General Category > NF2
MRI results
Jeff:
Hi,
I had an MRI on Jan. 30 and spoke with my doctors this week. I need to have my remaining AN removed. :( This will leave me deaf for at least 2 months and possibly the remainder of me life. I will get either an ABI or PABI and I am praying that it will work for me this time. Mostly, I am praying for no facial nerve or swallowing problems. I agree with you Cheryl, NF2 stinks. This means my family (Dad and brother have NF2) will have had 6 AN surgeries in just over 5 years beginning in Feb of 2002 (this will be my 3rd) - 1 each calendar year! Hopefully, this will be the last for a while.
Jeff
Sue:
I, too, am saddened by your situation and pray that some hearing will be retained for you. You are being kinder about having NF2, than I would be. I'd be using a different word than "stinks"!! Thoughts and prayers are headed in your direction, Jeff.
Hugs,
Sue in Vancouver USA
Cheryl R:
I am sorry to hear that your AN has changed to the point where you do need treatment. The prospect of complete deafness is very scary. I know there are many resources available to make life easier but it won't be the same. I am trying to enjoy my loved ones voices all I can as that is probably what bothers me the most to know I won't be able to hear them at some point in my life. I never dreamed I would be having this happen to me. I hope you will be one of the people who has good results with the ABI.
Hang in there! Cheryl R
Dealy:
Jeff- I am so sorry and feel for you. I can still hear after my radiation with FSR but it just seems to get worse-sounds are very very muffled and distorted. I feel that the voices I hear now-especially my wife are a Godsend and the day like you may come when I will be living in a silent world-that is scary no doubt. My family tries to make out like that is not such a big deal. Well it is too me-but what can you do-but adjust. When I think of the times I had one good hearing ear-that was a blessing-this just sucks. Will be thinking of you Jeff. Your NF2 buddy-Ron.
matti:
Jeff - Keeping you in my thoughts and prayers.
hugs,
Cheryl
(matti)
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