ANA Discussion Forum

General Category => AN Issues => Topic started by: satman on December 07, 2007, 09:57:49 am

Title: Sick and Tired !
Post by: satman on December 07, 2007, 09:57:49 am
I need words of encouragement,seriously.
It seems to be one of those days.
I am sick and tired of looking this way , I'm tired of pocketing food ,tired of food falling out of my mouth ,tired of walking funny ,tired of talking funny, tired of putting all this s/crap in my eye,tired of driving with this crap in my eye ,and tired of many other things that one has to deal with after A N,
Im just fed up and sick and tired ! The surgery is without a doubt the easiest part. sorry everybody,
did'nt mean to rant,thought it might make me feel better , it did'nt.
Title: Re: Sick and Tired !
Post by: Joef on December 07, 2007, 10:02:22 am
I agree .. the surgery and hospital stay was a cake walk .. I got to sleep all day ... the following months of tring to get back into the swing of things was the hard part..  >:(
Title: Re: Sick and Tired !
Post by: ppearl214 on December 07, 2007, 10:12:37 am
*runs in, gives Satman BIGGGGGGGGGGGGGGG huggle.... *   :-*

Hang in there...... regardless of what I say, it may not matter, but know thoughts and wishes for continued wellness come from me to you.

Phyl
Title: Re: Sick and Tired !
Post by: pattibobatti on December 07, 2007, 10:56:21 am
Hi John,

I understand completely how you feel.  It is very easy to get sick and tired of all this.  I just hope something happens in your day that makes you forget about the things you are tired of. 

You may be having a bad day, but I want you to know I think of you often...  I'm hoping for more good days that you can enjoy soon. 

You hang in there, buddy
Patti
Title: Re: Sick and Tired !
Post by: 1wareagle on December 07, 2007, 11:32:06 am
John,

     I know how you are feeling! Been there and still doing that! On one of my bad days my daily devotion helped me out so much that I have it taped on my office desk:


Perhaps you get worried and full of fear when important things don't go your way. Have you ever thought that God may be allowing those events to teach you to stay peaceful and calm in the mist of the storm? He may be toughen you up, to help you develop some backbone and stability in your life. We have to be willing to change our attitudes and deal with the issues God bring us.

Consider it pure joy, my brothers, whenever you face trials of many kinds, because you know that the test of your faith developes perserverance. Perserverance must finish its work so that you may be mature and complete, not lacking anything. James 1: 2-4

Good Luck,
Ellis
Title: Re: Sick and Tired !
Post by: 4cm in Pacific Northwest on December 07, 2007, 11:35:09 am
Satman,

Oh my super hero needs a BIG ole Texas size HUG! :)

You have every right to feel grouchy… you have been through the tumor mill. ( :D That was a pun.  ::)) Remember that you have had one of THE biggest tumors removed and you had more time in surgery than many of  us … Do not start reading recovery stories and compare them to your own as hardly any of us had half as big as your super sized 8+cm AN tumor.

Facial issues
Perhaps you need to go to facial therapy and have them put  “the probeâ€? on your face to see if there is any firing or activity… if there is then this will take more patience on your part for things to heal. I was told by a specialist…

http://www.ohsu.edu/ent/ear/nguyenhuynh.html 
(being a Harvard and Stanford grad I take him to be well educated on the subject)

… that “facial palsy can take anywhere from 3 months to 3 years to resolveâ€? (I choked when he said “yearsâ€?  :o ).

 It was 3 months and 5 days (not that I am counting  ::) or anything) until I had 1 mm of slight movement… as my surgeons left residual nerve on my tumor (i.e. they did not hardly touch it) as we agreed pre-surgery.  I know there is a small possibility I may have to return for more torture and a run through the ‘tumor mill’    :D again “ifâ€? there is re-growth.

Remember that you had the biggest whopper of us all – and your facial nerve was stretched….big  BIG time! If there is no nerve response to the probe then you need to consult with a plastic surgeon. Even “ifâ€? the facial nerve was damaged beyond natural  healing  (& time) or repair (the nerve graph/jump- BTW will have Bell’s palsy resolving at a slower pace than those who did not need a graft)… There ARE treatments that can be done to reanimate the face.

