Author Topic: MRI - latest scan and check-up  (Read 8014 times)

Sue

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MRI - latest scan and check-up
« on: December 29, 2009, 07:59:02 pm »
Hi All,

Yesterday had my latest MRI.  New software updates to GE MRI has caused it to be louder than before, if you can believe that. I felt like I was in the torpedo chamber of a submarine that was preparing to dive.  All the warning klaxon's went off, and continued to make strange and loud noises all through the trip.  Fortunately, I'm not one of those that are freaked out by this whole experience, so the 45-50 minutes went by and I was out of there.  The day was cold, a bit breezy, with a beautiful blue sky.  Today, it clouded over and I went to the mall to snoop a bit before my appointment with young Dr. Modha to go over the results.  As I was leaving the mall, I realized that the rain that had started up just as I was entering the mall, was now decidedly white and fluffy.  Oh great!  I made my way to the doctor's office and by then, it was really coming down!  I finally got in to see him, and the appointment was short and sweet.  Nothing new for me to report to him, and he said that everything looked good.  My AN is stable and hasn't grown or shrunk.  It remains the same.  I said, 'Well, you are supposed to tell me it's dead, dead, dead."  And he said, "Oh, it's dead. But, we should monitor you for 5 years after so come see me in a year, or two years , that would be okay too."  In the world of AN checkups, boring is good.  This was good.  No excitement, no drama or trauma, no revelations of epic proportion.  Just - it's stable, see ya later.  MRI - $1800, Dr. Visit - $350, co-pay - $40, peace of mind - priceless.  :)

He showed me, on the scan,  my trigeminal nerve on the good side, and on the AN side.  The AN side, the nerve is resting on top of the intruder and probably has stretched out a bit and it's not at all happy about it.  Hence, the troubles on my left side. (of my face and head).  Nothing to be done there, sorry to say.  But, I can stop worrying that the dumb thing is doing something it shouldn't be, anyway.  It's stable.  Nothing wrong with that.  I'll take what I can get. ;)

Happy New Year!! 8)

Sue in Vancouver, USA




Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

windy

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Re: MRI - latest scan and check-up
« Reply #1 on: December 29, 2009, 10:05:47 pm »
Sue,

I am so glad to hear your AN is "stable".  Stable is good!!  Also, you are right, peace of mind is priceless!!  I know it is normal to worry, but it sounds like things are as they should be. 

I could not help but laugh at your description of the the updates to the MRI.  It was so graphic and funny!!  I'm glad you could be calm through the loud experience.  Take care!     
* Diagnosed w/AN (9mm x 11mm x 9mm) - 6-10-08
* GK @ UPMC w/Dr. Lunsford - 8-5-08
* Stable MRI - Aug. 2009
* 2 MM's Growth - Aug. 2010
* Lost 60% Hearing - Dec. 2010
* More Growth?? - Wait & Watch - Jan. 2012
* 1 MM Shrinkage - Aug. 2012
* 2 MM's Shrinkage - Aug. 2013
* Slight Shrinkage - Aug. 2014

Sue

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Re: MRI - latest scan and check-up
« Reply #2 on: December 29, 2009, 10:24:37 pm »
I almost yelled, DIVE, DIVE!  But thought the tech wouldn't understand my humor.   ;D  Thanks for the kind words.  I strive to be informative, yet entertaining!  ;)

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

sacking

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Re: MRI - latest scan and check-up
« Reply #3 on: December 29, 2009, 11:18:59 pm »
I look forward to stable MRI's in the future. Good luck with yours Sue. Thanks for your encouraging words. My 20% co-pay puts the MRI at around $240/ea. I haven't figured out the various sounds of the MRI. I just close my eyes and try to sleep.

Happy New Year from Sacramento, CA.
SWM, 57yr old. AN 2cm in left ear. Stereotactic Radiosurgery at Kaiser facility in Roseville Ca. Dr. Kamran Sahrakar.

sgerrard

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Re: MRI - latest scan and check-up
« Reply #4 on: December 29, 2009, 11:39:11 pm »
Hi Sue,

Glad that the big news of the day is snow. Enjoy the driving.  8)

Are you saying that they don't play a CD of Emerson, Lake, and Palmer warming up during an MRI? All that sound is the machine?  ::)

When your doctor says come back in a year, or two would be okay too, you know you just got good news. Happy New Year to you.

Steve
8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Sue

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Re: MRI - latest scan and check-up
« Reply #5 on: December 30, 2009, 12:00:26 pm »
Yeah , no rhythm whatsoever with an MRI.   ;)

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

mk

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Re: MRI - latest scan and check-up
« Reply #6 on: December 30, 2009, 12:18:24 pm »
Sue,

congratulations for the excellent boring report.

