General Category > NF2

Tumor on each side but blood test negative

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v357139:
Friend of mine has tumor on each side but blood test negative.  How can he find out for sure if he has NF2 or not?  Are there doctors who specialize in NF2?

v357139:
Thanks I!!

Willbur:

--- Quote from: v357139 on March 04, 2017, 07:39:05 pm ---Friend of mine has tumor on each side but blood test negative.  How can he find out for sure if he has NF2 or not?  Are there doctors who specialize in NF2?

--- End quote ---

Automatic NF2. It's called mosaic NF2.

Susan A:
Yes, what Wilbur said - it's an automatic diagnosis of NF2.

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