Read up on NancyAnn (our true facial hero on the forum here)
http://anausa.org/forum/index.php?topic=5544.0

http://anausa.org/forum/index.php?topic=5414.msg48773#msg48773

She had a tendon transfer just very recently
http://www.hopkinsfacialplastics.com/gallery_facial_reanimation.php

Do you have a copy of the ANA book on facial issues? If not I highly recommend it…

https://secure.baxinternet.com/~anausa/for_sale.html


The Facial Nerve and Acoustic Neuroma: Possible Damage and Rehabilitation (AN4)
Tips and information for patients who have facial weakness or paralysis after treatment for acoustic neuroma. Includes an explanation of the facial grading system and some exercises that can be performed at home to improve facial tone.

Eye issues

You really need to see an ophthalmologist.
I understand that a tube can be placed it help with eye tearing. After quickly figuring out that the “Eâ€? in ENT does not stand for “eyeâ€? I went straight to my ophthalmologist who quickly referred me to a Oculofacial Plastic Surgeon. I now see him every 2 months. He did not advocate surgery for me as much a “patienceâ€?(which some days wears thin as I fiddle with the double-side-sticky –taped-on eye weight) … and "if" there is no improvement then we may do surgery. I am not near as far along in the time frame of recovery as you are …SO I can imagine you would be getting REALLY frustrated by now. It is totally OK for you to express this  

Balance Issues
Night before last I had a rotten and restless night of sleep- as I was up with one sick child (flu season and all)… and yesterday my balance was terrible. Last night I took benadryl and an 8 hour dose of Tylenol …and I slept thought he night! My balance is much better today. I have noticed that when I am fatigued my balance and motor coordination is not as good as when I am well rested. I also notice that if I do not get my 20 minutes of power walking in a day  - my balance, spirits and energy is not as good. I know you get up at an ungodly (and un-humanly) hour to go to work. You also have a pretty high stress (adrenaline rushing) occupation… You have to ask yourself if this is magnifying your symptoms and perhaps slowing down your recovery.

Are you getting in 20 minutes of heart pumping and balancing exercise in a day?

Sleep deprivation?
I really want you   ;) ...to read a chapter a night of Sleep Thieves by Stanley Coren. He is funny enough that his writing just may lift your spirits. He also has an  interesting chapter on people who work the “graveyard shiftâ€? (i.e. working before 5 am) which ranges from factory workers to nursing staff… night shift ER staff to the local baker.

The blues

RE
  I’m just fed up and sick and tired!

Satman Super 8 -It is ok to feel this way … and I would be worried about you if you did not express this.

You are always so fun and spunky in your posts that I would not observe you to be “clinically depressed� … but I am not around you daily to be accurate on this.

Please read this

http://en.wikipedia.org/wiki/Clinical_depression

"If" you feel that you are heading that direction please talk to your PCP about it. If you are just having one really bad AN day – well here is a big Ole ANA family member HUG.

Think how far you have come (walker, in bed, not able to drive, unable to work at all, endurance tests with your “ physical terrorist  Ã¢â‚¬?) and where you are now…

Keep moving forward Super “8� … and know it is ok to have “fed up and sick and tired!� days- you DO have a human side. You do not have to take a dose of kryptonite and wear a super hero cape ALL the time … and you are still much appreciated even if you have days when you are not feeling “faster than a news truck or higher than a traffic helicopter�.

Cheers (and more hugs),

4

Title: Re: Sick and Tired !
Post by: hendi51 on December 07, 2007, 12:32:53 pm
Lots of good thoughts being sent your way satman. Hang in there.
Title: Re: Sick and Tired !
Post by: nancyann on December 07, 2007, 12:34:27 pm
Hi John:  I hear you & understand the frustration of the day in & day out dealing with the paralysis.   We didn't ask for this but it's happened.  Last night my best friend called; we use to take active vacations 3-4 times a year.  She asked about going on one - even just a hiking one - I told her I can't climb like I use too....
I miss my old life too, but I believe it IS going to get better than it is right now,  it does take alot of time for the body to heal + the added annoyance with eye issues, fullness in the head, having to take the time to do things to our face that we never had to deal with....
Your nerve graft wasn't that long ago - you still have many months before you'll see any improvement, so dealing with this craziness it is.    I believe that things will be better in 2 years - don't know why but 2009 is looking good to me.   I'm looking at 2008 as still a healing year for me.
In the meantime I'm allowing the healing to go on, giving myself another year for it.  I will take vacations with my friend to places we've never been, but she realizes we have to tone them down.   For me, being out in nature is what helps.   In the meantime I'm taking care of things at home - making my 'nest' a nicer place to be, taking control of my past 'pack - ratting' behaviors, playing my piano again.
I understand the bad days John, we want our old selves back;   right now I'm growing to love & taking better care of the new me.   Love yourself John, you deserve to give yourself time to heal.

