ANA Discussion Forum

Post-Treatment => Post-Treatment => Topic started by: Darin on June 30, 2009, 03:18:26 pm

Title: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on June 30, 2009, 03:18:26 pm
Hey everybody, just wanted to give my tumor one last chance to say 'goodbye' to everybody before he gets annihilated tomorrow morning at 8:30AM EST courtesy of retrosigmoid surgery. I'll be having my brother-in-law, Andy, update this post tomorrow (if WIFI is available) as the day progresses. You don't have to be nice to him if you don't to  ;) Thanks everybody for spending valuable time with me on this forum. I really do appreciate all the comments. 'Talk' to you soon  ;D
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Joe B on June 30, 2009, 03:35:02 pm
Darin

 The waiting really was the hardest part for me. I'm glad that it won't be long before you are a postie. I hope all goes well. I will say a prayer for you and talk to you soon in Postieland!!
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 01, 2009, 04:56:39 am
Darin just went into the prep room here at the hospital. We will keep this site updated with his status from time to time.

Just so everyone knows, Darin DID take care of all the important stuff before he went into to surgery. He and his bro watched a movie late at night and he got three hours of sleep. Oh yeah, and the receptionist came out and called for "Doris." No one got up, and she then looked at the other receptionist who checked Darin in. Apparently she didn't have very clear handwriting . . .

That's all for now!

(By the way, I am Andy, Darin's brother-in-law. I will be updating this site. Feel free to ask any questions and I will try to keep checking this as frequently as the WIFI permits.)
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: leapyrtwins on July 01, 2009, 05:48:05 am
Thanks for the update, Andy.

I hope things will go smoothly for Doris - er, I mean Darin  ;)

Looking forward to more updates as the day progresses.

Jan
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: nteeman on July 01, 2009, 06:12:57 am
Darin,

Wishing you all the best!

Neal
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 01, 2009, 06:42:00 am
Ah, the prep room: compression stockings and "The View," is how I remember it. Happy that Darin will soon have this day behind him and can focus on healing and his triathlon!
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: TxNurseNoelle on July 01, 2009, 06:45:12 am
Darin is in my thoughts and prayers today for a speedy recovery...We are all sending good thoughts his way...Keep us posted
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 01, 2009, 06:58:55 am
Darin's surgery just started. He told the nurse that he had a bloody Mary this morning! He didn't, but it was funny to mess with the nurse. Everything was going well, until the surgeon walked. At that point, all trust in him dissipated as we noted the little hat he was wearing (his surgeon's beanie).

It was an Ohio State Buckeyes beanie.

Not cool! I am from Iowa, and a Hawkeye fan. My wife (Darin's sister) is a Michigan Wolverines fan. The rest of the family here in the waiting area don't like Ohio State either. Hopefully the surgeon doesn't add a Buckeye tatoo to his head when the surgery is over!

More updates to come.
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Cheryl R on July 01, 2009, 07:23:38 am
A long day for your family and hope it all goes well.           I think I heard thru Darin you are from Ankeny and I am not far from there near Boone.    I was down there Mon.             I wrote to him as our daughter lives in Lansing so have Michigan ties too.
     I am having some non AN surgery in Des Moiines this afternoon so won't be seeing later updates.
                                                          Cheryl R
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 01, 2009, 08:18:51 am
Cheryl,

Yes, I am from Ankeny, Iowa. I have actually been to Boone a couple of times. Sounds like you have been able to experience the joy of driving from Iowa to Michigan! Nothing like an 8 hour drive. Oh well, I am thankful I don't have to drive farther than that, but it is totally worth it to see the fam!

Glad to meet you!
Andy
Title: Surgeon Update 12:00pm
Post by: Darin on July 01, 2009, 10:11:29 am
One of the Doctors just came out to give us an update. They started the procedure at about 10:00am. They have just now gotten to the tumor and they are beginning to work on it. He said that if it was a "sticky" tumor then it would take longer. So far it has been sticky. He explained that "sticky" meant there are a lot of veins to deal with and other things. I do not know if he meant the tumor was actually "sticky" in the sense that it was like glue or something, it is just that there are lots of things to take care of. However, they are now working on the tumor.

