Author Topic: Facial Paralysis 5 years post op  (Read 3987 times)

lovelace

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Facial Paralysis 5 years post op
« on: April 08, 2014, 07:53:06 am »
Hi. I am trying to find someone in Atlanta, GA that may be able to help me regain my smile from my surgery 5 years ago. It seems to be getting progressively worse and though I've tried to make the best out of my new" face-uation", I'm still not comfortable with my face.  I'll never give up on my smile....has anyone found acupuncture to work? Anyone had cosmetic surgery? I've waited a long time to inquire (maybe I did give up) but at 45 (still not married) I want to do all I can to regain "my normalcy". Any advice would be greatly appreciated.

elsie

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Re: Facial Paralysis 5 years post op
« Reply #1 on: April 09, 2014, 07:52:08 pm »
I can't give you personal testimony as my facial nerve came back enough that, although i definitely see the difference, people who met me after my AN surgery don't always know my face is not "normal"  (which really bugs me because i know how i am "supposed" to look).  however, my surgeon recently referred me to an ENT plastic surgeon.  i am getting botox from that doc, but we have talked about reanimation surgeries that are being done now.  he uses a nerve from the foot to reanimate and i have read and seen some other successful techniques.  please keep searching for a good doc...you are definitely near some major medical centers that should be able to help you.
Very large AN removed Aug., 1988 - pushed cerebellum aside, touching brain stem
Dr. Wiet in Hinsdale did 12 hour surgery, got it all
Total right-side facial paralysis for 6 months, 50 - 75% return
Extreme dry eye and tinnitus in both ears
Lost all hearing in AN ear
1/8/14  AN Regrowth confirmed

lovelace

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Re: Facial Paralysis 5 years post op
« Reply #2 on: April 12, 2014, 08:35:27 pm »
Thank you!! I really appreciate you responding.

Brewers7

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Re: Facial Paralysis 5 years post op
« Reply #3 on: April 14, 2014, 12:28:09 pm »
Elsie,
Who is the ENT Plastic Surgeon?
Translab surgery 12/15/2008 followed by CSF leakage repair and 3 additional surgeries for MRSA of the brain (NOT typical) SSD,  facial and vocal cord paralysis, numerous reconstructive surgeries, Transear 12/2010

elsie

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Re: Facial Paralysis 5 years post op
« Reply #4 on: May 12, 2014, 06:39:59 pm »
Sorry, not checking this part of the site often.  Dr. Sidle, at Northwestern in Chicago.
Very large AN removed Aug., 1988 - pushed cerebellum aside, touching brain stem
Dr. Wiet in Hinsdale did 12 hour surgery, got it all
Total right-side facial paralysis for 6 months, 50 - 75% return
Extreme dry eye and tinnitus in both ears
Lost all hearing in AN ear
1/8/14  AN Regrowth confirmed

Kathleen_Mc

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Re: Facial Paralysis 5 years post op
« Reply #5 on: May 14, 2014, 02:35:46 am »
lovelace: get to see a plastic surgeon who specialises in facial reanimation.....lots can be done,and I should know! I've had lots done. You might not get back to looking exactly like you did but you can get some improvement I'm sure.
Kathleen
1st AN surgery @ age 23, 16 hours
Loss of 7-10th nerves
mulitple "plastic" repairs to compensate for effects of 7th nerve loss
tumor regrowth, monitored for a few years then surgically removed @ age 38 (of my choice, not medically necessary yet)