Always good thoughts my friend,  Nancy
Title: Re: Sick and Tired !
Post by: Samantha n Adrian on December 07, 2007, 12:49:39 pm
Hi Satman….Adrian here.  I’m sorry you’re having “a dayâ€?.  I completely understand your frustrations.  Believe me when I say that my AN was a definite “signâ€? from above that I need to stop being so negative in many areas of my life.  Naturally….I’m not the happiest of people.  It comes with the characteristics of being very Anal Retentive, Obsessive Compulsive, a Perfectionist, and Attention Deficient.  My more beautiful half, Sam, naturally…..IS very happy, positive, and only sees the good in just about everything.  So….that being said, I work very hard, not that I’m always very successful, but I work on being happy and positive.

Every time I’m asked about my surgery, or just offer the info myself; people always say, “I’m sorry to hear thatâ€?.  I ALWAYS reply with, “don’t be….I’m notâ€?!  I look at my AN as a very good thing.  I always tell people I hate to ride the coat-tails of “real brain surgeryâ€? because I had options with my surgery.  Others with brain tumors/cancer don’t have options.  When I first saw my surgeons about my AN, they gave me all of the worst case scenarios.  They were scary to say the least.  I’ll take the SSD, facial palsy, eye GOOP, occasional balance issues, and occasional swallowing issues in trade for:
•   Being able to feed myself
•   Being able to wipe my own butt
•   Being able to make love to my girl!
•   Being ALIVE
•   Being able to have my mother drive me crazy (I love her, but she does)
•   Being able to drive to work (though a Chauffeur would be nice)
•   Being able to hear!!!!!!!!!  (even if its only through 1 ear!)

I know there are many more things I’m grateful for, but you get the idea.  Satman….I know this all sucks and you’ve definitely had one of the worst AN experiences.  You are allowed to have bad days, but try to look at the good things about your AN.  Make a list if you have to for all that you are grateful for.  I hope reading this lifts you sprits.


Sincerely,
Adrian
Title: Re: Sick and Tired !
Post by: waypoint on December 07, 2007, 01:23:10 pm
John,
We all know how you feel, and are going through the same things while maybe at diferent stages and levels. Hang in there, bubby. I'll prayer for you and your recovery and will pray for your wife also. I know that while I suffer from the physical affects of AN, I am sure the stress on my wife has been immense.  Everything will get better with time and patience. Things my not be great right now, but be happy that you can as Adrian put is "wipe your own butt". There are others out there that are much much worse off.
Good Luck and cheer up. If you want to talk, I'm in Texas also.
Title: Re: Sick and Tired !
Post by: Samantha n Adrian on December 07, 2007, 01:27:23 pm
I just wanted to be real!  :D

Adrian
Title: Re: Sick and Tired !
Post by: mindyandy on December 07, 2007, 01:44:49 pm
Satman
I'm sorry your having a bad day. I was having one of those days about 2 weeks ago. I do understand how frustrating this AN thing is. I have days where I want to say something and things come out all wrong????? It makes me look like I have a speech impediment. Hang in there....we all care for you and hope that your spirits lift. HUGS!!!!!!!!!!!!BIG HUGS!!!!!!!!!!!!
Mindy
Title: Re: Sick and Tired !
Post by: candtlaw on December 07, 2007, 01:50:32 pm
Satman............ hugs. Just prayers and hugs....... Hang in there
Title: Re: Sick and Tired !
Post by: Jim Scott on December 07, 2007, 02:09:41 pm
Hi, John:

Like everyone else, I'm sorry you're having a bad day but this is the perfect place to rant because we understand  Oh, some more than others, I suppose, but no matter how good our surgical/radiation outcomes, nobody 'escapes' with absolutely no after-effects from an acoustic neuroma tumor, regardless of their treatment, hospital, doctors or attitude.  Healing takes too long and the ramifications of facial paralysis, eye malfunctions and balance deficiencies that you mention are real and frustrating, we know. 

