ANA Discussion Forum
Post-Treatment => Post-Treatment => Topic started by: marymomof3 on February 29, 2008, 07:48:16 pm
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Hi. I'm scheduled for surgery with Drs Roland and Golfinos and NYU on March 19th. Since March 1st is tomorrow, I'm starting to get a little apprehensive. Can anyone offer stories about their experience with these surgeons at NYU?
Thanks!
Mary
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I am watch and wait. These are the drs. I am using right now. Fortunately I am doing well and don`t have any real decisions to make as of now. I do hear that they are tops in NYC. They do have alot of experience and believe AN`s are their speciality. Please stay in touch! Best to you, Mickey
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How are you doing Mary? You'll be a postie soon! We're pulling for you!
Yvette
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I think Eve had her first surgery there you may want to PM jersey girl...and see what she says....good luck...
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Mary -
just wanted to wish you luck on the 19th, before I forget.
I didn't have my surgery in NYC - had it near Chicago - but I've heard your docs are great. Hope you have a speedy, uneventful recovery.
Can't wait to welcome you to the land of posties. As Yvette said, we're pulling for you.
Best of luck,
Jan
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Mary,
Got my good thoughts, prayers and pirate sox all ready for the 19th. I'm sure everything will go fine and you will be a postie sooner than you know.
Hugs,
Brenda
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Thank you all for your good wishes. I'm starting to freak out! I spent the enitre day with my family for Palm Sunday and felt like everyone was looking at me with that "pity look" on their faces. Surgery in a couple of days and I keep thinking - what if the MRI was someone else's and they messed up? and to top it off, my Drs. changes from Retrosigmoid to Middle Fossa last week and that has me crazed too!! I was mentally prepared for an insicion behind the ear, but now to have the incision above the ear!! I can't hide that as well. And why did they now decide to proceed with Middle Fossa? All these crazy things keep going around in my head. I worry that there is an increased chance of facial paralysis with middle fossa. The Drs tell me not to worry - but that's easy for them to say....
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I feel your anxiety Marymomof3. My surgery is Thursday. I still have good hearing and am doing a translab because of the location of my tumor. I've been secretly hoping (I guess it's not a secret now) that I'll wake up with no hearing before surgery to justify having a translab done. I've pulled out the MRIs to review them and make sure they are mine, but the vertigo assures me something not normal is in my head. I think we could drive ourselves crazy trying to second guess.
Good luck. Take a deep breath and know we'll be thinking about you.
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And good luck to you. I guess we just have to take a deep breathe and a leap of faith. Where are you having the surgery done?
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University of Cincinnati. Ohio Also is having her surgery on Friday at the same place. I figured I had nothing planned for the first day of spring, so I might as well have brain surgery. ;D
I haven't had a good night's sleep in over a week. I've questioned everything from the approach to wondering if I really have a tumor. I've decided yes, and the tumor has grown, but it's almost that same kick in the gut feeling as when I was first diagnosed. I think knowing the surgery date is near just makes this whole thing and the seriousness of it all real. It has finally sunk in that I have a brain tumor and am having surgery to remove it. Denial was pretty easy until now.
Hang in there.
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marymomof3, OHIO and OHIO ALSO
I will be thinking of you all this week I am following suit with surgery in two weeks! I too am starting to freak out and trying to read everything about everything related to this whole experience! hopefully someone can post a quick note to let us know how things are going| PM if you get a chance best of luck for a quick and easy recovery>
HOPE
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Okay, everyone having surgery in the next few days or weeks, take a deep breath, exhale, relax, and calm down.
Try not to second guess yourselves, it will only add to your stress. Your decisions have been made, now it's your job to let your doctors do their jobs.
I know it's easy for me to say - I'm not currently in your shoes - but 9 months ago I was and I am confident that you will be okay.
Our thoughts and prayers are with you; we are here to support you.
Best wishes to each of you,
Jan
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Thanks Jan - I needed to hear that.
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You're welcome ;D
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Wishing you all well...
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Hi Mary-
I am sorry I wasn't able to reach you by phone before the Big Day this week - but I hope that you will be out of NICU today and well enough to go home Saturday or Sunday.
You're in my thoughts and prayers. I know you have great docs - they're doing my surgery in April!
hugs and mega-good-karma,
Deb
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Mary -
by my calculations, you are now an official postie. APPLAUSE !!!
Can't wait to hear from you; hoping everything went well.
Keeping you in my prayers,
Jan
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Mary-
I look forward to receiving an email about your surgery and recovery.
Joe-
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I hope that you are on your way home and doing well. Kisses to your forehead. :-* :-* 16
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Hi Mary,
Looking very forward this week to hearing about your successful surgery and your quick recovery. Please remember that as you deal with some of the recovery issues, you have a great source of information here and a very caring support group. It has been an incredible group for me.
Best wishes.
David
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Hi everyone!!!! I'm back. Feeling better this morning. Man was it a rough week!!! First of all.... I can not begin to thank everyone here who have supported me through this. It made such a tremendous difference to me. I keep reminding myself that I know I can get through this.
Of course I don't feel my normal self - but the doctors removed the tumor, preserved hearing and messed around with my facial nerve - but tell me it's temporary. So I take a deep breathe as I write this and sooo grateful that I've made it to the other side with what I consider a normal life. I am anxious though for my first MRI to follow up and get proof that they haven't lied to me. ha ha ha!! Never thought I'd look forward to getting an MRI before.
So, I'm here - and eternally grateful to all of you - my new friends.
Mary :)
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Good to see you in the land of the posties...
speedy continued recovery
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Mary,
Wish you a smoth and fast recovery! It does get better so hang in there!
Eve
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Hi Mary-
I am thrilled that you are now officially "on the other side" and can't wait to join you as a postie. Only one week out of surgery and you're already at the computer - you're my hero!!
I decided to place myself in the hands of Drs Golfinos and Roland, too, so am especially glad to hear that they took good care of you.
You continue to be in my thoughts and prayers - keep us/me posted on your recovery.
Debbi
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Mary -
congratulations on your postie status! I'm so glad things turned out well for you - and hearing preserved, too!
Best wishes for your continued recovery,
Jan
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Mary~
Glad things went well and you are doing good!! Continued good thoughts & prayers for a speedy recovery! Remember that some days are better than others and it is OK to have a not so good day thrown in there!
K
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mary,
congrats on postie-hood!!!!!! Onward and upward to continued wellness!!!!!!!!
Phyl
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Yay for Mary! You made it!! What great news!
I'm sure it was a rough week for you - but I hope they only get better from here on out!
Lori
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Mary - so GLAD to see you! I am glad you are doing well and that they were able to preserve your hearing :) Here is too a continued speedy recovery :) When you can .... give us details of your surgery and hospital stay - ((((HUGS)))).
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I am so glad to hear you are doing well. That is just wonderful news! Get lots of rest and I hope you have your own personal pillow fluffer. Kisses to your forehead. :-* 16
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Mary,
What Great News!!! ;D I am so glad you have reached the other side. I know I have this to face in the future and you give me great hope! You must be doing very well to be at the computer in a weeks time. Hooray for You!! Be sure and don't overdo though, get lots of rest and feel better soon!
Looking forward to hearing more from you as you continue to heal :)
Glenda
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Mary
Great news and congratulations. I know it's been a tough week. Time to take it easy. Have a great and speedy recovery.
Best wishes
David