The doctor expects the surgery to go until 6:00pm. He said that the surgery was going fine so far, there have been no complications and he seemed in good spirits.

More to come . . .
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: CHD63 on July 01, 2009, 10:16:12 am
Andy .....

Glad you are updating on Darin for him ..... waiting can be almost more gruesome than for the one having surgery ..... at least Darin is in "la la" land and won't remember anything of the next several hours!!  Take care of yourself!

Clarice

P.S.  Just saw your update .....  sorry the tumor is a sticky one ..... that means it is the kind that is more tedious to extract from the surfaces it is touching.  Some come out easily in one piece because they are more encapsulated.  Glad the doctor you talked with is in good spirits .....   :-\
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Keri on July 01, 2009, 11:15:49 am
Hi Andy,
Thanks for the udpates so far. 3 hours sleep isn't too bad - he'll catch up today. Maybe you'll be tired a bit later though...
and just don't tell the doctor you DON'T like Ohio State and Darin should be fine!

Seriously, we're praying for him and that he will make a smooth and quick recovery. He seems so active and healthy and I think that really helps post op.

Keri
Title: Surgeon Update #2
Post by: Darin on July 01, 2009, 01:34:42 pm
Alright, good news! They are almost done extracting the tumor. It appears that everything is going very well. They have a little bit more tumor to remove, so far the facial nerve has not been affected. The nurse smiled a little when giving the update, that was nice.

It's hard, as I am sure many or all of you know, when you are waiting for the news. When a nurse smiles, you really want to get super excited, but the surgery still is not over. However, it appears that this is looking good. They will start putting his head back together in a little bit.

And don't worry, I haven't said a thing about the Ohio State issue with the Doctor.  I wouldn't want the surgeon to surgically remove the tumor and then surgically install a buckeye in his head . . .   ;D


 
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Jim Scott on July 01, 2009, 02:34:20 pm
Andy ~

I'm just catching up with Darin's surgery reports and I'm pleased to learn that he's almost finished and all seems well at this point.  It's always a long day for those waiting and I appreciate your taking the time and making the effort to post  these updates.  Your brother-in-law, Darin, is in the thoughts and prayers of many, today.  I think he'll do well.

Jim
Title: Surgeon Update #3
Post by: Darin on July 01, 2009, 04:12:00 pm
Good News!

They are now putting everything back together. They have finished removing the tumor. The surgeon said they probably got 99% of the Tumor! Also, they said so far it appears that the facial nerve is still responding normally. It was hard to hear the part about the facial nerve, so I will try to get better info for the next update. At 8:00pm Darin will be moved to Intensive Care and someone will be able to go and see him.

Thank you all for your prayers. We will keep posting updates as we hear more news!

-Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 01, 2009, 04:13:51 pm
Whew! Great news. So happy for him that this part will soon be behind him.
Title: Intensive Care Nurse Update #1
Post by: Darin on July 01, 2009, 06:25:24 pm
Darin is currently in intensive care and awake off and on. The nurse said he is doing very well, he is really tired. His right cheek has some weekness, but this will most likely go away over time. The Surgeon explained that in stretching the facial nerve to the side, it will weeken it for a while. However, this type of stress on the nerve will completely go away in time.

We haven't seen Darin yet, we will go into his room in about 10 minutes. We can all go in at first, but then over the next day or two there will be a limit to how many people can be in there and for how long. We will get those instructions later.

The nurse said Darin is very glad to have the surgery be done. He should have a headache for a few days, and it may be pretty bad. He will be on anti-vertigo meds. At first, he will always feel dizzy. After time, he will be fine if he isn't moving his head, but when he moves his head the vertigo will return. Over time this should completely go away.

