Author Topic: World Neurofibromatosis day today May 17  (Read 4339 times)

producer

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Mosaic NF2  diagnosed march 2011.

9mm x 6mm x 6mm left VS

Cyberknife 3 day treatment completed May 2nd.

Jim Scott

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  • 1943-2020 Please keep Jim's family in your hearts
Re: World Neurofibromatosis day today May 17
« Reply #1 on: May 17, 2012, 01:53:19 pm »
Young Keisha Petrus of Malaysia, 22 and a life-long NF2 sufferer is amazing!  Although she is severely afflicted and has suffered many losses, including her hearing and mobility (she's wheelchair-bound) Keisha is pursuing a psychology degree  (via online classes) and has an active social life, including a long-term boyfriend.  Her resilience, fortitude and determination to live as full a life as she can - and it is full - is inspirational and a reminder that although we cannot always change what life deals us, its how we handle it that counts.  Keisha Petrus handles adversity (in the form of NF2) with courage that is absolutely awesome and humbling when we consider what she deals with on a daily basis and what her future may hold.

Thanks for posting the link, Chris.

Jim
4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.