General Category > AN Issues

Suspected AN - Dizzy for a week consistantly + unilaterial tinnitus / pain

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dontwant2believe:

--- Quote from: golfguy49 on November 29, 2018, 01:08:34 pm ---The whole head one was with contrast as well, yes.

--- End quote ---

so before I go in for my next mri I should directly specify MRI CONTRAST IAC?

i need to do the doctors job for them and tell them what to do?
they cant seem to figure out what to do on their own

I just saw my GP today and they said "youve seen 4 ent's, a neurologist, youve had MRI and cat scan (without contrast) and we dont know what to do anymore, you should see a psychologist"

my GP told me that she would book me a psychologist appointment....

like...as If someone can talk me out of being dizzy, hearing tinnitus, having ear pain

i dont understand what this procedure is??

I keep telling them I need MRI contrast especially on IAC but they act like its not that big of a deal and "theres nothing more we can do"
I had to explain to my GP that without contrast the MRI can miss small tumors...
Then I did my bloodwork, waiting for results.
And got prescribed more serc 16mg

that being said I do have an MRI with contrast for Dec 27, but I'm not sure if its specified with IAC?

What should I do next?
I am so dizzy that I cannot drive my car it feels like i've drank 6 beers..

ANSydney:
My personal belief is to get the diagnostic MRI with gadolinium contrast agent. This assumes you don't have any kidney problem as you need to quickly clear the stuff out of your system.

Subsequent MRI. which are looking at growth, should be done without gadolinium contrast agent. You can still determine growth without contrast. I would also do at least 5 MRIs, 6 months apart (2 years in total) to determine growth. These should be done on the same MRI machine and preferably analysed by the same radiologist. This method also reduced other errors such as where the particular MRI happens to slice the tumor.

Only intervene if there is distinct growth or some other reason.

These are my personal opinions.

dontwant2believe:
I'm still very offended my GP would refer me to a psychiatrist.

Has anyone experienced anything like that before?
Because the doctor is too bad at their job or unable to diagnose and do proper procedures, I'm mentally ill apparently.

So frustrating...baffling..

jami:
If your future specialists have previous AN / Vestibular Schwannoma experience, it may help.

The MRI with contrast was the answer for me, a CT did not show much but WITH contrast, even i could see that something was there.

Understanding the root cause is a HUGE milestone -- but the life impacts remain. Hang in there, dontwant2believe. Whatever the root cause is, know you have a community behind you, here.

dontwant2believe:
any advice on what I should do? ive been waiting since 2013 to be properly diagnosed and rule out AN but all doctors so far are clueless and think MRI without contrast is good enough despite my crazy symptoms

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