More later. :D
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 01, 2009, 06:28:32 pm
sorry, in the sentence "he should have some weekness in his cheek" it should read "weakness."
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: cin605 on July 01, 2009, 06:38:32 pm
Gald to hear Darin is a postie & doing well. :)
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: ppearl214 on July 01, 2009, 06:41:01 pm
sending wellness wishes to Darin for a speedy recovery! :)

Phyl
Title: ICU REcovery Update #1
Post by: Darin on July 01, 2009, 07:11:02 pm
I just went in and saw Darin. For having been through and 8 and 1/2 hours surgery, as well as prep before the operation, and the nervousness of knowing what is coming the nights and days before, he really looks good. He seems like a human version of one of those power strips you plug a bunch of computer cords into. He has tubes in his nose, and his hand, a few in some other places as well. He has monitors that are displaying his vital signs, with cords tangling this way and that, like a web on his torso. A very large flat panel monitor is mounted on the wall in the corner of the room like a guardian or perhaps a watchman, giving us Darin's conditions. It tells his vital signs like his pulse and blood pressure. He has a large devise setting on his chest with a few buttons on it. Perhaps for morphine or maybe to communicate with the nurses. His bandage goes across his forehead like the headbands you see on an old martial arts film, but it sets high on his forehead, even going a ways towards the top of his head.

The lighting is low and the sounds are close to silent, save for the constant quiet beeping and chiming of the equipment keeping him monitored.

What was unexpected? How his face looked. The doctor explained there would be some weakness on one side. I thought that would look droopy. The nurse prepped us before we went in saying that he looks rough, having had a very long day. I expecting him to look . . well . . much worse. Surprisingly, other than some facial puffiness, which isn't even that puffy, he looks very good.

He is a fighter, this much is true. As well as he looks, he should be on the road to a speedy recovery. The nurse who came to talk with us while we were in his room said that they have given him many differing drugs and medications, a veritable toddy of comfort, if it could be called comfortable. There are drugs to keep him from being dizzy, and drugs to keep the pain down. Then there are the anti- nausea drugs that keep him from throwing up. All in all, this looks promising and positive so far.

More as time allows. I know Darin appreciates all of you and the support you give him. Thanks for your prayers on his behalf.
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: CHD63 on July 01, 2009, 07:46:25 pm
Andy .....

So glad you were able to see Darin and know that he is going to be OK.  From your great description of his appearance, tubes, machines, meds, etc. ...... it all sounds very typical.  In case no one has mentioned it, remember F3D (first three days) do not count.  He will most likely feel rather lousy and doped up but on that 3rd day, barring no complications, he should suddenly feel like a human being again.

Thanks again for keeping us posted ..... please continue as you are able.

My prayers continue for a speedy, uncomplicated recovery!

Clarice
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: sgerrard on July 01, 2009, 09:08:51 pm
Excellent, and thanks for taking the time to update us on him. It sounds like he will do fine. Best wishes, and take care.

Steve
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Joe B on July 02, 2009, 06:58:08 am
Glad to hear that everything went so well with Darin. 99% tumor removal sounds like a great success. And yes, everything that you are describing does sound typical, and familiar, as my surgery was just 4 weeks ago today. We will keep Darin in our prayers and keep the posts coming.

Joe
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: sharonov on July 02, 2009, 07:10:09 am
It's wonderful to see a sense of humor during such a critical time.  You're there for him during this long surgery and must be nervous as hell, but you managed to make me smile.  By now it's all over and I'll add to the prayers that everything has gone well and recovery is rapid.
Sharon
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: SML on July 02, 2009, 08:29:11 am
Thanks for keeping us posted on Darin.
We are so happy to hear all went well and welcome our new "postie" to "postieland"!
Best wishes for a quick recovery.

