Author Topic: newbie needs advice  (Read 2917 times)

bikerchic

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newbie needs advice
« on: June 28, 2007, 11:15:59 pm »
Hi I am newly diagnosed with a left side AN it is 1.6cm x 1.6cm x 1.1cm.  My symptoms are hearing loss in that ear starting in 2003 when it rang for 3 weeks straight.  Then again in 2004 about the same week it rang again for a few weeks.  Still have usable hearing in that ear.  Failed hearing test at work so my doc sent in for second test.

I found out on June 19th and they called the Froedtert and Medical College of Wisconsin and set up a consultation for me on July 3rd.   I am nervous about any surgery that I have been reading in the forums.   I work a 12 and 1/2 hour rotating swing shift and my hobbies are riding my motorcycle.  Riding my bike for me is very liberating and very calming.  I have other hobbies to, like watching nascar go JR.  Anyway I am concerned about the time it takes for people to recover their balance and I can't afford to be tired at work.  Any suggestion on which surgical or radiation treatment will better.   

By the way I am recovering from a life altering crush injury I suffered at work in February this year and I am not fully healed up from that.  It left me with 5 fractured ribs severe abdominal wall brusing and a bruised liver and spleen.  Extremely lucky to be alive from that and now have the added stress of this.

Trying to stay positive I am very fortunate that the AN was diganosed now versus later and that I walked away from a 2,500 lb roll of toilet paper (no less) pinning me over a rail.
Diagnosed 6-19-07 left side an 1.6 x 1.6 x 1.1

Palace

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Re: newbie needs advice
« Reply #1 on: June 28, 2007, 11:27:04 pm »
Hi Bikerchic,


I'm sorry you are experiencing more stress in your life after all you went through already.  Welcome to the forum!  It appears that your tumor is within the range of size to have the radiation treatment.  I was fortunate enough to have that done seven months ago.

Life goes on.......I just took a motorcycle class, myself!

Let us know about your consultation as soon as you are able to get online.



Best of luck,



Palace
« Last Edit: June 28, 2007, 11:29:52 pm by Palace »
22 mm Acoustic Neuroma (right side)
Cyberknife, Nov. & Dec. 2006
Dr. Iris Gibbs & Dr. Blevins @ Stanford
single sided deafness

Jeanlea

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Re: newbie needs advice
« Reply #2 on: June 29, 2007, 08:05:09 am »
Hi Bikerchic,

I also went to Froedtert.  My tumor was at 3.5 cm so gamma knife wasn't a choice for me.  I had surgery on Sept. 5, 2005.  I was back at work on Oct. 31.  Being overly tired has not been a problem for me, but everyone is different.  The doctor's at Froedtert do both surgery and gamma knife.  Stay strong.

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

bikerchic

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Re: newbie needs advice
« Reply #3 on: June 29, 2007, 03:16:49 pm »
Thanks so much for responding so quickly.  I really appreciate it.  I will let you know what the docs say on Tuesday.  I've never been on a chat forum before and am greatful to find this and take advantage of it.

Jeanlea, did you have Dr. Friedland or Dr. Wackym?  That is who I see on the 3rd. 

Palace, I too took a motorcycle class 4 years ago.  I love having my own bike and can't stand being on the back of my husbands.  They only time I'm on the back of his is when we take our beloved little mutt for a ride.

Thanks again everybody.

Diagnosed 6-19-07 left side an 1.6 x 1.6 x 1.1

Jeanlea

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Re: newbie needs advice
« Reply #4 on: June 29, 2007, 04:58:27 pm »
Bikerchic, I had Dr. Friedland along with Dr. Meyer.  But Dr. Meyer has retired.  I like Dr. Friedland.  I've heard that Dr. Wackym is very good.  That's who my ENT originally recommended.  But he also wanted me to get in soon.  Two days after I found out I was down in Milwaukee talking to the doctors.

Jean
translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

bikerchic

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Re: newbie needs advice
« Reply #5 on: June 29, 2007, 09:06:07 pm »
Thanks again to everyone who replied.  I was very nervous when I found out about the tumor.  The day the ENT called I was working days and we played phone tag the next day.  I was at my pt and another doctor appointment the next day left her my cell number.  My husband just happened to take me that day and when I got to the truck he said she called twice and wouldn't give him any info.  We were on our way to pick up my 16 yr old step daughter and I got the call.  They had already made the appointment in Milwaukee before they contacted me.  That is what made it so scary.  I haven't told anyone in my family just my husband and a few close coworkers.  It's been an unusual year to say the least.  Oh well I might as well get this taken care of to this year so I can hopefully get back to normal whatever that is.

Jeanlea,  Glad you liked Friedland hope I will too.  It will put my mind at ease if I feel comfortable with the doc. Thanks again.


Bikerchic
Diagnosed 6-19-07 left side an 1.6 x 1.6 x 1.1