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Complications developed after surgery and who would I see

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leapyrtwins:
Although people like to say "HEI" - House Ear Institute and the new group with Friedman (also in CA) are the "best", there is really no reason to travel to California for AN surgery.

There are a lot of other places where people have had just as good an outcome - or, dare I say it? - even better.

I had surgery in Illinois with a phenomenal doc and my experience and outcome was excellent.  I also can't imagine traveling from California post op when it wasn't very pleasant just to travel 35 minutes to my home. 

There are a lot of great choices out there - Michigan Ear Institute is one, the docs in NJ are another, etc., etc.,

Just make sure you have a doc who has experience.

Jan

Abetpds:
Hi All
I am home now after surgery on July 26th.  Also got the BAHA implanted. 
I stayed in San Diego for 20 days after surgery to make sure that there would be no complications. Started Therapy there as well and was able to walk well after the 4th day.  However, the headaches are so bad.  Have throbbing headaches whenever I stand up from sitting and it just stops me cold. At other times I get shooting pain from my neck into my head.  Sometimes I feel like my left ear is going to burst with the pressure. It is hard to lie down. The doctors do not know why I have so much pain.  I was under the impression that  the pain would last 3 weeks but on reading other Post surgery comments, I realize that many are having the same headaches I am having and have had it for years. It is so debilitating that I cannot even move sometimes.  I used to lead a very active life - and cannot believe that I'll not be able to do that anymore. Wish I had decided to W&W some more instead of caving in to pressure from family to remove the tumor.
Rregina

ANSydney:
Hi Regina, When you say you have throbbing headaches whenever you stand up, is it whenever you first stand up or while ever you stand up. That is, if you wait 10 minutes after standing up, does the headache become better?

Abetpds:
Yes AN Sydney, When I stand up the pain is really bad -- I cannot move -- but after about 10 minutes it starts subsiding.

ANSydney:
Regina, we're on to something. I haven't had treatment and have a similar situation about when I stand up after sitting for a while balance is not all that good. After 5 to 10 minutes, it's back to normal.

This started only in about February when I started sleeping less. Nothing to do with the tumor, but I think getting enough sleep is a big factor.

Things get temporarily worse when I stand up, but only sometimes. I'm been trying to work out what scenarios are worse. It all started when I got off the bus in the afternoon. Was it altitude change. Checked that and no. Was it vibration from travel that cause gunk within the cerebrospinal fluid to build up? Is it less sleep? Is it lack of hydration? These last three are still under investigation.

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