Author Topic: Member since 2017 popping in  (Read 2041 times)

mindyandy

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Member since 2017 popping in
« on: June 17, 2021, 09:15:22 pm »
Hello all, those old school An'ers know me  ;D
I wanted to pop in and say I'm doing well and hope all you are too. Post CK Jan 2018 and post OP March 2011.

Hello everyone, if you remember me then post to let me know how you're doing. For those that don't and have questions etc. Feel free to ask. I'd love to help anyone or share my story.

~take care all~
Mindy
14mm dx 9/07. CK done Seattle  1 year MRI showed some shrinkage. 4 year MRI 2mm growth nothing conclusive. Trigminal nerve involvment Retrosigmoid Friedmand/Schwartz HEI March 7,2012

mwatto

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Re: Member since 2017 popping in
« Reply #1 on: June 20, 2021, 07:32:46 pm »
Hi Mindyandy I read your older posts when I had some trigeminal nerve pain that still wakes me up early hours occasionally I guess from less blood flow lying down, An two and a half years post CK and feeling good. I felt reassured reading your posts that debulking is an option. Mine comes and goes and weirdly I find that Scheussler Tissue salts - the Nerve Tonic helps. Mind you so does 1 mg valium No idea why. I also have found melatonin to help me a lot and my specialist and doctor say stay on indefinitely as seems to help in many ways. Anyway glad to know you are doing well. Positive posts tend to take much of the scare out of this. My balance and hearing seem ok at the moment.
Michele
20 x19x14mm Cystic AN diagnosed Feb 2019. CK.
Mri 2019 shrinking: 18x17x13 mm.
Mri 2020 - no cysts visible stable.
MRI 2021 stable no change
MRI 2022 stable no change.
MRI 2023 Further reduction 12x12x10mm!! Hearing 85%
MRI 2024: No change AN or hearing