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Author Topic: removal of gold weight  (Read 5056 times)

Patti

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removal of gold weight
« on: October 22, 2009, 05:58:45 pm »
I haven't contributed in a while , but i just had to share some good news!  i finally (after 9 years) had my gold eyelid weight removed.  the doctor was willing to try it since it had ****ed and protruded over the years.  it caused my eyelid to lower too easily.  i thought it was so ugly!  my eye looks great!  it stays a little open at night, but i sleep with it covered so its ok.  big change!!!  patti
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

mimoore

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Re: removal of gold weight
« Reply #1 on: October 22, 2009, 06:33:50 pm »
That is wonderful Patti!
Glad you are feeling good about it!
Michelle  ;D
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Retrosigmond surgery on June 4th, 2008 for an AN. 100% hearing loss and facial paralysis (was not prepared for facial paralysis). Size: 2.3 cm, 2.1 cm, 1.8 cm. some tumour remains along facial nerve. Pray for no regrowth. Misdiagnosed for 10 yrs.

saralynn143

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Re: removal of gold weight
« Reply #2 on: October 22, 2009, 07:19:00 pm »
Great news Patti. I'm glad you are happy.

Sara
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MVD for hemifacial spasm 6/2/08
left side facial paresis
 12/100 facial function - 7/29/08
 46 - 11/25/08
 53 - 05/12/09
left side SSD approx. 4 weeks
 low-frequency hearing loss; 85% speech recognition 7/28/08
1.8 gram thin profile platinum eyelid weight 8/12/08
Fitted for scleral lens 5/9/13

epodjn

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Re: removal of gold weight
« Reply #3 on: October 22, 2009, 07:29:19 pm »
That is wonderful news! So does that mean you can blink on your own? How long did it take to come back? I'm not even a year out but just wondering.
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Left side 3.2cm AN/FN removed 12/8/08 Dr's. Shelton and Reichman. SSD, facial paralysis,taste issues, lateral tarrsoraphy 6/25/09,scheduled for eye and nasal valve surgery 6/22/11 life is GOOD!

Jim Scott

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Re: removal of gold weight
« Reply #4 on: October 23, 2009, 12:27:02 pm »
Hi, Patti ~

I just wanted to add my own note of congratulations on the occasion of you having your gold eye weight successfully removed.  This kind of news is very informative and inspirational for AN patients dealing with eye issues.  Thanks for posting.  :)

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

Karen

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Re: removal of gold weight
« Reply #5 on: October 23, 2009, 06:44:54 pm »
Hi I also had my eye weight taken out after almost 5 years.  I can blink if I use my cheek a little and think about it.  I use Celluvisc about every hour and a half during the day and Refresh PM at night.  I also don't     have feeling in my face tongue and cornea and no tears.  Do you feel uncomfortable on that side all the time, even though it is numb it feels stiff and like I have been to the dentist.  I still can't get used to that feeling.  Even tried Neurotin and Lyrica.  Karen  P.S. I would like to talk to you sometrime,
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Karen
     Surgery 12-17-03, nerve graft 1-04, 3.5 cm, facial paralysis, numbness and no hearing in left ear

Patti

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Re: removal of gold weight
« Reply #6 on: March 21, 2010, 03:56:45 am »
Since i last wrote in october about the removal of my eye weight-it has only gotten better.  my eye does close at night without covering it.  the refresh liquigel dries on my outer eyes and seals it shut.  i look better.  i am feeling almost normal!  karen-send a private message with info about how we can talk.  patti
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015

nancyann

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Re: removal of gold weight
« Reply #7 on: March 21, 2010, 04:36:46 pm »
Wonderful news Patti.  I'm curious,  did you have the same weight in for the 9 years ?  Since I will always need a weight in my eye,  I'm concerned re: protruding out of the eyelid.  I've heard it should be changed every 5 years ?   
Always good thoughts,  Nancy
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2.2cm length x 1.7cm width x 1.3cm  depth
retrosigmoid 6/19/06
Gold weight 7/19/06, removed 3/07
lateral tarsel strip X3
T3 procedure 11/20/07
1.6 Gm platinum weight 7/10/08
lateral canthal sling 11/14/08
Jones tube insert right inner eye 2/27/09
2.4 Gm. Platinum chain 2017
right facial paralysis

Patti

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Re: removal of gold weight
« Reply #8 on: March 21, 2010, 07:25:31 pm »
nancy-yes, i have had it in for 9 years and only this year did the doctor agree that it was protruding and even shifted.  he said there was no guarantee that removing it would work but he gave me the option.  all is well.  patti
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4 cm AN removed 12/2000
subsequent brain swelling
removal of part of cerebellum
face, scalp,tongue numbness and partial paralysis
no corneal sensation and no tears-frequent eye issues
cognitive issues
Regrowth (3.1 x ..86 cm) treated by SRS on November 6, 2015
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