Post-Treatment > Facial Issues

I miss my smile

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vickieastwood:
Surgery to remove my 4.2 cm AN was on March 31st 2015. The surgeon said it was very complicated because it was embedded in my brain stem. I was in intensive care, the hospital, then a rehab hospital for two more weeks. There I had to relearn how to walk and talk and I could only have soft foods. I've come a long way since then and have been able to overcome all of that and returned to a normal life. I am grateful for this, I feel so fortunate to be here and have felt such love and support from my family and friends. In January I discovered this ANA forum. It has been eye-opening to discover there are others like me. Because of you, I have decided that this year I want to work on improving my quality of life. Last week I got cross hearing aids. I wear a "microphone " in my deaf ear that sends the sound to my good ear. I didn't realize all I wasn't hearing! I have an appointment this month to find out about scleral lenses. I'm hoping they will work for me. I've had to use eye gel constantly and have blurred vision because of it. And next week I am flying to Johns Hopkins to meet Dr. Byrne to look into facial reanimation. Thank you for helping to give me the courage to take these steps! Hopefully someday I'll be able to share that my smile is back.

Patti:
I've gone through all the same.  I never bothered with hearing aid or scleral lens.  Let me know how it goes! I might consider the scleral lens.  My eye is a constant issue.

vickieastwood:
Hi Patti,

Sounds like we've been through similar experiences. I'll let you know once I get my scleral lenses. I've just been glad to be here, but I feel like I'm operating at about 60%. Seeing and hearing kinda like I've got my eyes open under water. Reading about others in the forum brought me some hope that maybe life could improve. You deserve to feel better about yourself, too! Hang in there,

Kerrybr92:
I have worn a scleral lens for almost five years.  I lived one year with goop in my eye all the time and just couldn't take it.  I would recommend anyone having the eye issues we have to see if a scleral lens is right for them.

vickieastwood:
Thanks Kerry I can't wait to try the lenses!

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