I guess it's all in perspective.  While being tested prior to my AN surgery, a 'mass' was discovered (via CT scan) on my liver.  My surgery, scheduled for a few days later, was quickly canceled and I was referred to an oncologist.  He immediately scheduled a biopsy of my liver.  The word 'cancer' was never mentioned but we were all thinking the same thing.  I slowly began to face the possibility that I might not make it to Christmas.  It was scary and depressing, as you can imagine.  The next day, the biopsy was performed.  The next 8 hours were excruciating but we finally received the anxiously-awaited phone call from the oncologist who was elated to inform me that the 'mass' turned out to be a Hemangioma, a type of benign tumor made up of abnormal blood vessels and not a problem.  It required no treatment and my AN surgery was re-scheduled.  Frankly, having gone through this cancer scare, my benign AN tumor now seemed a lot less threatening.   Fortunately, my surgery was successful and I suffered only a few, very minor complications.  I am eternally grateful to God for that.

However, had I suffered the kind of post-surgical complications you're dealing with, I would very likely be just as frustrated.  I'm not normally a patient man and after a lifetime of relatively good health, having my body 'fail' me would be both strange and disquieting.  I dealt with a dry eye and learning to walk 'right' again post-surgery and I resented having to do so, but I knew it had to be done.  My avatar: 'Time Heals' is accurate, especially regarding acoustic neuroma surgery recovery, but that doesn't mean that we have to like the time we're adversely affected by the eye, balance and other problems we have to endure while recovering. I sure didn't.

That said, John, this will pass, as all things do, both good and bad.  I encourage you to try, as best you can, to see the positive side of this; you didn't have cancer and you will recover.  Try to do things you like (as best you can) and don't dwell on the negative, if possible.  Your total recovery will take what time it takes.  Being frustrated and angry while recovering won't make it go any faster.   Still, you are not without reason to be upset, so vent and go on to what makes you happy.  We do understand your aggravation and are collectively praying, wishing and hoping for your rapid recovery and peace of mind.

Jim   
Title: Re: Sick and Tired !
Post by: Pembo on December 07, 2007, 05:58:10 pm
John, I had a lot of bad days and people saying I could be worse off sure didn't help. Yes I could be but damn it what I got sucks. Vent away, get mad, do what you need to do....I agree the surgery was the easy part, I was asleep. Living with the after effects sucks. 


Title: Re: Sick and Tired !
Post by: debora on December 07, 2007, 06:12:54 pm
John,

Hang in there, you will get better.  Cuddle with your wife and have a glass of wine and remember it's ok to feel ****ty and mad we understand and have been there also.   It is not an easy load but feel proud that you can make it through this, look at how strong you have had to become because of this.  I feel that there are a lot of people who couldn't handle this but WE CAN and are.   I can't explain how your post affected me but I care very much, you are amazing and so valuable to us don't ever forget that.
With all sincerity (SP)  Deb
Title: Re: Sick and Tired !
Post by: satman on December 08, 2007, 08:20:00 am
Thanks everybody,I am better today,ok so I did a little self medicating to get my mind off of it.
In all seriousness, I knew I could turn to you guys for a lift,it worked.
all of your replies mean so much to me,only A N er's would understand.
thanks again,you people mean the world to me, and we have never met, funny how that works.
                                                                                       THANKS....
Title: Re: Sick and Tired !
Post by: Dealy on December 08, 2007, 09:22:11 am
John- Hope you are getting some comfort and Understanding from this site. Having an AN that size you had is amazing. I consider you a real WINNER. There has been days I say to myself-WHY ME of all people. Being an NF2 is no fun either. LIke you-their are days when I just get tired of it all-then I realize how lucky I really am. That sounds strange. I was getting to the point where I thought only of my needs and what I want and not other people. Well sickness has a way of telling you their are different priorites in life. I have a total different perspective on things now-so yes in a way I am lucky. People who have their health-wealth-etc. never seem happy with anything and find fault with everything. Heck-I am so elated now if I can have a decent enough day to function and say I made iT another day. I surely do not take the small things for granted anymore. Yes-even too be able to eat and sleep. I still have swallowing problems and if I do not watch tend to drool from my right side. The inside of my mouth all the way down too my throat is numb-including my tongue- I could go on and on- as for me I put it in the hands of GOD and let HIM decide what is best-what else can you do. STAY POSITIVE MY TEXAS FRIEND- THANKS-RON.
Title: Re: Sick and Tired !
Post by: 4cm in Pacific Northwest on December 08, 2007, 10:07:21 am
Ron,

I have read some of your posts. Wow you are quite the super-hero too!  ;) My hat is off to those on this forum that are NF2'ers... You folks are an model of extra strength and endurance to 'keep moving forward'.