Scarlett & Rich
Title: The Morning After Update
Post by: Darin on July 02, 2009, 08:59:14 am
Darin made it through the night with no real problems. He puked 3 times, but that seems like its either par for the course, or on the low end of the game. His face is puffier today, actually all of him is. His fingers are swollen as well as his toes. His face is more droopy on the side of the surgery. When he smiled only one side went up (I am told, I wasn't there). However, the surgeon said that the facial nerve was stretched a lot during surgery so this is normal and should go away completely with time.

Some funny stories .. .

Everytime someone walks by his bed and he opens his eyes and sees them, he waves. Even if its the same person from a minute ago!

He was stretching his arm over his head, then he rubbed his eyes.  But then he stretched his hand all the way over to the opening of his ear canal and started rubbing his finger and thumb together. Now he did this but he never touched his ear, he stay about 1 inch from his ear. Then he did this to the other ear, which has a lump of gauze on it. Then he repeated this process for both ears and fell back asleep. After this, we realized he must have thought he was cleaning out his ears!

Nothing like those drugs they give you in the hospital!

The room is darker today, the shades are drawn and all is kept as quiet as possible so that he can sleep. His mother just finally went home this morning to get a little rest. She didn't leave his side all night. A new shift of nurses have arrived. His new nurse is fine, and he does a good job, but he is not as kind and nice as the last guy. Darin goes in and out of consciousness regularly. We ask him if he is comfortable or in pain, he says he isn't, which is great. However, he has the leg things on that keep blood clots from forming. Though he is almost completely out of it, he constantly explains how they don't feel good because he is very constricted with them on, like he can never stretch enough to get comfortable.
Title: Terminology Question
Post by: Darin on July 02, 2009, 09:16:45 am
Ok, I need some help out there in the ANA community. I saw that this whole thread was called "Darin in Postie-land." I figured that meant, "Oh, Darin is going to be posting alot of updates . . hence . . Posting-Land." However, I am picking up on the lingo and I think maybe it has a different meaning than I thought.

What exactly is "Postie-land"?

Thanks!
Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: cin605 on July 02, 2009, 10:18:11 am
Its all good we love updates.
As far as ruubing his fingers out side his ears this is how "we" test our hearing in each ear the neaurologist as well as Ear nose throat guys do this every time they come to check on you in hospital...at least they did me....I can hear the noise you fingers make rubbing together in my left side but on side AN was removed i do no t hear when you rub your fingers together. ;D too funny too watch for some one that doesn't have aclue what your doin i'm sure.
Please keep posting....think of every post as alearning experience!
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 02, 2009, 10:22:06 am
Postie means one who is blessedly after(post)-surgery!
Title: Terminology Question: Answered!
Post by: Darin on July 02, 2009, 10:59:00 am
@cin605

Thanks! That makes much more sense! I should have expected a more lucid interpretation of his actions. This truly is a learning experience.

-Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 02, 2009, 11:02:20 am
@Lilan

Ok, that makes sense too. I wondered at first when this "Post" lingo was going around and I thought it meant that he was posting to this site.  Thanks for the info!

-Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 02, 2009, 11:23:27 am
Thank you for the updates! I love not having to wonder what's going on in the days around a poster's surgery!
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: sharonov on July 02, 2009, 12:24:54 pm
So before surgery we're preemies?
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 02, 2009, 12:26:34 pm
There was debate about that terminology on another thread -- not sure a verdict was reached so it may still be open to nominations!  ;)
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 02, 2009, 03:17:45 pm
Darin's had a good afternoon, he was awake enough to recommend a good restaurant down the street. I assured him the hospital cafeteria hadn't killed us with it's food yet.  One of his doctors stopped by for just a minute this morning, but his surgeon is going to be doing rounds at any time now, so we will get a better picture of things once he gets here. He seems to be resting somewhat comfortably,  he looks "good" still swollen a bit, but not too bad.

