Post-Treatment > Balance Issues

return of wonky head monster

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mattsmum:
i was just reading earlier, that after compensating for a one-sided vestibular loss, episodes of decompensation can occur for a variety of reasons (eg flu, viruses, change in lifestyle) that respond to repeated vestibular rehab. so hopefully this is what is happening to you, rather than the dreaded re-growth.
best of luck.
vikki

JimmyD:
I have Horizon Medicare Blue and they pay for two or three MRI's a year no deductable.

Cynaburst:
Soundy - Wondering what became of you.  I am experiencing a new bout of "Wonky Head" almost 15 years out of surgery.  Am going to schedule a scan soon, but it is hard not to worry that I am having a regrowth.  I have, however, had some intermittent wonky headedness now and then, which has gone away, so I am hoping that is what is going on.

Would love any input from others who have gone through similar.

Soundy:
It's been a long time since I've been here. No internet access at home and forgot password and then forgot email address and locked myself out.

Life's about the same. Headaches, stumbling gait, ringing in deaf ear is deafening (LOL she laughs sarcastically), no MRI in years, facial to AN side.etc etc.

Basically no insurance coverage, have not been able to find work close to home. One offer of work of 4 hours 3 days a week, an hour and a half away. $7.25/hour. So that would be $87.00 /week. $59.40 for gas. So $27.60 a week but not even that because I didn't deduct tax and SS. So depressed and pissed off. Still not disabled enough for disability according to the powers to be. Now they say I need to do more MRI of head and hip, do rehab therapy,  and visit doctors more often to secure more proof. My proof is too old. With a regular Office visit costing me $189 I just don't go until things are really bad. Evidently this means I'm not that bad or I'd go more often. What this means in my real world is we're broke and my husband is working himself half to death trying to keep our heads above water.

I'm sorry. I didn't come to rant. Life just kinda sucks right now.  My baby is graduating high school on the 19th. Awards day was today and she has full ride to complete LPN and if she wants to go for RN after that she can do co- op and work at hospital 20 a week and they pay her way.My older daughter just finished her first year of college Deans list and had scholarship money added gor next year. I should be rejoicing ( and I am) but am so soul sick that I'm miserable.

My regular doctor who has been my advocate,friend,confidant etc for 20 years is retiring. I feel like without him I'll just crawl in a hole and not come out. He has managed to pull strings and get things done when I have been turned down for care.

Ok. Really going now. I haven't come here because I knew I'd do this. Get upset. I'm gonna read around and maybe post when I come down a bit. Sorry.

lilith:
Hi Soundy,

A big hug to you. I have no words except I really hope things improve for you.

Lilith

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