4

Title: Re: Sick and Tired !
Post by: jerseygirl on December 08, 2007, 11:13:25 am
John,

I had a bad day yesterday also: I felt sorry for myself, my balance was off and I made mistakes in speech! It must be the weather! This is after Wednesday when everything was so much better and I congatulated myself on the progress made. Recovery goes in in zig-zag fashion and in myriad of small steps  and when it is prolonged, we get so tired of it. We all want to be back to normal ASAP! I am glad you are feeling better today. Hugs!

             Eve 
Title: Re: Sick and Tired !
Post by: Dealy on December 08, 2007, 05:47:59 pm
Thanks 4CM for the compliment but I hardly consider myself a superhero. My wife and faith is what sustains me now-and this group. My heart bleeds for so many people on this group. We all have had our trials and tribulations. Some worse-some better than other's. I stll find myself looking back even a year ago when my hearing was good enough without a hearing aid-and sigh and think what I am missing. My wife has too tell me what certain sounds are because I cannot make them out. This forum has helped me more than anything-simply because-people here understand. Have a good evening all-and God Bless-and Please stop to smell the roses. Thanks-Ron
Title: Re: Sick and Tired !
Post by: Charlotte Lady on December 08, 2007, 08:05:13 pm
Was yesterday just Suck Friday?  I had a bad day too.   Not nearly as bad as yours, Satman.  I'm sending you good thoughts the next week will be swell.  As for the paralysis and stuff, my healing showed up when I stopped looking for it.  Sort of the watched pot never boiling.   

I used to play with my drooping mouth.  I'd take a sip of water and squirt it out of the side in a little bitty stream.   It was fun.  I swear.  I almost miss it. 

When I was really bored, I'd hide in the bathroom and try to make my good side look like my bad side.  I could do the mouth; never got the eye correct.   

Take care of yourself

Donna
Title: Re: Sick and Tired !
Post by: Dfcman on December 09, 2007, 01:25:11 pm
John,

I'm sorry.  You have my condolences.  I'm glad to see you're doing better now.  We all have our bad days.  Post-traumatic stress I think.  I hope you are going thru alot of therapy, facial, occupational and especially physical. It really helps.  Time is the great healer...thats all I can tell ya.

Chris
Title: Re: Sick and Tired !
Post by: Captain Deb on December 10, 2007, 07:34:12 am
This thread has really touched me, Satman, as you are a true AN hero, here.

After struggling for a number of years with a number of issues I finally have a near perfect life. I have educated myself as an adult (BFA at 45 yrs old, summa cum laude) married a great fella, live in a beautiful home overlooking the river, have 2 wonderful scallywag step-grandkids to play pirates with (every birthday is a pirate party,) 750 square feet of studio space, and have a gallery that sells my artwork practically before the paint is dry for big bucks.

To look at me you would never know I had an AN. I'm a good-looking 56 year old woman. My hubby thinks I'm pretty hot actually. I have a symetrical smile and both eyes blink at the same time (thank you Drs Friedman and Hits.)

I get up, have coffee, eat a piece of homemade bread and jam, change into my painting duds, go upstairs to my 750 sq foot studio, squeeze out the paint, pour the medium into the cup, paint a few strokes, and then the Headache Monster begins chewing on my neck and works his way up the back up my head. Then he takes his red hot poker out of his bag of tricks and shoves it into the back of my head! Poof! My day is over and it's 11:00. Paint wasted. Day wasted.  This happens about 1/2 the time. Sometimes I get a few more hours before he comes, sometimes I get a whole day. Lately, with hundreds of $ of meds every month, I have been getting a few more hours a day. When he gets really nasty I give myself a shot of Imitrex and poke him right back and he calms down.

So what we got here, you and me Satman, is a case of the WHY-MES.  Every once in a while the Headache Monster brings his friend, the why-mes along with him to stir up double trouble and then we got ourselves a huge mess:
(http://i235.photobucket.com/albums/ee60/Captdeb_photos/troll_minotaur_high_five_knight_lg_.gif)
(Being a visual artist, a visual is needed here)

 I try to fight them back with a dose of acceptance. This is the hand I've been dealt and I need to play it to the best of my ability, try to understand the message in all this suffering, if there is one, and learn to love the ones I'm with and be grateful for what I have.