He has not had any anti-nauseous meds since early this morning and said he does not feel dizzy, so that's really good.  The nurse came in earlier and we asked what he was giving Darin, he said a steroid to help with inflammation of the central nervous system.  Darin asked if the steroids would help make him stronger, but he was rather scrawny.  The nurse told him, that no, it wouldn't, but that Darin should let his dr. know that these don't seem to be working and to ask for the other kind. :0) 

Darin reminded us that tennis was on today, we turned the match on long enough for him to figure out who was winning the match, my sister and I couldn't figure out who was playing b/c the screen was a little fuzzy, so Darin let us know who it was and who had just won.

Will try to update more later after the doctor comes...

We told Darin this afternoon that a lot of people had posted on his site and his blog, and he said he's looking forward to reading it later.  Thanks for all your notes! :)

Julie
P.S. I'm Darin's sister, and Andy let me post something because I bribed him with a raspberry muffin.
Title: Friday AM Update
Post by: Darin on July 03, 2009, 07:29:17 am
Morning Everyone!

Darin had a normal night last night. He is on pain meds still but seems to be fine. He will be moved out of ICU soon. We are hoping he has a private room but there is no guarantee. However, this morning the doctor came in and said all the rooms are full so they can't move Darin yet! Good deal! So, hopefully the rooms stay full so he can have this nice quiet and private room for another day. Last night they gave him a CT scan. The results are going to be in this afternoon I guess. The Doctor came in yesterday afternoon and saw that it hadn't been done (must have missed this . . .) and wanted to make sure they did one to be safe.

Ok, this is for free, just an observation that is interesting to me. As I sit here and watch Darin sleep, I notice he shifts from time to time like anyone does in there sleep. The interesting part is watching his heart rate. You can tell when he is in a really deep sleep because it gets' down in the 55 bpm area. but when he starts to rub his eyes, or shift his legs around, it slowly creeps up to about 70 bpm. One time he opened his eyes when he was shifting and I checked the heart rate monitor and it said 80 pm.

This information is helpful because I never know if I am disturbing him by whispering or typing this blog, or whatever. Now, I just look at the heart-rate monitor and I can be sure that I am not waking him!

That's all for now!
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: CHD63 on July 03, 2009, 07:41:30 am
Not sure if this last post was Andy or Julie, but thanks for the neat updates on Darin.  Interesting observation on the heart rate ......  Glad they are able to wait for a private room for Darin.  I don't think I could have handled having a roommate post-op ...... hearing and eyesight too sensitive, to say nothing of the dizziness when standing.

Tell Darin we are thinking about him.

Clarice
Title: Friday AM Update #2
Post by: Darin on July 03, 2009, 08:19:07 am
Sorry everybody, I forgot one important detail . . .   (This is Andy, so blame me, not Julie)

Darin has no dizziness. None. No nausea from vertigo, nothing. None at all.

????

The doctor said he would be very dizzy for 48 hours and that he would most likely throw up frequently. However, this is not the case. The doctor came in last night and when he found out this was the case, he was baffled. He thought about it for a minute and said, "I don't know why this is happening." He then gave us a guess, basically he was trying to think through why this was happening with us.

He said he cut the nerve (balance nerve?) on the right side for the surgery. The two nerves (the left ear and right ear) communicate with one another. they send signals back and forth. The doctor said that the one nerve should be the only one sending signals. This lack of information coming back to the left nerve is what creates dizziness and vertigo. Since he isn't dizzy, the only thing the doctor thought might (and I stress, this was his best guess. He was very open about saying that he did not know why this was happening, but if he had to guess right as we were asking him, this is what he would guess is happening, but he still said he really doesn't know) be happening is that there were still some fibers from the right nerve that we left over after the procedure. These fibers may be returning signals to the other side, and this may be why Darin isn't nauseous at all. Praise the Lord for this! He is being very gracious to Darin.

