Author Topic: 3rd time the charm????  (Read 1379 times)

tenai98

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3rd time the charm????
« on: April 06, 2017, 11:23:32 am »
1st surgery via translab was April 7/2009....Booger grew and had cyberknife June 6,2016.  Even though he is dead from the inside out, he has either grown or is swollen compressing into my brainstem.  2nd invasive surgery is schedule for this coming Tues, April 11,2017 exactly 8 years and 4 days from first one.  I'm hoping this is it.  Can not remove entirely as its tightly wrapped around my facial nerve.  I hope this is it.   Not mentally prepared for this surgery as I was for the first one.   Was on heavy dose of steroids in Jan/Feb and it helped a lot.  I felt great.  but one week after coming off of them, problems started.  Now, no choice but another round of surgery.   
Thanks for letting me vent
14mmX11mmX11mm left ear
TRANSLAB 04/07/09 2cms at time of surgery
Dr. Benoit and Schramm, Ottawa Civic Campus
SSD ,some facial numbness
Baha surgery sept 22/09
residual tumor 13mmX7mmX8mm
2016 new growth.  25mmX21mmX22mm
cyberknife on June 7

alabamajane

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Re: 3rd time the charm????
« Reply #1 on: April 06, 2017, 03:21:52 pm »
prayers and best wishes go out to you for this next surgery,, you have really had a hard time with yours ,, hoping this is the end.

We will be looking to hear from you, 
Jane
translab Oct 27, 2011
facial nerve graft Oct 31,2011, eyelid weight removed Oct 2013, eye closes well

BAHA surgery Oct. 2014, activated Dec. 26

Patti

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Re: 3rd time the charm????
« Reply #2 on: April 07, 2017, 12:34:37 pm »
What a disappointing outcome.  I will say a prayer for you.  Please let us know, as soon as you are able, how you are doing. What a nightmare!
4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

lilith

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Re: 3rd time the charm????
« Reply #3 on: April 07, 2017, 07:04:14 pm »
All the best.

Hugs,

Lilith
33mmx19mm AN (Diagnosis 5.05.2016)
Radiosurgery in Mexico City: 25.05.2016
Pre and post-radiosurgery: little bit of imbalance, mild hearing-loss, wonky head.

sheren

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Re: 3rd time the charm????
« Reply #4 on: April 14, 2017, 04:09:19 pm »
All the best for you!! First, second surgery went fine then so would your third and hopefully, last. I live in fear everyday that it might grow back so I can imagine how you would feel. Stay strong!
Translab surgery done on 24th february 2016 when I was 24 years old.
3.4cm tumor on the right
Dr Friedman & Giannotta of Keck Hospital USC

 


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