This forum helps alot. Cave people sat around the fire swapping stories for healing and people have been doing it ever since. Thank the ANA for giving us this cyber firepit to keep us warm and keep out the dark!

Hang in there Satman. Surround yourself with people in the same boat and you will stay afloat!

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Sick and Tired and feed up maybe, I know how you feel!
Post by: Rc Moser on December 10, 2007, 11:19:58 am
I have accepted life will never be the same.  Let's face it we an'ers are going to have bad days, several a month and weekly, some even have it daily. Yes, it sucks and you ask yourself why????? >:(
But, I see people everyday that's got it worse than me. Then, I think lucky me I could be in there shoes. I know this does help and the doctors didn't tell you all the dirty little problems you may encounter after, but I still see some improvements ( little ones) and I think I'm still getting better after 4 years 3 months. I have read that if may take up to 10 years to fully recover.  I guess I can give it that much time cause it could of been 10 years I never had.  Your not alone most of us are going through the exact same thing.   Hang in,  Wonderful thiings can still happen!!!!!!! :o ;D
Title: Re: Sick and Tired !
Post by: Soundy on December 10, 2007, 02:17:58 pm
Glad you are feeling a bit better... Friday something must have been going around...

I told a friend I was sick and tired of being sick and tired... Got up in a super sucky mood
Saturday but had to put on game face and join the Girl Scouts in the county and go caroling
at the local nursing homes and around tha square ... by the time we were done I was overtired ,
wobbly and could think of nothing but getting home to my bed and hiding ... but felt better
in that part of me that counts... saw so many much worse of than I am ... I accept I am no longer
the exact same person I was before surgery ... I have to re build my life and activities to make
them match the Brenda of today

this is a great thread... we all have these days and it makes me feel less alone in this post surgery battle
against all the little things that add up and try to squash me ..
Title: Re: Sick and Tired !
Post by: yardtick on December 10, 2007, 07:28:05 pm
I don't think I can add any more to what has all ready been said.  I've been trying to get my husband to realize this is my life now and things are going to change again when I have the nerve graft. 

Friday evening I was shopping with my cousin in a lady's shop and the sales woman said to me dear you look so tired.  Teresa looked at me and said Anne Marie look in the mirror.  My left side of my face was sagging.  I see the specialist Jan 10th.  Go figure, just my luck, it is time to talk surgery.  I've been having more bad than good days.

None of us asked for this but we have to make the best of it.  My 17 yr old son's friend has been fighting cancer for 2 yrs now.  Get this it is her 2nd battle.  Ist when she was 15 mths old and than it came back with a vengeance when she was 15 yrs old.  Last week Anthony told me her bad cannot take any more chemo.  Yesterday she was rushed into Sick Kids @ Mac where my husband works.  He happened to be on the ward.  It doesn't look good.  Her parents are devastated, they have no other children. 

I'm not making lite of our illness, I too have some extremely offal days.  My work review sucked because of this but I know there are worse things out there.  I hope I can hold it all together for my son if something should happen to his friend.  I'm emotional on a good day.

Anne Marie

P.S.
Satman you are a HERO!!!!  Your journey is incredible and it has given me so much hope.  Thank you for sharing.

Capt Deb you are amazing, your wit and humour really helps to keep me going.  Now what about that art?  I'd love to see it!
Title: Re: Sick and Tired !
Post by: nancyann on December 11, 2007, 07:47:37 am
Anne Marie:  You must have been in shock when you saw your face sagging !      I wonder if you should wait 4 more weeks without calling your doc?
Thinking of you,   Nancy
Title: Re: Sick and Tired !
Post by: Captain Deb on December 11, 2007, 10:02:21 am
Anne Marie,
Marking Jan 10th on me calendar as a pirate sox on day! I'll message ye me gallery's website.

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Sick and Tired !
Post by: pattibobatti on December 11, 2007, 10:46:05 am
Hi Everyone,

I don't posst nearly as much as I used to, but reading this thread makes me feel very emotional.  I had all the paralysis problems (still have some)  and I just feel so bad when I read about you all.  It can be a hard road back.  It has been 2 years now for me and although I don't look exactly like I used to, I look pretty good.  I will continue to have a few days here and there when I sit down and have a good cry, but also have most days that I like the inside of me even better than before I had the AN.  I feel like a understand my life better and there is a calmness deep inside that I did not know about before.

