Author Topic: Help for Tinnitus???  (Read 4759 times)

Patti UT

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Help for Tinnitus???
« on: June 09, 2011, 12:23:24 pm »
Hi All,
  It's been a long while since I came to the forum.  Had my 2nd AN surgery Jan 2010.  Tinnitus is horrific as is vertigo.  But I was wondering if anyone has stumbled across anything new for help with Tinnitus

thx
patti ut
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Sue

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Re: Help for Tinnitus???
« Reply #1 on: June 09, 2011, 09:30:08 pm »
Hi Patti!!

So sorry you are having such a hard time.  It just ain't fair...   I have no advice, sorry to say.  Can you contact any kind of a big hospital.?  OHSU in Portland has a tinnitus department....maybe they can help..

Bless you dear,

Sue in Vancouver, USA
Sue in Vancouver, USA
 2 cm Left side
Diagnosed 3/13/06 GK 4-18-06
Gamma Knife Center of Oregon
My Blog, where you can read my story.


http://suecollins-blog.blogspot.com/2010/02/hello.html


The only good tumor be a dead tumor. Which it's becoming. Necrosis!
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Suu

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Re: Help for Tinnitus???
« Reply #2 on: June 10, 2011, 01:55:13 am »
G'day Patti

I started using Ativan for the dizziness and it seems to also quiet the cacophony in my head as well.
Not all day mind you but just for a little while and enough for me to forget about it.

Everyone is hoping for a cure for this menace and sometimes I've heard people say that it's worse than having the AN.  I'm absolutely happy that I haven't got the AN but living with so much noise is a bit hectic to say the least but I wouldn't swap it for the 4cm egg they took out of my head.

Good luck with your search and I'll keep my ear open as well.

Hugs,
Suu xxoo
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Tumbleweed

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Re: Help for Tinnitus???
« Reply #3 on: June 10, 2011, 08:55:07 pm »
Patti, see this thread on tinnitus:
http://www.anausa.org/smf/index.php?topic=15424.0

There are some good suggestions there from a few forumites.

Best wishes,
TW
L. AN 18x12x9 mm @ diagnosis, 11/07
21x13x11 mm @ CK treatment 7/11/08 (Drs. Chang & Gibbs, Stanford)
21x15x13 mm in 12/08 (5 months post-CK), widespread necrosis, swelling
12x9x6 mm, Nov. 2017; shrank ~78% since treatment!
W&W on stable 6mm hypoglossal tumor found 12/08

Patti UT

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Re: Help for Tinnitus???
« Reply #4 on: June 11, 2011, 07:47:08 pm »
Thanks all,
  Just thought I'd put a shout out to see if anyone had heard (no pun intended LOL)  of anything new. 

HEY SUE in Vancouver,  good to see your still on here.... Hope all is well with you.  Fun times backion the PBW goodship  several years back.  Who know when I was posting on there then I'd be going through this mess a second time. YUK!!!  Seems the fun just never ends with this thing..........grrrrrrrrrr!!!!

patti ut
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

Mei Mei

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Re: Help for Tinnitus???
« Reply #5 on: June 23, 2011, 05:03:46 pm »
Oh My!  You poor baby.  i hate to hear of anyone doing this once let alone two times.   My heart is with you.

On the other hand, I had a bout of no Tinnitus yesterday.  I've had it for two years and suddenly none.  It's back now and maybe because I am having dinner and a glass of wine.   With no wine, it went away.   Make your choices.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh

Patti UT

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Re: Help for Tinnitus???
« Reply #6 on: June 28, 2011, 06:50:19 pm »
I've tried no wine, no caffine, no ibupripin. Have triend without all of them and also without one at a time.  High stress, los stress, tired, not tired, it just doesn't seem to matter. It is ALWAYS there SCREAMING at me 24/7.  So I say, have the wine, heck, have some tequilla
2cm Rt side  middle fossa  at University of Utah 9/29/04.
rt side deafness, dry eye, no taste, balance & congintive issues, headaches galore
7/9/09 diganosed with recurrent AN. Translab Jan 13 2010  Happy New Year

skipg

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Re: Help for Tinnitus???
« Reply #7 on: June 28, 2011, 07:18:22 pm »
Patti,
I am in the same boat. Diagnosed 1/3/2011 and am watch and wait but the screaming as you described it is the worst part. Most times cant even concentrate due to the noise. Keeps me on edge and very impatient. Sometimes I have to just be alone for a while. This may sound gross but I told my wife I felt like jamming a scewdriver in my ear and popping this thing out, as if that would help. That is how high my frustration  level gets. I am ready to try an antidepressant just to take the edge off but do not know how that will make me feel. I have sat alone with an ipod stuck in my ear playing 60's rock and that lessened it. This to may sound crazy but the only relief I get is riding my motorcycle. With a half helmet on the wind blows by my ear and cancels out most of the screams. That along with the engine noise gives me the only true peace I have felt in over 7 mos.
If you find anything that works let me know.
Skip
Self diagnosed 11/17/2010 (love the internet)
MRI 12/2010 Official diagnosis 1/3/2011 RT AN 7x6x4mm's
MRI 6/17/2011 no change still 7X6X4
MRI 7/20/2012 growth spurt to 14mm
Aug 8th consult and decided on Proton Therapy
Proton Therapy @ Hampton Proton Institute,       done on 11/20/12

Mei Mei

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Re: Help for Tinnitus???
« Reply #8 on: June 28, 2011, 08:40:44 pm »
I was just at the Symposium and sat at the table with Dr. Friedman because the topic was on  tinnitus.   He's a really nice doctor, but there is never really anything new for Tinnitus.   I'm just glad I had the sounds of the ocean and at fleeting times some high squealing noises.   I was upset when I was in the hospital after my AN surgery and found the tinnitus to be louder than ever in the weeks after the surgery.   Wish I never did the surgery.   Wishful thinking.  Am having a glass of wine now.   Here's to all of you.

Mei Mei
1 cm Tumor RetrosigmoidSurgery on Jan 12 at Johns Hopkins
Drs. Niparko and Tamargo
35dB loss pre surgery and now SSD
Post surgical Headaches and Tinnitus
Dr Ducic Georgetown Excision Surgery May 2011
Dr. Schwartz GW  Titanium Mesh  March 2012
Drs Kalhorn/Baker, Georgetown Removal of Titanium Mesh