ANA Discussion Forum

General Category => NF2 => Topic started by: mar50 on April 14, 2008, 11:03:35 am

Title: hemihypertrophy in child(ren)?
Post by: mar50 on April 14, 2008, 11:03:35 am
Hi -I had surgery and GK in the summer of 2006 for a left-sided AN and cyst.   My 22 month old son recently  has been diagnosed with hemihypertrophy (one side of the body growing faster than the other - his is mild, and mostly affects his leg/foot) and I have been told (by my son's pediatrician) that it is sometimes related to NF2.  Never has it been mentioned that I have any signs of NF2, but I'm curious as to any NF2ers' experiences with hemihypertrophy.

Thanks in advance!   

 
Title: Re: hemihypertrophy in child(ren)?
Post by: Cheryl R on April 14, 2008, 12:19:44 pm
I am NF2 but have never heard of this before and also speaking as a retired nurse.          I iwll be interested in see if anyone else has.         I hope you are able to get some answers.
                                             Cheryl R