Hello Everyone - First off, thanks to all who responded to my other post in regards to managing symptoms. This group is wonderfully supportive and the feedback has helped to calm me down a bit. I am still in shock and can't believe that my old life will never be the same but I am determined to try to get back to that place. I was diagnosed on 7/12 with a 1 CM AN. I went to the ENT today and was told the following. I have my first appointment with the otologist tomorrow and want to ask the right questions. This has been overwhelming and I want to make sure I don't miss anything important. Thanks in advance for any guidance.
Feedback from ENT: Permanently have lost 35% of hearing in left ear, good candidate for hearing aid, while he has been away from the latest for 10 years he thinks otologist will recommend wait and watch, surgery is very complicated because they have to lift the rain and all the other complications that go along with (completely losing hearing), facial paralysis can happen over time and if I go off prednisone (2 days left) my symptoms could go back to the severity of my initial severity (still dealing with them but had completely debilitating vertigo, spinning, had to walk with walker, had to lie down most of the time, hearing was actually ok, have terrible tinnitus now), none of this addresses balance, need to go to PT, this could go away for X amount of years and then spike again unannounced at any time and I will eventually lose my hearing entirely. (none of this reassuring).
So, I want to know if I can resume regular activities - boating, skiing, exercise, driving (have not driven in 3.5 weeks) etc. Will my terrible sypmtoms come back if off prednisoe? Will I ever feel myself again? Is that true about surgery and complete hearing loss, does radiation help at all to shrink, what are the risks with all, if watch and wait, how can we manage these terrible symptoms.....goes on and on.