Author Topic: SoundCure  (Read 3673 times)

JW123

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SoundCure
« on: October 07, 2012, 06:03:13 pm »
I believe I saw this was posted on ANAUSA's facebook.

http://www.soundcure.com/for-patients/our-solution/

After reading some of its studies I would be up for trying it! Anything to try to help the tinnitus. I am starting to think that there might be a connection from my headaches and my tinnitus. They both see to be worse at the same time but it could just be all in my head (pun intended).
Left side VS - 2.0 x 2.7
Retrosigmoid on Oct 17th 2011
Surgery at Mayo Clinic with Dr. Link & Dr. Driscoll
SSD left side, delayed temporary facial weakness, ongoing severe headaches.

Suu

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Re: SoundCure
« Reply #1 on: October 08, 2012, 03:32:09 am »
I've copied that page to an email and sending to my ENT surgeon to see if we may be able to get them in Australia.

Hope is always only a click away sometimes.
Thanks for the link.
Suu
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

CHD63

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Re: SoundCure
« Reply #2 on: October 08, 2012, 07:26:48 am »
Thanks for the link to the SoundCure site.  I have been following the research on tinnitus treatment through the American Tinnitus Association (ata.org) site also and saw this.  Still watching for proven therapies for people like me who are single side deaf and cannot hear any device dependent on treating my deaf ear tinnitus via hearing, which of course cannot happen.

Let us know what anyone finds out ..... also the cost of said treatment, since it is probably not covered by most insurance plans.

Clarice

Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

Suu

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Re: SoundCure
« Reply #3 on: October 09, 2012, 01:42:37 am »
Hi Clarice
From what I read on their website it's a white noise filter that is programmed by your own ENT to help with tinnitus.
You put it beside the bed, under your pillow, or when you have the loudest sounds.
Here in Australia we have a few doctors as well as Psychologists that recommend something similar that is covered by many health care providers.

Hope this helps,
Suu xxoo
4cm Left side AN Translab August 18th 2010
Facial nerve not working
Nerve conduction Jan '11 Repeated 23rd May '11
SSD left side
5 ops in 6 weeks to fix CSF leaks
Tarsorrhaphy 9 Mar '11 Extended 26 Aug '13
Sling Thur 16 June '11
12/7 nerve graft 9 Feb '12

Chances3

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Re: SoundCure
« Reply #4 on: October 09, 2012, 11:20:59 am »
Please see the link below.  My surgeon has reccommended this therapy for me.  It has been discussed here on this site.  I am told this therapy cost $6,000 and some insurance companies will cover about 25 percent.  The opinion on this therapy to help varies.  I believe it has been posted here as a 50-50 chance of helping.

http://www.neuromonics.com/