Author Topic: NY/NJ Area ANers Lunch Event - JULY 19 in NYC  (Read 22025 times)

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #60 on: June 30, 2008, 04:52:10 pm »
Jim -

don't worry about the hijacking, I do it all the time  :D  And you are certainly not meddling - just providing your input.

In general it is hard to raise children in the environment and the world you so aptly describe, and in the case of my children, there are a few additional factors which make it more difficult.  I do find that at times they are too materialistic - especially my daughter - and I am doing my best to set a good example for them.  It's not always easy since it's a whole new world since I was a child  :)  I do regularly instill a sense of "giving back" in them by making sure they are aware of the good causes that I support, plus I have decided that within the next year we will all be volunteering our time on some level to help those less fortunate than we are.

Thanks for the good advice.  Although I'm not a fan of Hilary Clinton's, I agree with her assessment that it takes a village to raise a child.

Jan

   
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

wendysig

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #61 on: July 01, 2008, 06:40:52 pm »
Hi again  DEbbi -
Do you have any idea of whyat is going on with regard to the NYC luncheon?  I haven't seen any recent posts.

Thanks,
Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #62 on: July 02, 2008, 09:52:57 am »
Sorry, missed this.

We had talked about July 19 at Heartland Brewery, which is on 34th at 6th, below the Empire State Building and about 2 blocks from Penn Station.  At this point, we should try to find out who is interested/committed to coming?

I am 90% sure of attending (just have to arrange transportation, probably the train if the schedule works out.)

So, who's in?
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wendysig

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #63 on: July 02, 2008, 09:17:21 pm »
Hi Debbi -
I am definitely in.  I would love to meet with anyone who can attend!

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

jerseygirl

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #64 on: July 02, 2008, 10:21:34 pm »
I am in also! I would love to meet everyone who can attend AND boast about my Transear! I have to admit, Debi, that after all these years I still have nightmares about Dr. Louie's petri dish so I will just stick with the Transear.

                        Eve
Right side AN (6x3x3 cm) removed in 1988 by Drs. Benjamin & Cohen at NYU (16 hrs); nerves involved III - XII.
Regrowth at the brainstem 2.5 cm removed by Dr.Shahinian in 4 hrs at SBI (hopefully, this time forever); nerves involved IV - X with VIII missing. No facial or swallowing issues.

jtd71465

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #65 on: July 03, 2008, 06:50:53 am »
I'm in.


Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

Debbi

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #66 on: July 03, 2008, 08:59:53 am »
Well, then, I think we have a quorum!  A small but mighty group of 4 - and all other comers welcome!

I'll do a bit more research on locations, but will keep us close to Penn Station.  Eve, I can't wait to see the Transear and "hear" how you like it.  And, yes, I'll be kind of glad when my last (hopefully) visit to Dr. Louie is done next week!  No more petrie dishes, please...

stay tuned here for any other breaking news regarding the NY/NJ lunch!

Debbi ;D  (hey, shouldn't they have one of these smiley faces with a half-smile???)
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

wendysig

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #67 on: July 05, 2008, 09:41:50 pm »
Hi Debbi -
Another stolen moment on the computer in a busy house where eveyrone wants the computer.  Hope you have a great weekend and get good news from Dr. Louie next week.  Do me a favor and let Brian know I was so rushed, I didn't realize he was home.  I was really glad to hear that too. Have to go again as someone is waiting for the computer again.

Wendy
1.3 cm at time of diagnosis -  April 9, 2008
2 cm at time of surgery
SSD right side translabyrinthine July 25, 2008
Mt. Sinai Hospital, New York, NY
Extremely grateful for the wonderful Dr. Choe & Dr. Chen
BAHA surgery 1/5/09
Doing great!

Debbi

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #68 on: July 08, 2008, 05:20:03 pm »
As the date draws nearer...

Date:  Saturday, July 19
Location:  Heartland Brewery - 34th Street at 5th Avenue, at Empire State Building
URL:  http://14935.williams.hostinglogin.com/media/heartlandbrewery.html   (click on Empire State)
Time: High Noon?

If everyone who is going will PM me, I'll send you my cell phone so we be in contact on the day-of. 

So far, it is Joe D, Wendy, Eve and I - anyone else...??

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #69 on: July 08, 2008, 07:04:54 pm »
Hope you guys all have a great lunch  :)

I'll be flying home on the 18th, so won't make it.

Guess you'll all just have to come to the symposium next August, so I can meet you there  ;D

Jan

Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways

Debbi

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #70 on: July 09, 2008, 09:01:46 am »
We'll take pictures, Jan - I'll be the one with the crooked smile!  Wendy will be the one looking scared.  Joe will be the one looking perfectly normal.  Eve will be the one sporting the cool new Transear. 

And, yes, symposium next year - it's a date!

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

jtd71465

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #71 on: July 09, 2008, 09:06:15 am »
Define normal....


Joe-
Right side AN removed 1/10/07 @ NYU Medical Center
Dr's Roland and Golfinos

lori67

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #72 on: July 09, 2008, 09:22:49 am »
We'll have to see the picture first to decide if Joe is normal or not!   :D

Jan and I will be there in spirit!  Try not to talk about us too much or our good ears will be ringing!

Lori
Right 3cm AN diagnosed 1/2007.  Translab resection 2/20/07 by Dr. David Kaylie and Dr. Karl Hampf at Baptist Hospital in Nashville.  R side deafness, facial nerve paralysis.  Tarsorraphy and tear duct cauterization 5/2007.  BAHA implant 11/8/07. 7-12 nerve jump 9/26/08.

Debbi

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #73 on: July 09, 2008, 09:28:43 am »
Okay, Joe, maybe "normal" was too non-specific... 

I say we take a group shot and I'll post it here after the lunch - if everyone is okay with that.  I'll bring my digital camera.

Debbi
Debbi - diagnosed March 4, 2008 
2.4 cm Right Side AN
Translab April 30, 2008 at NYU with Drs. Golfinos and Roland
SSD Right ear, Mild synkinesis and facial nerve damage
BAHA "installed" Feb 2011 by Dr. Cosetti @ NYU

http://debsanadventure.blogspot.com

leapyrtwins

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Re: NY/NJ Area ANers Lunch Event - JULY 19 in NYC
« Reply #74 on: July 09, 2008, 05:10:32 pm »
Maybe Lori and I can post a beach or pizza place picture - although I can guarantee you it will not show us in bathing suits  :P

Are you bringing your camera, Lori?

I'm famous for bringing mine places and then never taking it out of its case to take pictures  ::)  So I thought I'd just leave it home this time around.

If nothing else, maybe my little bro will have his camera and we'll get him to take a picture.  I'd ask one of my kids, but I know darn well it will cost me.  I can just hear it now.  "How much will you give me?"  :D  We're currently negotiating spending money for the trip and my son is always looking for a way to make an extra buck  ;)

Jan
Retrosig 5/31/07 Drs. Battista & Kazan (Hinsdale, Illinois)
Left AN 3.0 cm (1.5 cm @ diagnosis 6 wks prior) SSD. BAHA implant 3/4/08 (Dr. Battista) Divino 6/4/08  BP100 4/2010 BAHA 5 8/2015

I don't actually "make" trouble..just kind of attract it, fine tune it, and apply it in new and exciting ways