ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: Mark on December 21, 2005, 05:27:32 pm
I think I'm one of the "older" :) members of the "CK club" on the board, having been treated in November 2001. One of the reasons that I have opted to stay involved the past few years with this forum was to provide updates on my progress ( good or bad) and be of some help to those just starting their journey. So here goes:
Met with Dr. Chang this morning to review the MRI and Audiogram results. Good news always results in a short appointment ;D and this was a quickie as we spent more time discussing my triathlon experiences this year. Highlights were:
1) Tumor status : The AN is still showing as quite dead and had actually shown some additional shrinkage. This was a lttle (pleasantly) surprising to Dr. Chang as he sees most AN "carcasses" stabilize in size after 3 years. The AN at time of treatment was slightly larger than 2.1 cm and is now around the 1.5 cm size
2) Facial nerve : I had no function problems prior to treatment and the facial nerve continues to be 100% OK
3) Hearing: While I had moderate to severe high frequency loss going into treatment, I still had approximately 90% speech recognition scores. Surgery for an AN my size, even with the sub occipital approach left virtually no chance of saving any usable hearing. While preserving hearing was not as important as killing the tumor and saving the facial nerve, the better possibility of doing so with FSR certainly made that option more attractive to me. Fortunately, my most recent audiogram shows all aspects of hearing at pre-treatment levels and speech recognition in the AN ear was at 100% for the second year in a row.
Needless to say, I couldn't be happier with how things have gone in my treatment process. certainly , for me, this is an early Christmas present :D
Now for the "bad" news. I will not have an update in 2006. Given the positive results having been maintained for 4 years, Dr. Chang has moved me to the two year schedule, so no MRI until December 2007. Yippee ;)
Here's wishing everyone a happy and safe holiday!
Awesome news Mark! Congratulations on graduating to the 2 year class, lol. Can't wait to be there myself. Have a great holiday!
As a possible patient for FSr at a future point. Your news provides me with a lot of confidence. Can you post the number of treatments you had and the GY levels of radiation at each session.
My CK treatment was 3 sessions over consecutive days at 6 GY / day for a total 18. This is the protocol that Stanford has been using since 1999 according to Dr. Chang.
What a wonderful Christmas present. I'll bet you have a simile that can't be wipped off. This is exactly the results I want. I am almost as excited about your results as I would be if it were me.
Congratulations! I am so happy to hear that your CK continues to be a success. I am hoping for the same results!
I am glad you have stuck around, your posts are always informative and helpful. They made a real difference for me while I was researching my treatment options. Thank you!
Best Wishes! And Happy Holidays!
Mark, great news!!
I hope to get the same in the upcoming years! You've been an inspiration! Thanks for all your advice and information on the site!
Congratulations Mark!! This is such an encouraging update that many of us are more hopeful than ever!
You have been so helpful in my own personal journey with AN. This calls for a mega toast at our get-together next weekend!!!
I'm thrilled to see this get bumped up... as it's a reminder for those of us in the wait mode to see if our radio-surgery has worked..... that "Virginia, there really is a Santa Claus!".
Mary, pls give Mark (my CK mentor) a BIG huggle for me... and this thread remains as inspiration for me to stay mentally strong as I wait for the radiation to work.
Happy new year!
Absolutely, Phyl! :-*
YES!!! Huggles, cheers, toasts, food, laughters, pictures are in order. What else have I forgotten? ;)
*so excited about brunch next Sunday. he he he!!!*
Hmmmmmmmm... lemme see.... hmmmmmmmm....... how about.... dang it... short term memory got me again. ;)
Have a fab time!
Absolutely, Phyl!Ã‚Â Ã‚Â :-*
YES!!!Ã‚Â Huggles, cheers, toasts, food, laughters, pictures are in order.Ã‚Â What else have I forgotten?Ã‚Â ;)
*so excited about brunch next Sunday.Ã‚Â he he he!!!*
Congratulations Mark!! Its great to hear of your success. As you know,your posts have helped me in my pretreatment decision making and my ultimate treatment at Stanford.
I appreciate you continuing to post as some of us are following in your "footsteps" and hoping to experience your success.
Wish I could join you all in San Diego! Maybe I can join a West Coast gathering in the future.