Watch and Wait > For those in the 'watch and wait' status

Hearing Aides?

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chefcrsh:
Hi again,

So I’m on extended WW after discovering that the tumor wasn’t a VS but suspected Lipochoristoma. This kind of tumor is enmeshed in the nerve and there is no way to treat without severing the nerve. So no treatment unless hearing is totally lost and balance is becoming and issue. Good news is so far 2 years has seen no growth.

Anyway, I have a bit less than 79% hearing in the effected ear. The doctor would like me to consider a hearing aide. What I wondered is given the issue the aide will only be able to amplify sound, is it worth the very high price?

Those with hearing aide and partial loss please give your experience.

Thanks

Janoffh:
I am on W&W as well and got hearing aids about a month ago.  They are terrific.  Makes a huge difference. My neuroma side is moderate-severe loss and my other side is just mild.

I will push for Costco though if you are near one.  The hearing aid market is somewhat of a racket (do some searches and you'll see). There really is no reason for them to be priced as they are. Both private and Costco employ Hearing Specialists. Some Costcos have Audiologists, not all. Mine doesn't, but I've been getting my hearing test through my ENT due to the fact that it's related to the neuroma and I just bring that.  I didn't like the Kirkland brand (I tried several of them) and have the Philips 9030 right now. Trying the Jabra on Wed actually for a 2 week trial. 

CA Marti:
That’s great that you’ve had no growth for two years! I don’t know how your lipochoristoma affects your ear as opposed to an acoustic neuroma. I have an acoustic neuroma and initially got hearing aids for both of my ears but didn’t wear mine on the  acoustic neuroma side because that ear is also sensitive to loud sound. In important situations or ones where I really don’t want to miss anything I do use them in both ears. I love mine and really need them to be able to hear close to normally. I have the widex brand that go over the back of your ear and there’s a clear wire that goes into the canal but you really can’t see it at all. I would highly recommend them if you have trouble hearing in normal conversation settings. I also have a separate hearing problem though as well so I really need them. You can try them out in most places to see how you like them.

chefcrsh:
Lipochoristoma effect is essentially the same as the schwanoma but where the Schwann ma is on the nerve sheath the lipochoristoma is in the nerve so inoperable.

judyl:
I had a Kirkland hearing aid last year (9.0) that did not seem to help and I returned after a couple months. Now I am reconsidering hearing aids since learning about a telecoil option that can possibly help me when speaking on a landline. I have about 80% WR and have been on W&W for 4 years.  I am looking at a Phonak Paradise 70 rechargeable at the audiologist's office, which is in network with my insurance and will cover one. If I go back to Costco, I will actually pay more out of pocket. Their newest Kirkland is supposed to be the equivalent of the Paradise 90, but I haven't asked them about it. 

Has anyone used the telecoil option?

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