Treatment Options > Radiation / Radiosurgery

Gamma Knife 12/22 - seeking reassurance & support

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suz:
Hello all,
It has been years since I have posted anything because life has been good and I have not had any major concerns with my AN. For the past 3-4 years after my annual MRI my neurolotologist has said "you should think about gamma knife" but never gave a distinct recommendation. This past summer after careful remeasuring of the growth over the past three years he told me that the growth has been consistent & steady year to year and that now is an ideal time to get gamma knife done. He made a good point about the size of it now and the location and that it is in a good position to treat with GK. I usually have a difficult time making up my mind about taking these big steps but what he said made sense and so I slowly went through the steps to get scheduled. Over the course of three months I met with the neurosurgeon, the Neuro NP, and the Radiation Oncologist and set the date.. All went well and I had really no anxiety until last week when I saw on the calendar that the big day was less than 2 weeks away. YIKES. Minor panic attack ensued. I think I had been viewing the upcoming event with a nurse's objectivity and not really personalizing it. Suddenly I saw the head frame going on my head, being bolted to the table, and I have had butterflies in my tummy since then. I am using meditation and trying to stay active and keep my mind occupied. I realize that it is completely normal to feel anxious about this procedure and the potential side effects up to 6 months afterwards. I am having the procedure done in a top notch institution which I am not going to name because I also work for this health system and I want to be able to speak freely moving forward.
I know some of you are probably wondering about the size of the tumor now and how much growth it demonstrated but I am terrible with remembering numbers and frankly it helps me obsess less to not focus too much on that.
I am really asking for good old ANA Discussion Board empathy and support. Even though I am an RN, my colleagues really don't understand this condition or the challenges it presents. Of course, my friends and family understand better. GK feels like less of a big deal than the actual surgery I had but on the other hand it is still a big deal.
Any words of wisdom or encouragement are welcome!
Suz

rupert:
I see you had surgery some years back.  Going through that before is possibly part of adding to your anxiety.  As far a GK, it's really a non event for most people.  If you're going to a top notch facility you're in good hands.   Forget about the frame, it's over before you even know it.  You're not really bolted to the table, the frame just attaches to the machine.  I was able to sit up and move around between each phase when they switched out the columators   As far as side effects, most people don't have any myself included.  I was a little tired for a while but that was it.  Many people have GK each year with no side effects.  Just relax and take into account that you have a very high chance permanent success.  Good luck to you.

suz:
Thank you - I appreciate your reply. I like the way you described - as a "non- event".
Hoping that's how I describe it afterwards.
Suz

Freelander:
Good luck Suz, sounds like you are well versed and prepared, and should I ever need treatment, I hope to be as well informed.  The December 2017 issue of ANA NOTES, has a good article about Resiliency and five key steps to help reduce the emotional toll of an AN diagnosis:
Understanding the brain, Mindfulnes, Coping Skills, Positive Thinking, and Healthy Lifesyle.   Practice leads to improvement. 
All the Best, keep us posted.

Patti:
I had a re-growth treated 2 years ago and it really was a non-event.  It did not shrink the tumor but it has stopped it from growing.

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