Treatment Options > Radiation / Radiosurgery

Post-radiation

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Carolgre:
Hi, Don.
The rest of my recovery went well. I had a follow up MRI a year after the radiation and it showed a slight shrinkage of the tumor. I'm feeling fine, and with the COVID pandemic and other issues, I haven't had another MRI since but I'm feeling fine with no new symptoms or problems due to my meningioma. I keep hoping, in the back of my mind, that the tumor will shrink enough to eliminate its pressure on my auditory nerve but honestly, I don't think that's going to happen. It's wishful thinking. How are you doing?
 I .

donjehle:
Hi Carolgre!

Thank you for sharing more of your story, and I'm encouraged by it.  It is always wonderful to hear how someone is feeling fine with no new symptoms or problems.

You are probably right that you have wishful thinking regarding your auditory nerve.  I'm not a physician, so I can't say for sure, but someone once told me that the auditory nerve is like a doughnut in the sense that if a car runs over it, the doughnut is permanently flattened.  It does not bounce back up after the car passes by.  So, if this is true, then the auditory nerve, when it has been crushed, does not bounce back once the tumor shrinks away.

It would be wonderful if it did, but that is most likely wishful thinking on our parts.  It's natural that we would want that.  But it probably won't happen.  Unfortunately.    :(
 
I wish you the best on your journey!
Don

mwatto:
Just had 4 year auditory report and no hearing changes - still ok (97% good ear, 85% AN ear same as before treatment.) Balance ok ...waiting to do annual MRI tho next.

bri-82:
Hi Michele,

It sounds like you had some significant cystic component(s) before your radiation treatment. Were those internal to the tumor or external (external cyst etc...)? And were they fairly substantial in size? Glad to hear you're not experiencing hearing and balance changes at year 4. Sounds favorable!

Thanks.
~BM

mwatto:
Hi Bri yes I had two cystic components inside the AN which was around 2 cms. These disappeared completely after the 3 x CK sessions and my AN shrank quite a bit as a result. About to have MRI for 4th year done. However so far all stable. No issues though I have had stabbling ear pain, eye pain at times - especialy after the Pfizer vx. I also had pretty bad insomniabefore and after. My nerve pain has gone - thanks to a full spectrum 3000 CBD THC tincture at night which I take with melatonin (compounded). Healthy diet, better sleep, fresh air. I continue to read everything I can on AN.

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