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Author Topic: time span from consutation to ck?  (Read 2478 times)

carter

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time span from consutation to ck?
« on: January 06, 2009, 03:37:58 pm »
May i ask how long of time past from your consultation /agreement to proceed with CK until you had the proceedures scheduled?   From scheduling , what was the time span until they were started?

thanks
carter
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Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

Sheryl

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Re: time span from consutation to ck?
« Reply #1 on: January 06, 2009, 06:23:59 pm »
In my husband's case, it took him 9 months to decide on which treatment and then only 2-1/2 weeks to CK - a week before treatment, he did have to be set up with mask and MRI scan, etc.
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9th cranial nerve schwannoma - like an acoustic neuroma on another nerve. Have recently been told it could be acoustic neuroma. Only 7 mm of growth in 18 years. With no symptoms. Continuing W&W

goinbatty

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Re: time span from consutation to ck?
« Reply #2 on: January 06, 2009, 09:49:01 pm »
I went out of state for treatment so the interval from consultation to treatment was a bit different I imagine.  I live in the south and went to DC.  Consultations were in mid 11/07 and treatment 1/08.  I was told it would take at least 3 weeks for planning but waited until after the holidays to make the trip. 
Sandra
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1/2007 - 6 x 4.5 mm AN
8/2007 - 9 x 6 mm
CK at Georgetown 1/7/08-1/11/08; Dr. Gagnon
3/2008 - 10 x 7 mm
7/2008 - 9 x 10 x 6 mm (NECROTIC CENTER!!!!!)
5/2009 - no change/stable
4/2010 - 10 x 7 x 6 mm; stable/no change
5/2011 - 10 x 7; stable/no change
6/2012 - 8.1 x 7 mm
4/2014 - stable/no change

sgerrard

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Re: time span from consutation to ck?
« Reply #3 on: January 06, 2009, 09:59:18 pm »
I did CK at Stanford, which is out of state for me. At the time of verbal agreement, we scheduled it about 1 month ahead. It took maybe 10 days to get the insurance squared away, then I booked the flight.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Tumbleweed

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Re: time span from consutation to ck?
« Reply #4 on: January 06, 2009, 10:11:53 pm »
When my first followup MRI in watch and wait mode showed my tumor had grown quickly, I scheduled CK for about six or seven weeks later (at Stanford). I could've gotten in within two weeks, I was told, but had business affairs to deal with that prompted me to put it off.

Best wishes,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Tisha

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Re: time span from consutation to ck?
« Reply #5 on: January 07, 2009, 04:20:04 am »
Mine is the same as Steves.  After I agreed, I waited until insurance was on board which took less than a week.  I could have had it done in 2 weeks, but opted for a month due to the past holidays. 

Tisha
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1.7 x 1.0 x .9 cm (diagnosed Oct 2008)
1.8 x 1.2 x 1.1 cm  (July 2010-swelling)
1.5 x .9 x .9 cm  (Mar 2013 - 5 yr MRI)
Cyberknife at Stanford, week of 1/12/09 -  Drs. Chang and Soltys

ppearl214

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Re: time span from consutation to ck?
« Reply #6 on: January 07, 2009, 06:53:15 am »
Like Sheryl... I made my decision, we confirmed insurance coverage same week and was booked for CK approx 2-3 wks later. Hardly had time to let it sink in that my decision process was done.

Phyl
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

carter

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Re: time span from consutation to ck?
« Reply #7 on: January 07, 2009, 08:31:56 pm »
i asked this as i was still waitign to get mine schedlueld after 30 days.   it is now set ...  wow it is about time for the next step
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Diagnosed in fall of 2008 with 1.6 * 2.9cm AN on left side. 

Scheduled CK at Oklahoma Cyber Knife in December, 2008 and decided not to proceede on 2nd date that CK was scheduled.  I fired them.

CK performed at St John's Hospital (Tulsa)Jan 2009

Tumbleweed

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Re: time span from consutation to ck?
« Reply #8 on: January 08, 2009, 08:41:04 pm »
Congratulations, Carter. You'll be happy once treatment is finished. The hardest part for me (emotionally, not physically) was deciding on treatment -- what type, when and where -- and going through the treatments. After that, I felt like I had a weight taken off my shoulders.

Best wishes,
Tumbleweed
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L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08
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