Post-Treatment > Facial Issues
Facial Paralysis 12 Weeks Out.
InnerGrace:
Good afternoon, fellow warriors. I wanted to get some input, which I may know the answer already but it's always nice to get input from those that have already traveled down this road. I had my AN removed on May 30th and ended up with facial paralysis. As devastated as I was, I pulled on my big girl panties and decided that I wasn't going to let the paralysis take control of my life. I am posting some pics...a before, which was about 3 weeks out and an after..which was last week while I was vacationing in Ocean City with my daughters! Which by the way, was an absolute glorious time...beautiful weather all week.. but may I add that there were many frustrating times with the SDD....;) (Getting a hearing aid for sure) I don't know if there is a huge difference. There are certain things that I feel are a wee bit different. My eye for instance, doesn't need ointment as often as it did.. but it still does not close on it's own all the way... I call it a flutter. I started seeing a facial therapist about a month ago...... he gave me minimal exercises as he wants to see more nerve regeneration before we hit it big time..but there are times, when I feel my muscles around my mouth....seizing up... that's the best way I know how to describe it. Like they pull and freeze for a couple of minutes and then let go. About two weeks ago... I was running around the house doing my housework and I felt the corner of my mouth pull up and I ran to the mirror and there was just the slightest bit of an upturn to my mouth.... as quick as it came, it went. Shortly after that, I was driving and I thought I felt my nose flare on the AN side... I looked in the rearview mirror and sure enough, it was making a bit of a flare... as quick as it came, it went...lol And just a couple of days ago..... we were getting ready to go to the ocean..(:) ) And I felt my chin pull and I looked in the mirror and it was indented....for a bit longer than the other incidents. lol I get so so so so excited over these things. I just want validation, I guess, that these are VERY good signs of regeneration... in the world of AN's, I know 12 weeks is not a long time out for nerve regeneration, but some days I get scared that my nerves aren't going to pull it together... also... even though I haven't had a cry in a long time, I'm pretty sure I don't cry out of my left eye, yet tears will randomly roll down my cheek... just out of the blue. Any good words on my experiences so far are greatly appreciated! (So there is no confusion... the first picture is flipped around... I don't know how that happens. But it's MY left side that is the AN side)
InnerGrace:
Sorry the first pic is so big and the second one is so small...lol
Rhcdad:
I too had facial weakness, very similar to yours. I am now 10 months out and I would say 70 % there. Still can't blink left eye and other facial muscles are acting wierd, like neck muscle is working facial features on surgery side. I started doing acupucture about a month ago. My only comment is that as much as we read and try to get things to happen it seems to me that everyone is on there own timetable and if you push the nerves adverse things can happen. Everyone is different, I guess I am saying that patience is required, if I look back I pushed my massaging / excersises too quick and time seems to working for me. It is tough, and I do not underestimate this. I am sure you see improvement all ready, it will come I believe, mine has. Stay strong.
InnerGrace:
This was me yesterday. That little smirk and dimple on the right, that's my affected side. And for a moment in time, I was smiling... :D This has been happening more and more lately but yesterday I caught it on camera. LOL! I am over the moon with excitement. I haven't a doubt in my mind that it's going to come back!!!!! Patience is the key!!! I hope in the future, folks out there that experience the facial paralysis, see my post and carry hope with them!!!!
Trinityfilled:
I too woke up from surgery HB 6. My face slowly started moving again around 3 weeks and has been making slow progress since. I am currently HB 2/3 at 10 weeks out, so getting there. I know exactly what you are describing with the freezing up feeling of the muscles, and just wanted to caution that my doctor believes this to be synkinesis. Too much stimulation early on in the recovery can cause the nerve to go a little wacky and not move properly. I was actually advised to not do any exercises until at least 6 months out and to try not to even smile big or open my mouth really wide when I talk. It sounds like your nerve is definitely recovering and you are on the right track. It's so hard, but I think time is the best thing for you right now. Good luck in your journey, and I would love to see those progress pictures when your movement returns :)
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