Post-Treatment > Facial Issues

Suggestions?

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Kaci:
I have not posted in awhile, this is mostly just to vent but maybe some of you have suggestions to share. I had my acoustic neuroma removed in 2017, completely lost the hearing on my right side, of course balance too, synkinesis, no tears right side. I struggle with constant dryness in right eye and still adjusting to hearing loss. I think what bothers me the most is the constant pulling of the muscles on the right side of face and just want it to relax. Also very sensitive to outside brightness. Just hoping to hear of any success stories, things you may have tried that helped with these issues. Also considering plastic surgery to even things out, curious if anyone else ended up doing this

Thank you!!

gbly:
Kaci,
I did radiation so I don't have surgery, but I did have the synkinesis and tightness.  I had basically lost my hearing that was what gave me my first indication something was up.  I don't know if you have tried botox yet, but I just had my second round and my resting face is so much better.
I will say the AN side does not blink as much, so dry but then overwaters. However, love the results of the botox.  Would recommend looking into it just to see if it helps. Helped my face relax a lot.
Good luck and keep us posted.
GB

donjehle:
Kaci,

When someone like GB (who has been through a lot) shares their positive experience with botox, it makes me want to recommend it to others as well.  So, it may be worth exploring it as an option.

And please update us on what you decide to do and what is beneficial for you.

Thanks,
Don

notaclone13:
GB, thanks for posting about your good results with boTox. I am one year post radiation and have been experiencing hemifacial spasms for the past 5 months. My neurosurgeon suggested boTox, but I’ve been leery to go down that road. Who does your boTox injection?

alabamajane:
I responded to one of Kaci’s other posts on this but I have used therapeutic Botox now for several years. Every 3 months, as allowed by insurance, I get several injections around face and eye. It helps tremendously with the synkenisis in various areas.

My doctor is a board certified ophthalmologist specializing in reconstructive plastic surgery of the eye and eye lid area. She has helped relax muscles in several areas of my face that are firing incorrectly. You might ask your ENT for a referral or recommendation .

Good luck. I hope you find a doctor who can help you too!
Jane

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