ANA Discussion Forum
Treatment Options => Radiation / Radiosurgery => Topic started by: calimama on April 22, 2008, 02:13:44 pm
-
For those who have had GK, did you retain your hearing?
Also, how large was your AN and how long ago was it treated?
Thanks!
Trish
-
I had GK a little over three years ago, my hearing was good before radiation, balance issues are what brought me to find out that I had the AN. It was around 5X8 mm. My hearing started declining shortly after treatment and was completely gone in a couple of months. I was told going in that hearing preservation was good with GK but I do not believe that to be accurate from what I have read here over the past three years. However, I do think that some have retained some hearing after GK. My tumor has remained stable with only slight increase at six months after GK and none since.
-
Thanks Richey for sharing your experience.
Much appreciated!
-
Hello
I had GK in May -07 and my hearing was very good. Had my 1year test yesterday, and my hearing is still very good :D
Mia
-
Trish,
I had GK in June 2007. My hearing was not good prior to GK, but I could still locate sound. In September 2007, what was left of my hearing disappeared and I also lost my facial nerve function. 8 months later, I still have facial nerve dysfunction. Who's to say what "caused" the facial nerve problems (of course the GK doc doesn't think that it was the GK)-the journey continues...
Susan
-
My AN was originally 1.8 cm, after GK treatment (November 2003), it swelled up to 2.1cm over a 3 year period. I still have hearing in the AN ear (high and low ranges)...the center band has been gone for some time now....was gone before the GK treatment.
I go for my annual AN MRI and hearing test shortly...so I'll see how things are doing.
Please keep me in your prayers all that my AN is still hanging out (no growth...hopefully shrinkage), and the hearing is the same I HATE THESE ANNUAL MRI"S !!!!!!!!!!!!!! They stress me out :-X :'( >:( :o ???
-
GM: If you put your MRI date on the calendar, more people will remember it. The link is in my signature below. Try for a day where there is not much else going on. :D
If you are taking bets, I will put down $10 your result is "hearing the same, slight shrinkage to 1.9-2.0 cm." No fair if you are holding out and know more than I do.
Steve