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Author Topic: Movement!  (Read 9022 times)

Joef

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Movement!
« on: September 01, 2006, 09:54:18 am »
  I tried not to get to exited  ;D.. I thought I noticed it a few weeks ago .. but this morning I could defiantly see a little , and very little .. but its there .. I little upper movement on my right (AN side) of my mouth!  :o :o almost 13 months since my surgery ...
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

tatianne

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Re: Movement!
« Reply #1 on: September 01, 2006, 10:00:37 am »
thats amazing news Jeof, congratulations and i bet this is just the beginning!
Hooray for you !
T
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Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

HeadCase2

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Re: Movement!
« Reply #2 on: September 01, 2006, 11:46:03 am »
Joef,
  Excellent news.  Have you been doing anything differently lately?
Regards,
 Rob
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1.5 X 1.0 cm AN- left side
Retrosigmoid 2/9/06
Duke Univ. Hospital

GrogMeister of the PBW

krbonner

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Re: Movement!
« Reply #3 on: September 01, 2006, 01:28:49 pm »
That's fabulous, Joe!  I'm sure those healing steps will continue for you! 

Katie
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diagnosed June 2005
2.3cmx1.6cmx1.4cm left AN
translab Sept 13, 2006; Drs. McKenna and Barker in MA (MEEI/MGH)

Jeanlea

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Re: Movement!
« Reply #4 on: September 01, 2006, 02:33:34 pm »
Hey Joe,

Great news!  What are you doing to make it move?  Smiling?  I can get my upper lip to move a little, very little bit if I wrinkle my nose.

Jean
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translab on 3.5+ cm tumor
September 6, 2005
Drs. Friedland and Meyer
Milwaukee, WI
left-side facial paralysis and numbness
TransEar for SSD

Survival Nate

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Re: Movement!
« Reply #5 on: September 01, 2006, 02:40:39 pm »
Thats so cool, its a great feeling ;D
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at age 21yo
AN 5.05cm removed Feb 2005
Gamma Knifed July 2005
at age 31yo
AN regrowth @ 1.5cm - 2014
Pituitary Gland tumor 2mm
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Battyp

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Re: Movement!
« Reply #6 on: September 01, 2006, 02:44:56 pm »
Yeah!!!!  Gives those of us still waiting some hope it will happen!!!
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Jim Scott

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Re: Movement!
« Reply #7 on: September 01, 2006, 04:15:06 pm »
Joe:

Glad to learn you're finally having some facial movement.  I pray it continues for you - and I trust that it will.   :)

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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Joef

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Re: Movement!
« Reply #8 on: September 01, 2006, 04:46:33 pm »
Thanks all!

Headcase .... nope , just going to work .. and living life as normal

krbonner .. good luck on you upcoming surgery! I hope we can see you at the upcoming next lunch!

Jeanlea, ... yep ... when tring to smile, the right corner moves just a little bit... and if I hold the good side, I can see it ever more ...
but I can only do it a few times in a row... it seems to get tired .. but thats ok! ... I just happy it moves at all  ;D ;D ;D

they said the facial nerve was intact after surgery, but was beginning to wonder.. at least its progress!!

« Last Edit: September 01, 2006, 04:51:46 pm by Joef »
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

pattibobatti

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Re: Movement!
« Reply #9 on: September 01, 2006, 05:21:29 pm »
HI Joe,

I CAN'T BELIEVE IT!!!!!!!  Can't imagine how happy you must be!!!!!!!!!

If that happened to me, I don't quite know what I would do!!

I think you need to get in that little boat of yours and celebrate.  We have not met, but I am so happy for you. You have made my day. How exciting!!!!!!!!!!!!!!!!

Pattibobatti
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17 mm AN removed 1-16-06
  retrosigmoid
  paralysis, cornea transplant,avascular necrosis

   'Are we having fun yet?'

Rc Moser

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Re: Movement!
« Reply #10 on: September 01, 2006, 05:49:45 pm »
Great news! I also  can feel things wanting to lift, but still weak. When I try to smile BIG I can see 2/3's of my teeth. I can sqint, squeeze, almost whistle, use very little eye drops now, but no lift above my eyebrows. I try to excerise my AN side everday. IMO the more you try to work the muscles the stronger the 7th nerve will get if it's not damaged. I see it this way my little " timmy the tumor " has been pushing and stretching the nerves for 10 to 15 years, so I will give it atleast 10 before I give up.
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9/17/03, 4.5CM, Translab, OU Medical Center, Dr. (the ear man) Saunders and Dr. B. (the BrainMAN) Wilson  along with about 4 other Doctors that keep me going for 18 hours.

ellenvig

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Re: Movement!
« Reply #11 on: September 01, 2006, 11:18:53 pm »
Congratulations!!

Ellen
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2.3cm AN diagnosed 6/13/06.
Gamma Knife 9/22/06.
Dr. Greorg Noren, Providence RI.
http://savyon.com/ellen/AN.htm

Obita

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Re: Movement!
« Reply #12 on: September 02, 2006, 05:10:51 am »
Hi Joe:

What great news!!  Can you feel it if you touch your cheek or lip?

Kathy
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Kathy - Age 54
2.5 cm translab May '04
University of Minnesota - Minneapolis
Dr. Sam Levine - Dr. Stephen Haines

Joef

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Re: Movement!
« Reply #13 on: September 02, 2006, 07:34:31 am »

I can feel it ! .. and I have for months .. but its a numbness feeling ... I feel the presure of the check being touched .. its gotten be more of a swollen feeling lately .. which I assume is improvement ..  I remember years ago as a kid a yellow jacket bit me on the lip ..(I assume because I was throwing rocks at the nest  ::) ) it kinda feels like that (not the pain, but swollen feeling)
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4 cm AN/w BAHA Surgery @House Ear Clinic 08/09/05
Dr. Brackmann, Dr. Hitselberger, Dr. Stefan and Dr. Joni Doherty
1.7 Gram Gold Eye weight surgery on 6/8/07 Milford,CT Hospital

Road Trip Dale

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Re: Movement!
« Reply #14 on: September 02, 2006, 08:52:40 am »
Wonderful news Joef!!  Always great to hear about improvements.....won't be long and you'll be winking at the girls agin!!

RTD
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1.75 AN Right Side
Translab 4/16/06
Dr. Charles Leutje and Dr. Paul Camarata
St Luke's, Kansas City, MO
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