Post-Treatment > Cognitive/Emotional Issues

It's starting to really hit home...

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v357139:
If you have daily head pressure you absolutely should be seeing a doctor to get it checked out.

As for facial paralysis, it would be good to check with a facial rehab specialist to see how long to wait before starting.  Most doctors do say wait a while, but I've heard different things on how long.  The best I've heard of for facial therapy is Jackie Diehls who I think is in Wisconsin.  You may want also to ask her how long she thinks you should wait.  Best of luck and keep us posted.

Get to the doctor.  Your health is more important than the money spent to get there.

Mimispree:
I thank everyone for your replies. 

I went to a new neurosurgeon last week because it's three hours closer to my home and I just can't do the six hour drive to my surgeons in Salt Lake City.  The new surgeon told me my MRI looked great, but that I may never get better than I am right now.  Wow.  I've decided not to take that statement in until the end of January, which will be six months after my surgery.

I'm now reading your posts about eyelid implants and the nerve jump, because the doc recommended both. 

I'm also looking into neuroplastisity (sp?). 

If you have any comments on the eyelid implant, the nerve jump, or neuroplastisity let me know.

Thank you,
Mimi 

Cheryl R:
Mimi, was your nerve severed?     Then you can look into possible surgery types.     If you just had damage to an intact nerve then waiting till close to 18 mos is what is frequently recommended.       It can take longer than one wants to have the nerve heal and start to come back.      The gold weight in the eye can be done now if that is what you meant by implant.               Jackie Diels like to wait a year even for facial training unless there is a good amount of movement back.     Doing too much too soon can cause the nerves to cross and cause the wrong muscles to work.        No electrical stimulation.       Mild massage of the face is ok.        I have been thru the wait and know it is hard.   I had a facial neuroma with the nerve severed and at same time had nerve graft done with nerve from by the ear.    In my case not complete movement but look ok at rest.       My profile pic is from after.     
              Hang in there and hope it works out well for you over time.               The website www.bellspalsy.ws has info from Jackie and good to see.                       Cheryl R

Mimispree:
Thank you Cheryl, that's just the type of information I was looking for.  I've been practicing closing my eye, and my sweet husband would watch and be happy for me because I was experiencing my first facial movement.  But at the doctor's last week they asked me to close my eye and smile, and then said, "Yup, nothing.  Nothing there."  I said, "What about my eye?  I can close it a bit," and they informed me that I was simply rolling my eyeball back into my head and my eyelid wasn't moving at all.  My first thought was, "What a sweet husband I have!"

A friend told me about, Anat Baniel's book “The Brain That Heals Itself.”  Have you ever heard of it?  I'm going to read it. 

I have an appointment next Thursday for the eyelid weight implant.  I don't know if I should do it or if it's going to invite more problems.  I don't have patience for any more complications.  Maybe I should just wait until at least a year has gone by.

Thanks for all of the feedback!

Cheryl R:
Mimi,  I would keep the eye wt appt.       I never had one but many who do are very glad they did.     That is  important as the eye care is a big deal to keep the eyes from damage.      Most people are able to get rid of the wt in time.                 Cheryl R

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