ANA Discussion Forum

Watch and Wait => For those in the 'watch and wait' status => Topic started by: Nancy Drew on July 29, 2008, 09:31:02 pm

Title: New symptoms and growth
Post by: Nancy Drew on July 29, 2008, 09:31:02 pm

I have had some minor growth this past year.  I am having some new stuff going on that hasn't been there in the past.  A couple of weeks ago I was on a walk and my ear started hurting (like an earache).  When I got home I starting having this high pitched noise in my AN ear (tinnitus, I guess).  The high pitched noise (which sometimes I call my "crickets") never stops.  Sometimes it is worse than others.  My ear aches (like a burning sensation) on and off, and my jaw hurts sometimes.  Are these just new symptoms not related to additional growth, or is it perhaps a sign that the AN is growing.  Or do ANs just "act up" sometimes.  I am going to the doctor in a week so I know I will get my answer.  In the meantime . . . . . . .curious to get some ideas or hear similar stories.

Thanks,

Nancy

Title: Re: New symptoms and growth
Post by: Jim Scott on July 29, 2008, 10:29:08 pm

Nancy:

Just a non-physician's speculation but I would guess that the new symptoms indicate growth.  As you noted, your doctor visit next week will give you the definitive answer you need.  I hope I'm wrong.  It won't be the first time.  :)

Jim

Title: Re: New symptoms and growth
Post by: Mickey on July 30, 2008, 07:58:25 am

Hi Nancy! I`ve had my tinnitus for 30 years. It has always been annoying to me some time worse than others. I was told that treatment of any kind most likely wouldn`t help it. Right now I`m doing Neuromonics which seems to make the tinnitus more manageable. Have not had much ear pain but once in a blue moon a feeling of clogness which seems to disipate. Hearing is still ok in AN ear once I get past the ringing! Good Luck, Mickey

Title: Re: New symptoms and growth
Post by: otispie on September 23, 2008, 08:36:27 pm

Hi - I was diagnosed a year ago.  I have the same symptoms as Nancy and my ear actually has started aching especially if i talk on a cell phone.  Also, feels clogged sometimes.  And, constant sound in my left ear like you are riding in a car and hear that noise.  I am due to another mri in december - might go sooner -
has anyone heard of the pennsylvania (philadelphia) center for acoustic neuromas?

Title: Re: New symptoms and growth
Post by: Nancy Drew on September 23, 2008, 08:54:19 pm

Hi otispie,

Just curious about the size of your AN and how it was diagnosed.  Are you talking about the University of Pittsburg?  They are supposed to be the pioneers with Gamma Knife.  I know you will get the info you need here to find a good treatment center.  Best wishes.

Nancy

Title: Re: New symptoms and growth
Post by: sgerrard on September 23, 2008, 09:12:23 pm

There is also a Thomas Jefferson Hospital in Philadelphia, where several on the forum have had treatment - both surgery and GK, I think.

Hi, ostispie, welcome to the forum.  ;)

Steve