Post-Treatment > Balance Issues

Random loss of balance

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tsaff88:
Hi, 

After GK then translab surgery darkness and uneven surfaces are definitely the enemy.  Some days are good; some days are bad. Vestibular exercises help as does kneeling instead of bending over, keeping my eyes focused dead ahead while walking, and using a walking stick. I haven’t even attempted a bicycle since surgery.

I’ve never had a sudden total loss of balance but the new normal is definitely not the old normal.

pattib72:
I had acoustic neuroma removed four years ago.  My balance never got better despite therapy after therapy after therapy.  My left side is weak and my left hand does not hold objects well.  I have the facial nerve palsy with the droopiness on the left side and complete loss of hearing in my left ear.  These last four years have been so hard.  Lost balance is something that is really hard to deal with.  I have fell several times, fractured my elbow once. I have to use a cane when I go out.  I am glad that I found this group so I can talk to other peopl who are going through this.  I pray for you all and hope things get better for us all.

BigJoeBass48:
Hi Patti B....I am assuming that number after your name is your age? I am 63 in California. I made post here but it was too long, 152 people viewed it, nobody replied. I had my 3rd case of extreme vertigo since last May, this one on the 1st of Feb was by far the worst, lasted 30 hours. My neurosurgeons have been hounding me to get CK done on AN. But they say hearing in right ear will be totally gone, maybe eye issues, brain swelling post op, feeling non-existent things crawling on my face. You have that? They all say if I refuse CK this time they will have to cut a silver-dollar size hole in my head, dig AN out, and put me in ICU for 3 days with this Covid stuff not resolved. My AN is 1.6x1.8x1.6. How big was yours if I may ask? Thank you, Joe

Cheryl R:
See another dr.    The description of your neurosurgeon is not how surgery is done by anyone who does ANs.      The is always an incision of longer type with bone removed to go inside.    Whoever needs to do ANs on a frequent basis.                Try checking into Dr Rick Friedman at San Diego .  I can not think of the name of where he is at San Diego.  Appeal to your insurance if needed.           Hope this is of help            Cheryl R

g_persefoni:
 :D
Hello Ladies
I have been 10.5 years since open surgery of my neuroma and must admit that balance is challenging from time to time. Personally, i have found big relief and huge help through yoga and pilates. It strengthens the body, it learns you to balance - plenty of falls during practicing, but who cares, right? - and also mentally hows you the limits of your body and ways to work around it. The more tired i am , at the end of the day, the more 'inbalanced' i am.
Hope this helps!
Exercise is vital for us!

Persefoni

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