Post-Treatment > Post-Treatment

Stupid Questions - CSF Leak / Funny Taste in Mouth

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OTO:
Is is a continous drip from the nostril?   Is it only the nostril on the side of the AN operation?   I'm just wondering.   

I'm so paranoid about my blowing my nose...  Since my face is numb on that side, and my sinus on that side is a little collapsed, I always feel like I need to blow my nose on that side.   I found that wearing Breathe Right nose strips help keep that nostril open and that relieves the feeling.   

My jaw, teeth and tongue are feeling better (not 100% yet), and I'm able to open my mouth more; however, I've noticed a funny taste in that side of my mouth.  It's a bitter taste...   Some days are better than others, and it comes and goes through out the day.   I went to my ENT for a status check and he said it might be a symptom from my facial nerve recovering.  I'm going to my dentist on thursday for my annual checkup, and will ask him too.   Does anyone else have a bitter taste?   On one side?   

Sue:
Hi

Actually many people have that metallic/salty/bitter taste on the AN side, whether you have sugery or not. I have it and I had GK.  I had it before I knew that I had an AN, now that I think about it. This was one of the symptoms I told my ENT about....I said I had a "taste" in my mouth.  He said..."Well, I don't know what that is." Which is why I am STILL a little ticked at the ENT that I had.  Anyway, do a search for any of those words..."metallic taste" and plenty should show up.

Sue in Vancouver

marg:
Hi Oto,
   I have the metalic taste too.  My neurosurgeon said it was from the surgery (for me they had to scrape part of the tumor off the facial nerve).  Some days it is better than other - and now it is only on less than 1/2 my tongue - which is an improvement.  My Dr. said it would go away eventually.  Hang in there.
   Oh yes,  my mouth opens further toonow.    With middle fossa they cut the muscles for the jaw and it takes a while to get better.  I'm still not 100% to where I could open my mouth before but it is getting better.
    Margaret
P.S.  How is your hearing?  I hope you still have yours.  I did end up loosing mine after surgery even though my tumor was small . But I had lost some hearing in that ear before surgery  so my hearing nerve was already "sick" as my neursurgeon put it (and thats why I went in to check out my hearing in the first place).  I am getting more used to SSD.... but it is a process.

Boppie:
OTO, My neurosergeon said the metallic taste is a tongue "sensation" or response to healing nerves.  The dentist said "It might go away, and it might not". 

My tongue sensations and tastes straightened out around 12 months...sorry to say it took so long.

Today at 19 months out the salty taste is back, but I think it is sinus confusion too.  I am not smelling properly today, either.  Taste and smell are bound together.  You might notice that certain smells make your taste buds "off ".  Any time I have taste issues crop up, I try to get a little chocolate.  The sweet mellow taste is well known by my tongue  ;D  and this seems to get me back on track.

Betsy:
Hello Oto,

I'm still doing my research to decide between surgery and radiation, and one of the questions I asked the neurosurgeons was "were I to have surgery and deveop a csf leak, how would I be able to tell it wasn't just a runny nose?"  He answered that mucus is sticky, while csf is not.  Good to know.  He also said there's a simple test that can differentiate between csf and everyday mucus, but I didn't ask if it was available over the counter.

I have the tongue thing too, but it's hard to say whether it's more of a bitter taste or a sensation, or both.  For me, it can be a warning that a severe vertigo attack is going to happen.  Or it can linger for a day or more and make me talk a little funny.  The doctors I've mentioned this to seem surprised this is happening since my tumor is small.  I hate it when they say "that shouldn't be happening", as if I'm making it up.

Sometimes it helps to drink something really cold.  My theory is that it shocks the nerve back to normal, but it doesn't always work.
Boppie, I'm going to try the chocolate thing right now!!  (Practicing for next time my tongue gets tingly!)

Betsy

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