I hope you all can feel mostly good.....  You are all heros.

Patti
Title: Re: Sick and Tired !
Post by: Captain Deb on December 11, 2007, 11:22:13 am
And here's a video taken of her in full wenchwear on her last cruise!

(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate_girl_walking_lg_wht.gif)

Ain't she a hottie?

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Sick and Tired !
Post by: Samantha n Adrian on December 11, 2007, 03:30:24 pm
WENCH......WENCH......Brrrrrrrrrrring me my Ale!!! :-\  (See...that's my crooked smile)
Title: Re: Sick and Tired !
Post by: Patti on December 12, 2007, 08:05:31 am
 i was at a party the other night.  i crouched down (1st mistake!) to pet a puppy and she jumped and caused me to fall down.  i reached for the coffee table and knocked down a pink cosmopolitan on a beige carpet!  this is my life now and i only surround myself with people who love me and understand my many dilemnas (except my teenage daughters who get impatient with the hearing issues).  bad days come without a warning and the really stink!!!  my heart goes out to anyone when they experience them  patti
Title: Re: Sick and Tired !
Post by: mindyandy on December 12, 2007, 01:59:57 pm
Captin Deb....YOUR PICS ARE GREAT!!!!!!!! ;D ;D They really help make my day!
Title: Re: Sick and Tired !
Post by: yardtick on December 12, 2007, 06:05:58 pm
Capt Deb,

I agree, you are really talented.  You would love where I live, underneath the Niagara Escarpment.  This fall was so gorgeous.  You will have to visit and paint me a picture!!   

Anne Marie
Title: Re: Sick and Tired !
Post by: Captain Deb on December 14, 2007, 12:48:28 pm
I find that when the sick and tired's started overwhelming this wench, the best medicine is a little humor, particularly a little visual humor--it helps lift my spirits.  I hope it lifts yours as well! We are all in the same boat, after all, adrift on this sea of AN swells and troughs, trying to stay afloat. Sail on, my brothers and sisters!

(http://i235.photobucket.com/albums/ee60/Captdeb_photos/woman_sailor_row_boat_lg_clr.gif)

Capt Deb(http://i235.photobucket.com/albums/ee60/Captdeb_photos/pirate2.gif)
Title: Re: Sick and Tired !
Post by: HeadCase2 on December 14, 2007, 01:07:06 pm
 Humor is definitely the best medicine.


 Hey can I retire yet?
Rob

(http://i93.photobucket.com/albums/l46/HeadCase2/Comedy.gif)
Title: Re: Sick and Tired !
Post by: danijake on December 14, 2007, 02:42:14 pm
That's cute, Rob! That's how I feel...like I'm reaching for my old life and someone's dangling it just out of my reach. I have gotten a lot of help from ya'll. Thank you soooooo much! I feel like I've known ya forever, but only for a few days! Thank you again. :-*
Title: Re: Sick and Tired !
Post by: Soundy on December 16, 2007, 11:02:00 pm
Humor and staying to busy to think work for me ... 12 hour naps after getting too tired
also do the job...
Title: Re: Sick and Tired !
Post by: er on December 19, 2007, 06:52:54 pm
Hello John,

Sorry about your bad day. It does get better.
I had one of my days yesterday. My nerves decided to start doing some healing yesterday. I thought I had the food in the mouth issue taken care of that yesterday I started getting little twictches in my head you know how they feel , it is find but not while you are at a restraunt with a friend and the food keeps sliding out of the left side of the mouth while your eating and it ends up on my blouse. After my lunch at 2 I had a doctors appointment for a physical and my speech starts slowing downing and my brain process.
It was back in a few minutes but it is still embarasing. My friend I had lunch with just kept staring at me funny to see what I was going to do next.
Title: Re: Sick and Tired !
Post by: marg on December 27, 2007, 04:15:15 pm
Cap. Deb I would really like to check out your gallery's  website... if you would e-mail it to me.

 I think about you every time I get a migraine ... I don't get them real often but when I do I think... 'if the Cap. can deal with the brainwreck ones she gets  so often - I can deal with my less often ones ' (believe it or not ... it helps during the  crazy light and pounding :D ).   

Margaret