 30, 2009, 03:21:37 pm »
I too am scheduled for CK at Stanford, August 17,18,19. I am very scared. But positive I am doing the right treatment. :)
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sgerrard

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Re: Got a date - August 17
« Reply #10 on: July 30, 2009, 07:50:17 pm »
Hi bubbles,

Welcome to the forum. Nothing to be scared of getting CK at Stanford. It is a nice place, with good people, and it's an easy procedure to go through.

Back in 2007 we all discussed that you do have to take it easy during the week, and came up with fractionated margaritas as the solution. Ask Dr. Chang about them.  ::)

Congratulations to Helen too.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Tumbleweed

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Re: Got a date - August 17
« Reply #11 on: July 30, 2009, 11:58:04 pm »
Hi, Bubbles:

If it's any comfort to you, I was really scared going in to CK treatment, too, and looking back now it seems like an amazing blessing in my life. I feel better now than I did before getting treated, I'm no longer afraid that my tumor might grow, and aside from some additional hearing loss my body (but thankfully not the tumor!) seems to have completely recovered from the treatment.

I am confident you will look back on your CyberKnife treatment as a benchmark for improved health in your life.

Best wishes,
TW
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

bubbles

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Re: Got a date - August 17
« Reply #12 on: July 31, 2009, 05:48:43 pm »
Quote from: foodsmarts on July 17, 2009, 05:00:08 pm
Hi. I'm scheduled for CK with Dr. Chang week of August 17th. Hurray! Thanks everyone for posting so much information
which was extremely helpful in coming to a decision. Now I can't wait to get it over with.

Helen
[/qI uote]

I also have a August 17th date at Stanford , but I noticed everyone speaks of Dr. Chang has anyone heard of Dr. Iris Gibbs, my doctor? I am really getting nervious because of not hearing good or bad .???
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bubbles

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Re: Got a date - August 17
« Reply #13 on: July 31, 2009, 05:59:33 pm »
 Thank You. It has been a LONG year and a half. Mine has been a little more complicated because I was born deaf in my right ear, and now I have a 2.1 cm AN in my left. So to put it mildly am very concerned. I hope and pray they can save some of my hearing. :)
 Wanda
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sgerrard

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Re: Got a date - August 17
« Reply #14 on: July 31, 2009, 08:23:30 pm »
Dr. Iris Gibbs is a radiation oncologist; Dr. Steven Chang is a neurosurgeon. I had them both; they are good. There are a couple of others there too, also good. :)

I can well understand wanting to save what hearing you have if you are already deaf on one side. I think you are taking the best shot there is. I will hope for success right along with you.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.
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