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Author Topic: Post GK 4 month update.....  (Read 4160 times)

tatianne

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Post GK 4 month update.....
« on: September 18, 2009, 07:31:49 am »
Hi everyone, I haven't been around in a while because I decided that I was going to put this AN things
on the back burner for a bit and enjoy my summer, which I did!

I just wanted to give an update.

I had GK at the beginning of May and it went very well for me.

All symptoms have stayed the same since prior GK, which I didnt have too much of anyway.

Now Im having a cold and my ear feels more full and like echo ish, but Im assuming this might be normal
with congestion and cold symptoms/

So far so good.

My follow up MRI is in November and I will come back to let you all know what the results are.

Take care, God Bless !

T
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Waith and Watcher
July 2006 8mm
Jan 2007 9.5 mm
Jan 2009 1.4 cmm x 5mm
GK surgery completed on May 4, 2009 in Sherbrook Quebec, hoping and praying this will be the beginning of the end of my AN......

GRACE1

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Re: Post GK 4 month update.....
« Reply #1 on: September 18, 2009, 07:37:03 am »
Congrats on your GK experience.  Do let us know how your MRI goes.

Take care,
Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16

sgerrard

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Re: Post GK 4 month update.....
« Reply #2 on: September 18, 2009, 09:30:35 am »
Good news on your GK experience so far, T. I was very sensitive to colds the first six months, and still am a little. Seems like a normal thing. Here's to a good MRI result.

Steve
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8 mm left AN June 2007,  CK at Stanford Sept 2007.
Hearing lasted a while, but left side is deaf now.
Right side is weak too. Life is quiet.

Jim Scott

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Re: Post GK 4 month update.....
« Reply #3 on: September 18, 2009, 12:43:40 pm »
Welcome back, Tatianne!

Thanks for the positive update on your GK treatment.  I'm so pleased to learn how well things are going for you and that you had a fun summer!  Fingers crossed for a great follow-up MRI in November.  I'm sure you'll have more good news, then! 

Jim
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4.5 cm AN diagnosed 5/06.  Retrosigmoid surgery 6/06.  Follow-up FSR completed 10/06.  Tumor shrinkage & necrosis noted on last MRI.  Life is good. 

Life is not the way it's supposed to be. It's the way it is.  The way we cope with it is what makes the difference.

ppearl214

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Re: Post GK 4 month update.....
« Reply #4 on: September 18, 2009, 05:57:35 pm »
tatianne! You've been missed.  I can well understand the need to step back and take a break. Great news and thanks for keeping us updated!

Please don't be such a stranger!

Phyl
« Last Edit: October 08, 2009, 03:36:29 pm by Jim Scott »
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"Gentlemen, I wash my hands of this weirdness", Capt Jack Sparrow - Davy Jones Locker, "Pirates of the Carribbean - At World's End"

GM

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Re: Post GK 4 month update.....
« Reply #5 on: September 18, 2009, 06:54:33 pm »
Best wishes fellow "zapper" !!   If the fullness in your ear really bothers you...you can try visiting your doc for some steriods.

GM
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Originally 1.8cm (left ear)...Swelled to 2.1 cm...and holding after GK treatment (Nov 2003)
Gamma Knife University of Virginia  http://www.medicine.virginia.edu/clinical/departments/neurosurgery/gammaknife/home-page
Note: Riverside Hospital in Newport News Virginia now has GK!!

Vivian B.

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Re: Post GK 4 month update.....
« Reply #6 on: September 18, 2009, 10:16:39 pm »
Hi Tatianne,

I have been wondering how your treatment is going. Good to hear from you and glad that you are doing o.k. Cold symptoms do make symtpoms worse.

Vivian
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CPA AN(most likely meningioma) 1.6cm by 1.5cm by 1.9cm diagnosed early March 09. Watch and Wait.

GRACE1

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Re: Post GK 4 month update.....
« Reply #7 on: October 08, 2009, 01:03:34 pm »
Wonderful news. 

Grace
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Diagnosed 7/06: AN - right side: 1.3cm in transverse dimension, 6mm in AP dimension, and 6mm in cephalocaudal dimension.
GK 12/06- Wake Forest Univ Baptist Med Ctr
MRI 5/07- Some necrosis;  Now SSD
MRI 12/08- AN size has reduced 50%
MRI 12/11- AN stable (unchanged from 12/08)
Next MRI: 12/16
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