As we learn more about this happy anomaly I will try to post more updates. We are going to try to talk to the doctor more later when he comes by to see if he has any other ideas of why this is happening.

later,
Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Keri on July 03, 2009, 08:28:28 am
Hi Andy,
This is great! I got my balance nerve severed as well, and didn't have dizziness either. Maybe a little nausea. The nurse would say 'you're not dizzy?' and i'd say 'no' and she's say (or maybe it was a resident doc) ' well you should be!' Anyway, I'd get up on my own to go the the bathroom or something and the nurse would come flying in "what are you doing???!!! you're going to fall over - you can't  walk on your own yet" and things like that. I think I about gave her a heart attack. Since I was in neuro ICU for a few days, they could see me all the time. Now I'm 6 months post op - I still have some wonkyheadedness, but it feels more like being a bit tipsy, which seems better than being dizzy. I always thought it was because I had kept exercising / running right up until surgery so my other side had compensated. Who knows? I'm glad Darin is doing well with this.

Thanks for your informative and humorous updates! I'll keep praying for Darin.

Keri
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 03, 2009, 08:36:14 am
So happy he's doing well.

This makes me want to burst into tears for him and all of us! So poignant! (But I refuse to cry because head/sinus congestion is not what I need right now! No tears and no sneezes for at least another week!):

But then he stretched his hand all the way over to the opening of his ear canal and started rubbing his finger and thumb together. Now he did this but he never touched his ear, he stay about 1 inch from his ear. Then he did this to the other ear, which has a lump of gauze on it. Then he repeated this process for both ears and fell back asleep.
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: nteeman on July 03, 2009, 09:17:55 am
FWIW, I was told before my surgery that, even though I didn't notice it, my AN was affecting my balance. They did a few tests and told me it was natural for the body to adjust to the loss of function of the vestibular nerve. I was then told that this could be good for my recovery as I had already started to make this adjustment.  After surgery I, if fact, did not have any major balance or dizziness problems. Yes, I did have a little wonky head feeling but no major balance, dizziness and no nausea (or vomiting). This could be similar for Darin.

Neal 
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: CHD63 on July 03, 2009, 12:02:06 pm
Andy and Darin .....

Not sure how much Darin has been up on his feet yet ..... he could still have some issues so someone needs to stay close by when he is up walking ..... at least for the first few days.   Sure glad the dizziness is not evident.

The terms dizzy, vertigo, disorientation, wonkyheadedness can all have different meanings to each of us ANers.  My vestibular therapist's opinion is that they are all forms of vertigo ..... just different levels.  I never had the "room spinning around" type of vertigo, it was more of a disorientation (not quite figuring out where "up" is) at first ..... since then it has been spells of "wonkyheadedness" (love that term ..... it is so appropriate ..... thanks, Deb!) in which I have moments of "oops gotta shift right again."

As others have said, the brain adapts well to the loss of vestibular signals from one side by shifting the input over to the other side.  In some cases this begins before treatment, some afterwards.  In my case I have had surgeries on both sides (AN side resulted in complete loss of vestibular signal, other side damaged), thus I am apparently getting erratic signals from the only remaining vestibular nerve, which is almost worse than no signal.  Other threads on balance go into more detail on therapy, etc.

Overall it sounds like Darin is doing extremely well.  Keep us updated.

Clarice

Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Jim Scott on July 03, 2009, 02:35:56 pm
Andy ~

The updates are appreciated, especially when the news is positive - and no vertigo or nausea certainly qualifies as positive!  I had a very similar experience.  My brain had learned to function with input from only one side so I avoided the trauma of sudden SSD or nausea.  Also, like Darin, when I had my surgery, there were no semi-private rooms/beds available - and I spent 4 days in ICU.  It wasn't nearly as quiet as Darin's ICU room seems to be, but I still managed to sleep a lot, as almost all AN post-op patients do.    I also got to find out what my BP and heart-rate were.  They were quite low, most of the time (128/78 BP, 70 pulse-rate).  I recall noticing that my BP rose a bit at one point and I asked the nurse about it.  She said that doing almost anything, especially eating (I had just finished a light meal) can raise your blood pressure.  I thought this was not only logical but useful information. 

I'm sure your conversations with the doctor will shed some light on Darin's lack of dizziness, which, of course, is a good thing.  :)  Thanks again for the updates.  Thank Julie, too.

