ANA Discussion Forum
General Category => NF2 => Topic started by: mar50 on April 14, 2008, 11:03:35 am
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Hi -I had surgery and GK in the summer of 2006 for a left-sided AN and cyst. My 22 month old son recently has been diagnosed with hemihypertrophy (one side of the body growing faster than the other - his is mild, and mostly affects his leg/foot) and I have been told (by my son's pediatrician) that it is sometimes related to NF2. Never has it been mentioned that I have any signs of NF2, but I'm curious as to any NF2ers' experiences with hemihypertrophy.
Thanks in advance!
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I am NF2 but have never heard of this before and also speaking as a retired nurse. I iwll be interested in see if anyone else has. I hope you are able to get some answers.
Cheryl R