What a great way to start the new year!

All the best,
Marianna
GK on April 23rd 2008 for 2.9 cm AN at Toronto Western Hospital. Subsequent MRIs showed darkening initially, then growth. Retrosigmoid surgery on April 26th, 2011 with Drs. Akagami and Westerberg at Vancouver General Hospital. Graduallly lost hearing after GK and now SSD but no other issues.

Jim Scott

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Re: MRI - latest scan and check-up
« Reply #7 on: December 30, 2009, 03:55:36 pm »
Hi, Sue in Vancouver ~

I appreciate your sharing that 'boring' MRI report with us.

Although we have to be honest and realistic around here to retain credibility, I have to admit that I love to read good news - like yours - on these forums, giving the lie to those who claim that AN message boards are just bitter people complaining about their problems.  Er, not really.  So, thanks for the update and remember, on a post-radiation MRI report 'stable' is always a good word.  :)

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Aussie Chris

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Re: MRI - latest scan and check-up
« Reply #8 on: December 31, 2009, 02:29:36 am »
Hi Sue. Good to hear you are stable. Each time I hope the specialist will say it has shrunk but no change is just as good. The MRI definitely is getting louder and sometimes I think it shakes. I make sure I don't fall asleep because I have a tendency to talk in my sleep :D I used to pre-guess what the little sucker is doing when my symptoms change but now I have come to realise that trying to guess is a waste of time and causes more stress.
3.1cm AN treated by radiation approx 3yrs ago

Sue

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Re: MRI - latest scan and check-up
« Reply #9 on: January 03, 2010, 03:12:02 pm »
Boy Aussie Chris, are you right!!   Every little nervy twitch and change, i.e., louder tinnitus, more pronounced "burnt" feeling in mouth, and odd zing or pain, makes one think that the darn thing is exploding in there.  But it isn't.  It's just sitting there like the stupid dumb lump that it is, and the damage it already has done is just acting up.  I guess. 

And you know, I saw the news and they had this sweet teenager who is playing football but he is blind.  He lost his vision when a brain tumor destroyed the nerve that provides us with sight.  How's that for putting things into perspective! 

Sue in Vancouver USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
Poet Lorry-ate of Goode

Kaybo

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Re: MRI - latest scan and check-up
« Reply #10 on: January 03, 2010, 03:44:30 pm »
Sue~
So glad to hear the good news!!

K   ;D
Translab 12/95@Houston Methodist(Baylor College of Medicine)for "HUGE" tumor-no size specified
25 yrs then-14 hour surgery-stroke
12/7 Graft 1/97
Gold Weight x 5
SSD
Facial Paralysis-R(no movement or feelings in face,mouth,eye)
T3-3/08
Great life!

ppearl214

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Re: MRI - latest scan and check-up
« Reply #11 on: January 03, 2010, 04:10:09 pm »
What do I say, m'dear? WELL DONE! Continued wellness wishes to you, may the MRI's continue to show nothing but boredom.... and you rawk! :)

MAJOR kudos Sue!  :-*  :-*  :-*

Phyl
"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

Aussie Chris

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Re: MRI - latest scan and check-up
« Reply #12 on: January 04, 2010, 03:09:30 am »
Hi Sue. Glad to hear you are putting this in perspective. Not that I am trying to put extra things in your mind but when you were trying to guess what the sucker is doing have you ever looked in the mirror and noticed that one side of your mouth may not be exactly the same as the other? I did and got scared when I noticed the edge of my lips isn't exactly in line. Took me a while to remember that our faces are not symetrical in the first place. I can laugh about that now but I couldn't at the time. Boy, I crack myself up  :D
3.1cm AN treated by radiation approx 3yrs ago

Vivian B.

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Re: MRI - latest scan and check-up
« Reply #13 on: January 04, 2010, 06:04:13 am »
Hi Sue,

Such wonderful news, great way to start the year. I am truly happy for you.

Vivian
CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

Joey

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Re: MRI - latest scan and check-up
« Reply #14 on: January 04, 2010, 10:48:06 am »
Congratulations Sue!!  Good to start another year on that happy note.  The short and sweet just can't be beat.  I notiiced my neurologist didn't spend nearly as much time with me once things stabilized and that was ok.  I hope I can someday be as unflappable as you are with regard to the MRI, but it's something to strive for.  Take care and enjoy life.

Regards, Joey
Left sided AN.  GK over and done with at Mayo Clinic on
10-2-08; according to Dr. Link, AN measured 15 mm in greatest posterior fossa diameter; used 11 isocenters of radiation to cover tumor volume of 2.3 cm3.  Follow up on 4-14-09 indicated necrosis, no change in tumor size and less hearing, darn