Jim
Title: Friday PM Update
Post by: Darin on July 03, 2009, 08:10:54 pm
Today Darin moved out of ICU. He still hasn't had any dizziness issues for which we are all thankful. The only bummer about Darin Moving out of ICU is that now he has a roommate. This is a bummer because his roommate is not really quiet at all. Actually, the entire floor isn't quiet. Kids scamper this way and that regularly throughout the day, and not without screaming an obligatory comment about catching the other kid, or some random talk of what the two are going to do next to keep occupied in this large and boring world known as a hospital. The nurses, though I am sure they mean well and their jobs are very demanding, they certainly aren't much quieter than the kids. We were spoiled in the ICU: Large rooms, quiet conditions, high numbers of caring and attentive nurses, and very quick response time to calls for pain medications. This floor is loud, the rooms are very small and not private, the nurses are more hurried and disconnected from the patients, and the response times for pain meds is much longer (45 minutes one time!).

Darin is doing well, but he seems to be having to ask for pain meds more frequently. He sat up for the first time tonight. The nurse really wanted him to get up on his own. This required a lot of exertion. After getting up he got dizzy for the first time. His heart rate raised, he got very warm and had to lay back down. However, after about a half hour he was back to normal, just more tired.

Tomorrow they want him to get up and walk! We'll see. It will be good for him to walk I am sure.

More to come-
Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: ppearl214 on July 04, 2009, 06:06:59 am
thanks for the update Andy.... sharing Darin's post-treatment processes is very helpful to others that are researching options and it is most appreciated. Please give Darin my wellness wishes for speedy recovery..... 

Phyl
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: sharonov on July 04, 2009, 06:33:12 am
Re the 45 min. wait for pain meds--unless he is asking for them more often than prescribed, that is unacceptable.  If he's not overdoing them, complain to the head nurse on the floor and do it firmly.  Don't give up or be intimidated.  I volunteer at a children's hospital, where some of the patients are too young to know they can ask for relief, but there's a sign up in every room for the parent/caregiver:  Every Patient has a Right to Pain Relief.

If there are any nurses on the board who can contradict me, please do so.
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 04, 2009, 06:35:34 am
He'll progress quickly the next couple days as the anaesthesia truly wears off. I really think that's part of it.

I couldn't sit up for 24 hours w/o retching violently and was terrified to leave ICU. By the next day I was (reluctantly, only because in the back of my mind I knew I had to if I didn't want to live in the hospital for the rest of my life) getting up with a walker (and I moved like a 98-year-old). By the third day I realized the walker was just getting in my way.  :)  I felt like every 12 hours I could do something totally new!

Re pain, might it help to time out how often he needs something and then ask for it an hour in advance? Or if he's allowed to have one every four hours, keep that time period in mind and ask for it a half-hour early?

Best of luck, and glad he has such support!

Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Cheryl R on July 04, 2009, 07:06:13 am
I am surprised they never had him up walking right away.     One can feel all kinds of weird ways at first when move and the more you move, the better it goes.                             I was lucky too and never dizzy.
You just missed an alll night rain down here.            Hard for 4th of July goings on.                    We are to go to an outside wedding at a neighbors tonight and bet they are sweating it.                Supposed to stop by noon.
                It does get better over time and we think of all those who are in the hard time part of after surgery.
                                                                Cheryl R
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: MissMolly on July 05, 2009, 07:06:05 am
Hi there and Best Wishes to Darin,

My surgery was on June 22 and I am reliving my early postie experience all over again.  The 'dizziness" takes time to go away.  I ended up having to postpone my first standing and steps following surgery because I had a lumbar drain (to check Cerebral Spinal Fluid Pressure and make sure I wasn't leaking) for an extra day, which meant lying in bed an extra day as well.  The first standing up was a mind blower - the floor didn't feel right beneath my feet and I felt like I was on a spinning ride at a theme park.  I had a great Physical Therapist who was very good at explaining the vestibular changes that occur because of trauma/damage/destruction to the vestibular organs on the left side (my an side).  The example she gave was of a tight rope walker with the long pole used for balance - if someone came an snipped of one end of the pole, it takes the walker a while to make adjustments in balance and feedback before they feel more equilibrium.  With time, walking with the new pole becomes automatic.  I hope Darin is doing well with this and am happy to 'compare notes' along the way, since we both seem to be going through the same thing.

