Author Topic: Great video with Dr Chang  (Read 1835 times)

mwatto

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Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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Re: Great video with Dr Chang
« Reply #1 on: May 06, 2021, 03:18:35 am »
Thanks for posting this Michele!!
This is a great video! Dr Steven Chang, as always, is very informative, answers a lot of questions.
I'll always be grateful for his expertise.

Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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Re: Great video with Dr Chang
« Reply #2 on: May 06, 2021, 07:52:14 pm »
Hey Stella! Yes I actually learned a lot from this. I now feel much better . Didnt realize that at 2 years might have symptoms and this could be from die off. Also that can get swelling up to 5 years. Not necessarily growth . I just thought was informative not alarmist which is good as I had some nerve pain a few nights ago (after starting on new herb ashwaghanda from naturopath- no idea why that set it off!) Hope you going well. For me its just insomnia (wakening at 2 am)
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing

SP

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  • Posts: 178
Re: Great video with Dr Chang
« Reply #3 on: May 11, 2021, 04:11:22 am »
yes me too on the insomnia... ::)
Hopefully the nerve pain eases off , Ashwaghanda is anxiolytic & neuroprotective among other things.. so it may be having a transient effect there.

Stella
My AN Story – Sydney to Stanford CK
2.3 x 2.2  June 2022@7yrs
2.9 x 2.9  May 2020@5yrs
2.9 cm  Mar 2019@4yrs
2.9 cm  Aug 2018@3yrs
3.1 cm  Aug 2017@2yrs
3.2 cm  Aug 2016@1yr
3.2x3.0x2.5cm AN; CK Aug 2015

mwatto

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  • Posts: 394
Re: Great video with Dr Chang
« Reply #4 on: May 11, 2021, 08:06:09 pm »
Hi there Stella actually all nerve pain gone as I am back on melatonin and sleeping ok! So I cancelled the MRI and will wait. Thanks to that video I now know my nerve pain is probably the AN die off process. It was so worth watching!
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing