Author Topic: hope someone can answer this question.  (Read 2550 times)

sue1954

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hope someone can answer this question.
« on: April 28, 2010, 01:50:18 pm »
hi there
could someone answer a question for me... i have an awful pressure feeling in my head , like a dragging feeling that makes me want to sleep , and i have to ... is this a symptom of AN... i have had MRI done and waiting for results , i did think if they did find anything they would have been in touch by now... how long did you wait from MRI scan to being diagnosed .
i also have constant roaring sound in my head  dizziness and odd times balance probs and full right ear.
thanks Sue .

CHD63

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Re: hope someone can answer this question.
« Reply #1 on: April 28, 2010, 02:22:27 pm »
Welcome to this forum, Sue!

Tell us a little bit more about what symptoms prompted the order for an MRI.

An MRI with contrast is the definitive way to diagnose an AN ...... note the stress that it must be with contrast.  As to how long to wait for MRI results, this depends so much on the facility doing the MRI and how/when they communicate results to the ordering physician.  I learned the hard way to wait following the actual MRI for my own copy of the CD/ROM and to go back and pick up a copy of the radiologist's report as soon as it is available (in my situation usually 48 hours).  It is your body and they have to give you these things.  The downside to that is knowing how to interpret what you see or read.  In most cases it is better to wait for the ordering physician to go over the results with you.  The reason I do not wait for the doctor now is because there was some kind of a communication mix-up at the time of my diagnosing MRI and I falsely thought I was in the clear when I did not hear anything.  Ten days later I went to my follow-up visit with the ENT alone and was told I had a 2+cm AN that needed to be dealt with rather immediately.  I was in such a state of shock I did not know what to ask ..... not a good feeling.

As to the pressure feeling in the head, depending upon where an AN is actually located, presenting symptoms can be quite different.  I never had the pressure feeling until during post surgery recovery.  I also did not have tinnitus (roaring sound) until post-treatment.  I did have the dizziness/balance issues, full ear, and hearing loss.

Let us know what you find out.  I pray it is not an AN but whatever it is, we are here to support you in any way we can.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011

sue1954

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Re: hope someone can answer this question.
« Reply #2 on: April 28, 2010, 02:39:49 pm »
thanks for replying clarice
i have been treated for months now via my gp for labrinthytis ( excuse spelling)...was given stemtal...my symptoms got worse so gp gave me betahistamine and sercs........ still suffering the dizziness and roaring in head so gp sent me to ent ..to my surprise got appoinment within a few days of gp's referral...had hearing test ....the ent doc told me to fold my arms and close  my eyes ...i did and fell back....i also have flickering in my eyes when i follow docs finger...
my head shakes also .... that was on a tues ...on the saturday i was booked in for mri ( no contrast tho )
on the paper i was given to take down to the MRI department it said acoustic neuroma.....
like i said i have heard nothing yet ..i only have a pre booked hospital app for june...... just wonderd if anyone had to wait till they saw there ENT specialist for the results.
sue.
« Last Edit: April 29, 2010, 04:10:49 am by sue1954 »

Rivergirl

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Re: hope someone can answer this question.
« Reply #3 on: April 29, 2010, 05:06:23 am »
I usually get my results the same day as my Dr.'s appointment is right after (been in watch and wait for a couple of years) if I that doesn't happen the Dr. usually calls in 24 hours.  If I were you I would call the Dr. that ordered it and ask for him to call you with the results, I could never wait that long to find out, that is torture.  Good luck and let  us know.
Diagnosed 6/2008
Right AN 2cmx8x9
Sub-Occipital at Mass General with Martusa and McKenna on 5/31/11
Right SSD, very little taste
I think I will make it!

LisaP

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Re: hope someone can answer this question.
« Reply #4 on: April 29, 2010, 05:09:43 am »
Hi,

Like Rivergirl, I also receive MRI results the same day.  I go to Boston Eye and Ear for MRI's and I see Dr. McKenna.  Keep us posted. 

LisaP
LisaP
AN at 12mm by 7mm by 7mm,  shown no growth as of September 26, 2013, 5.5 years into this journey.  Next MRI 2015. Doctors: Mason and McKenna.  Continue to W&W

skamper

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Re: hope someone can answer this question.
« Reply #5 on: April 29, 2010, 03:04:22 pm »
I had my MRI at 4:30 on a Monday night and the next morning my GP had already called me with the DX.  I would give them a call and find out.
Diagnosed 12-09
AN right side 2.3 x 2.6 x 1.9
97% balance loss, minimal hearing loss
Surgery 4-2-10 at Methodist Hospital, Dr. Long and Moore
1.5 cm tumor left on 7 nerve.  Gamma knife 1-2013

sue1954

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Re: hope someone can answer this question.
« Reply #6 on: April 29, 2010, 03:20:47 pm »
thank you to everyone for replying
what i forgot to mention is i am from the united kingdom.....i suppose its how our NHS work..then again still thought
i would have heard.....if i did not feel so unwell then the wait would be bearable , but all i do is sleep now ..worn out all the time
i have also started with a numb feeling on my face, lip  and tounge  also double vision and blurred vision...are these also a symptom  of
AN ?
sue .

CHD63

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Re: hope someone can answer this question.
« Reply #7 on: April 29, 2010, 03:50:09 pm »
Sue .....

Yes, these are all potential symptoms of an AN.  However, they could also be caused from something else so please try to be patient until you have a definitive diagnosis.

Surely even with the national health care system in the UK, you can call your doctor's office and find out the results of the MRI.  I would urge you to call him/her tomorrow and be sure to tell them any increasing symptoms or new symptoms you are experiencing.  Most ANs are very slow growing, but occasionally there can be the rare rapidly growing kind (Jan and I both did) so if your symptoms are changing rapidly, you need to alert your doctor.

Best thoughts and let us know what you find out.

Clarice
Right MVD for trigeminal neuralgia, 1994, Pittsburgh, PA
Left retrosigmoid 2.6 cm AN removal, February, 2008, Duke U
Tumor regrew to 1.3 cm in February, 2011
Translab AN removal, May, 2011 at HEI, Friedman & Schwartz
Oticon Ponto Pro abutment implant at same time; processor added August, 2011