Hoping for continued good recovery. 

Miss Molly
  (P.S. - I HATED those inflatable leg things I needed to wear for circulation.  Was soooooooo happy to get them off)

mm
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: heyct on July 05, 2009, 12:51:39 pm
I'm so glad to hear Darin is doing well. He is young & will probably bounce right back.

As for the meds....My thinking is, that's what you in the hospital for! It's major surgery & don't be shy or embarassed about asking for them. I'm not usually an advocate on medication, & was still tenuous 10 days later when my doc said I was doing great & to quit them all!

Tell Darin to take care of himself & get lots of rest. Enjoy the down time.
Carolyn
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: leapyrtwins on July 05, 2009, 06:41:44 pm
Andy -

thanks for the update on Darin.  I can't imagine having a roommate post AN surgery  :P

I was lucky enough to have my surgery at a very small hospital with a private room; but maybe it will give him some incentive to get up and walking so he can go home.

I didn't walk for days after surgery - I was very resistent due to major nausea and dizziness.  In retrospect, I wish I had gotten up and about sooner; help him work on that.

Please let Darin know we are cheering him on and hope to hear from him soon.

Best,

Jan

Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Darin on July 06, 2009, 07:08:40 am
Hey everyone!

Ok, I am in Minnesota for a Seminary class so my updating the site is pretty much finished. Robyn (my wife, Darin's sister) is going to keep updating you all on Darin's progress. He is doing really well. I know there has been a lag in the updates. He walked down the hall yesterday, took a shower, ate food, etc. It was a good day. He seems more alert.

As to his room, a nurse was in on Sunday Morning and asked how long he would be staying. Darin's sister, Julie, was there and said maybe till Wednesday or Thursday. The nurse, with a shocked look on her face, said that she would try to find him a private room right away! So that is good news, he is now in his own room again, which has been much better.

Ok, have a nice day everyone, more to come!
Andy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: Lilan on July 06, 2009, 07:13:51 am
Walking, showering, eating = feeling human again! Good for him!  :D
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: CHD63 on July 06, 2009, 07:17:01 am
Andy (or Robyn) .....

'Twas good to read your post on Darin ..... I was hoping you had all been busy.  Glad Darin is up and walking, etc. ...... and glad he is finally in a private room.  I would have been a very unhappy patient if I had had to deal with a roommate post-op.

I am hoping Darin will surprise the medical staff and spring out of the hospital before Wednesday or Thursday ..... let's pray he does!  Tell him we are pulling (pushing, holding up ....  ::)) for him!

Clarice
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: wendysig on July 06, 2009, 11:35:57 am
I'm glad to hear Darin is doing so well.  I also can't imagine having a roommate, especially a noisy one right after surgery.  How horrible for him.  I did eventually get a roommate, but not until my third day in the hospital and she was very quiet and so was her family.  I hope Darin is able to go home sooner than later.  I was in the hospital, including two days in rehab for five and was more then ready to go home.  Leaving the hospital made me very happy.  Hope it happens for Darin soon.

Best wishes,
Wendy
Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: leapyrtwins on July 07, 2009, 06:43:28 am
Good news, Wendy.  Darin is home.  There's another thread here somewhere.

Title: Re: Darin in Postieland! (in a few short hours, technically)
Post by: mimoore on July 07, 2009, 07:09:36 am
I am late coming into this but so happy for Darin that surgery is over and went so well. It is apparent he has a loving family and that can make all the difference!
Hugs Michelle ;D