Pre-Treatment Options > Pre-Treatment Options

radiation vs surgery best chance of saving hearing?

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hollo321:
hey debating retrosig surgery or fractionated radiation for my 1.7cm an and getting conflicting answers from doctors based on their specialty. i still have good hearing in affected which wanna preserve.

in general between the surgery and radiation which has higher success rate of preserving long term hearing?

mwatto:
My AN was just under 2 CM. Had fractionated CK almost 5 years ago (next feb). My hearing is measured every year- I have all the audiology reports. My AN ear remains at close to 90%. I listen to music all day. My other ear 95%. I am almost 63 years old. My balance is fine- I power walk every day and barely have tinnitus. Worth watching some of the good videos in the AN library. I do work on keeping inflammation low and avoiding ototoxic medications.

hollo321:

--- Quote from: mwatto on October 23, 2023, 08:00:44 pm ---My AN was just under 2 CM. Had fractionated CK almost 5 years ago (next feb). My hearing is measured every year- I have all the audiology reports. My AN ear remains at close to 90%. I listen to music all day. My other ear 95%. I am almost 63 years old. My balance is fine- I power walk every day and barely have tinnitus. Worth watching some of the good videos in the AN library. I do work on keeping inflammation low and avoiding ototoxic medications.

--- End quote ---

thats great to hear, curious since you have almost perfect hearing what caused you to get diagnosed? and what things you do to keep inflammation low? and where did you get the CK done? if gonna do want to do with best team can find
thanks

mwatto:
Hi I basically diagnosed myself! I had earache on right side for abt two years- doctor/s, dentist etc said was TMJ - so in the end after googling and saying what if its this- after being given antibiotics etc etc I was referred to an audiologist and she said something maybe pressing on nerve as your ears healthy. Then ENT (who retired that same week and I never saw another one) he also said I doubt its an AN I think its TMJ - healthy ears. Then MRI revealed it WAS an AN - doctor said I am gobsmacked you were right. Any event I then googled what to do- saw the options- and first specialist was 5 D Cyberknife one suburb up- first visit very experienced Professor said lucky you saw me would have been a risky operation where it is and very long at least 14 hrs - and you are an idealcandidate for CK. Had it done that week. I was severely traumatised by then. In retrospect I panicked. I had no side effects and realy the only  info I had was from another member here Paul Wellens. So I have yearly no contrast MRIs and audiology reports-and post my stats here. Hearing and balance is fine so far. I have no tinnitus either. What does make me very anxious is radiation induced late effects . I play chess every single day online and offline, live a healthy lifestyle etc I still stress every time I get a stab of pain in ear- but funny thing is it WAS TMJ after all - now have a dental splint for that and the deep pain has stopped.

DanFouratt:
mwatto, I noticed you do non contrast MRI vs contrast.  I am just starting my life long MRI and my doctor always recommends contrast. do you know the difference? I made the decision not to have surgery and went with CK this fall. I have my first follow up MRI in the spring.

Thanks
Dan

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