ANA Discussion Forum
Post-Treatment => Balance Issues => Topic started by: TxNurseNoelle on October 24, 2008, 07:51:23 pm
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I just recieved diagnosis on Monday that I have AN Lt side will see a Neurotologist on Thursday.. I think I read more articles on this subject than I care to mention and it was so nice to come accross this website and know I am not alone! I was misdiagnosed for a year told the balance issue was anxiety. Had 2nd opinion with another neuro,MRI with contrast and here i am one year later. was wondering how long it took for some of the members to return to work? I have reduced hearing in the Left ear presently, the msmts are 19mm x 12mm and protrudes in the CP angle.
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Noelle~
Greetings from another Texan!! ;D I'm so sorry that you have an AN but so glad that you found our happy, little group. Where in Texas are you from? I had AN surgery almost 13 years ago when I was 25 so i am living proof that you can get thru this and come out on the other side & live life to the fullest. Please feel free to PM me (on left) if you would like to chat on the phone - I have unlimited long distance and would love to call you. You can also check out my blog (address below). Don't be a stranger - let us help you in any way we can!!
K
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Hi, Noelle:
Welcome to our forums. I'm sorry about your diagnosis but glad you found this website. Thanks for posting.
I wish there were a more definite answer to your 'return to work' question, but there really isn't. To be realistic, there is no 'average' when it comes to acoustic neuromas. Depending on whether you have surgery or radiation to address your AN, returning to work could be days, weeks, months or in rare cases, never. It depends on the kind of work you do and how your recovery proceeds. I'll just trust that the treatment you ultimately choose will be successful, your recovery complete and your return to work, rapid. :)
Jim
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Hi and welcome to the forum,
All of us here are sorry when another joins our fold, but we are certainly meeting you with open arms. It took me almost a year to diagnose my AN, so I know where you are coming from. Since you are a nurse, you probably know all of this, or most of it, but be sure to check out this article on the workings of the balance system. It certainly explains a lot of what is happening to most of us. http://www.hearinglosshelp.com/articles/balancesystem.htm
You have a small AN, so you may get the choice of Watch and Wait, radiation (Cyberknife, Gamma Knife, etc) or micro surgery. I hope you look at all of your options carefully. It's very important to choose the best team that you can, as you well know. You might also check out the cyberknife website. www.cyberknife.com They have a lot of good information and you can post questions to actual, real doctors!
I wish you all the best,
Sue in Vancouver USA
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Thank you to everyone for your kind words of encouragment, there are truly wonderful people in the world, and it helps to know I can talk to someone who understands what I am going through..I will keep you posted as I meander through this process..Hugs to everyone and again, many thanks!
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Hi, Noelle :)
My AN was on the left also and I had it surgically removed (retrosigmoid) about 17 months ago.
I'm glad that you found us.
Good luck with the neurotologist on Thursday. Let us know how it goes.
Jan
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Hi Noelle,
My first presenting symptoms were balance issues too!
We've all been there..that starting point filled with anxiety.
The good news is that you have a condition that has several treatment options and a tumor that appears to be right under 2 cm.
Let us know how we can help.
Kate
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Hi Noelle-
And welcome. I found this wonderful group about 8 months ago, the same night of my rather startling diagnosis. This group has gotten me through the emotional journey of getting consults, sorting through options, preparing for and recoving from surgery. I can't say enough about the people here.
My initial reaction on finding out that I had a tumor in my head was to get it out right away. As it was, I was just under two months from diagnosis to surgery - everything fell into place fairly quickly in terms of consults, which helped. I had three consults, including one from House Ear Clinic (HEI). They will have one of their surgeons look at your MRI film and talk to you over the phone at no charge. I was able to speak to one of their doctors within the first week, which was helpful. I went on to consult with two surgical teams in my area, and opted to have surgery at NYU wiht a very experienced team. No regrets.
Let us know how your consult tomorrow goes and post any questions that occur to you. You've found a great group!
Debbi
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Hi Noelle,
Welcome to our elite group. Her eyou will find lots of support. I'm a newbie as well being diagnosed in Aug/08. This site is great..
JO ;D
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Hi Noelle and welcome to this forum. Sorry you have to be here but glad you found us. You arenot alone and I hope that will be some comfort to you during your AN journey. We are here to support you however we can. I am currently unemployed so I will leave it to others to give you their opinions. However, each person's outcome from treatment can be very different, so I'm not sure anyone can answer that question with any real amount of accuracy. The real answer is it depends on what, if any issues you have, after your surgery/radiosurgery.
Best wishes,
Wendy
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i am one year later. was wondering how long it took for some of the members to return to work? I have reduced hearing in the Left ear presently, the msmts are 19mm x 12mm and protrudes in the CP angle.
Welcome. Sorry you have to join our group, but we're a pretty good group of folks who have a lot of different experiences to share with others.
Like others have said, so much depends on the size, location and your own personal recovery. I had a small AN (9mm x 3mm) and for me, I returned to work 1/2 time (from home) at 6 weeks post-op and full time (in the office) at 8 weeks. I'm almost 10 weeks post-op now and it gets a little be easier each day.
Good luck.
Cathy