ANA Discussion Forum
Post-Treatment => Cognitive/Emotional Issues => Topic started by: tenai98 on May 29, 2009, 09:24:34 am
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Even thou I have no facial paralysis, people are saying I look different. So I finally ask how do I look different. Every one said I looked spaced out or dozy type thing. I am not taking any meds. I think it might be the wonky head. My brain is fine in the thinking department but my head at times feels heavy or clogged up. I'm wonderin if my balance issuies will improve. I'm only 7 weeks post op, but if this is as good as it gets, its livable and doable
JO ;D
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A theory which may or may not apply to you... After you've had a brain tumor you realize that a whole lot of the stuff people tend to stress over and get upset about just doesn't matter. Maybe they are interpreting your lack of concern about the smal stuff as being spaced out. Maybe it's a philosophical change rather than a physical change... just a theory.
It seems like to me that at 7 weeks post op you still have a lot of room/time for improvements. I didn't start to get movement back in my face until around then. It is good though that you have reached a point to knowing you can live with your current level of recovery. This isn't to suggest you stop any recommended actions meant to improve the situation but I do believe the shift in attitude that accompanies this acceptance can have a major, positive impact on future improvements.
Just some armchair theorizing for a Saturday morning... now on to a real problem..how to retake control of my lawn after a 12 day absence.
..take care... tim b
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Hi JO .....
Just having major surgery of any kind changes the way we look, walk, etc. for awhile. Perhaps your SSD and balance issues are causing you to hold your head differently. I know the balance issues for me have changed the way I hold my head (much more focused straight ahead when walking) and the way I walk (wider gait for stability now).
Your balance will improve for months after surgery and I suspect you will regain your pre-surgery appearance gradually.
Take care. Clarice
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I know i am not the same person i was before surgery.I still have the same pesonality i guess...I see people alot that say i didn't even reconize you....granted i did get my hair cut & don't wear my ponytail as i usually always did becouse of my cleaning bussines.
I have no facial paralisis.I also waer contacts now & sometimes i swear they make my vision worst.I never had my eyes checked before
AN was removed but they say i have a stigmitism in both eyes & its no wonder i couldn see good.I do hold myself totalyy different as i am having some muscle spasing.Also my i keep my toes spred out alot more i would imagine to keep my balance.My attention span is also really at a minimum so when people are bableing about B/S i tend to maybe cut them off & get to the point.I also noticed..well
my sister did....that if i am out at a store ect. if some one is just standing around i will totally avoid them even if there is plenty of room for me to get by & i do this very fast...why i don;t know but i am in some big, huge rush w/ every task.
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I didn't have any facial weakness either but I feel like I look different, I think its because I feel different inside. Like Migoi suggested, I am much more nonchalant about things, not because I don't care but because my perspective has changed. My surgery was a week before yours and I'm like you, if this is as good as it gets, I'm fine with that. I'm proud of my changes, my physical ones (the crooked gait, I'm a little slower, and what little facial changes that only I notice) and my psychological ones, I've been through a lot and thats ok. IMO people shouldn't be pointing out changes, we had brain surgery, I think that allows for a little change, ha!
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Jo ~
I'll throw in yet another hypothesis, worth about what you pay for it.
If people are aware that you've undergone brain surgery and you're not exactly 100% the same as you were before the surgery, they were likely anticipating changes in you and perhaps amplifying any small differences in your appearance or demeanor. Imbalance can be very disconcerting to both the patient and onlookers. Fortunately, it should improve. You're less than two months post-op and, based on others experience, it will probably be a year or more before your balance is improved enough to no longer be something noticeable to others. The 'wonky head' will also improve. Although you're content with your current level of recovery, it will undoubtedly get even better. :)
Jim
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Jo,
You are doing great for 7 weeks post brain surgery, and yes people should notice that you are "not the same."
Whatever it is- the hair, the new outlook on life, taking things slower, thinking through things slower, etc.etc......
I don't sweat the small stuff (really never did before surgery either, but it is more pronounced now).
People may perceive me as not concerned or worried, or nonchalant to the nth degree. But this is how I cope with daily symptoms.
Our perception of "normal" is now different ;)
I still tell people about my brain surgery 3 years, because my post op symptoms do and always will affect my life. Oh joy >:(
Everyone's "journey" is different. Enjoy each day OKAY? :)
Maureen