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Shaky but not shaken

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Skebenga:
Hello

I'm a freshly diagnosed AN sufferer, if that's the correct phrase? I'd love some input to help put some of my concerns to rest, if possible.

I started with a blocked left ear that would not clear even with the valsalva manoeuvre. Hearing seemed dull and I favoured the right ear when trying to hear something. A month later I had a cold and my world turned upside down. Any movement caused head spins and vertigo. I was trying to study and it felt like my head was filled with syrup. Tinnitus at a high pitch started. It took three times longer than normal to get through my notes. When the cold passed, the vertigo eased, but the fullness and tinnitus remained with occasional dizzy spells. I felt unsteady as if I'd been drinking. Not drunk, just two drinks too many. That's been constant for months now. I've had 4 attacks of vertigo in that time as well.

To cut a long story short, I've done a battery of tests, most normal, except for the Ecochg which was high. Initial tentative diagnosis was possible Menieres. Then I went to see a Neuro otologist who asked for an MRI.

So now, 6 months into this unsteady journey, they've found a 8x5mm AN on my left side. It's still small and the Neurootologist wants me to see a neurosurgeon to discuss options. I'd like to know what to look out for. He is suggesting Gamma Knife would be my best option while it is still small and before I suffer any permanent damage. I have a small amount of hearing loss at this stage and occasional facial twitches.

I am a professional pilot and obviously this has a serious impact on my job. I haven't been able to fly for 6 months. I'd like to know if there is anyone in a similar position and whether I have any chance of getting my pilots medical back.

I want to be realistic and I don't want to build false hope, so please don't feel you have to spare my feelings. Give me the facts please.

Thanks in advance from this dizzy blonde. Not drunk, I promise!

rupert:
   Sometimes these things can cause much problems even when they are small. I know that I had some very bad vertigo at several stages almost 10 years before my diagnosis, I assume when it was very small and is first starting to affect the nerves.  That went away mostly after time and I was eventually diagnoses with a 2.2 x 2.6 CM AN.
    These things are growing on the balance and hearing nerves so to give it to you straight, your hearing will probably only get worse.  Have you had hearing tests?  Balance can be hit or miss or frequent or spotty and can change a lot one way or another over time.  Sorry there is nothing concrete there for info but,  symptoms along with results of treatment are very much individual and no one can predict what will or will not be.
    There is some better news in that being small,  you have all options of treatment available to you. It is always considered good advice here to seek out doctors that specialize in treating  AN's. More experience usually equals better outcomes or chances thereof. It is a good idea to get several opinions from doctors and of the several treatment options.  Again, seek out the best.
    My doctors told me there wasn't much I couldn't do after treatment so,  good luck to you.

Zan:
Hello
I am new here too.
I am sure you are anxious to get back to work, but I can tell you what I have read over and over again on this web site.  Take a deep breath and give yourself time to absorb the information.  This is a very slow growing tumor and you don't have to decide on your treatment options today, or tomorrow. Apparently, it is very likely that your neurosurgeon will tell you that the fist thing you should do is wait 3-6 months, then get another MRI to see the growth rate.
It is interesting that you mention being sick.  I had a bad cold this week for the first time in years.   It made me so dizzy.  Even though I am feeling better, I am still dizzy.  I am wondering if being sick makes the symptoms worse for a period of time.
Good luck.

ANSydney:
Skebenga, welcome to the club that nobody wants to be a member of, but everyone is friendly.

Your case is interesting. An 8 x 5 mm tumor is small, however your symptoms are significant. What symptom do you have that prevents you from piloting?

If you have a cold, and it causes an ear infection, of the non-AN ear, you're going to be much more affected than others. That's because you're already down one vestibular system and the cold may temporarily take out the only remaining one. Dizziness and instability are going to temporarily occur.

Keep a very good eye on your symptoms. Take objective records of your dizziness and have regular hearing tests. Have MRIs every 6 months. If symptoms don't objectively get and stay worse and the MRIs do no show rapid growth, there may be no need to get active treatment. Ever.

Skebenga:
Hi. Thanks for the welcome and the advice.

I have daily unsteadiness with occasional dizzy spells. Hearing loss so far is 15dB in the higher frequencies. Not able, allowed or willing to fly when dizzy.

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