ANA Discussion Forum
General Category => Inquiries => Topic started by: dianneh1 on September 25, 2005, 09:07:59 pm
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Is any one else not sleeping at night? Have not slept more than 3 to 4 hours at a time since my surgery on september 14, 2005. just wondering
thanks
Dianne
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Dianne,
I can relate. I'm not sleeping either but I don't know why. I had surgery 8-2-05.
Lynn
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The steroids make it difficult to sleep, and they take a while to get our of your system, so the more recent your surgery, the greater the likelihood that they may be a factor. My husband had a horrible time sleeping the first few weeks after his surgery, although that has gotten better. Also, I recall reading something somewhere - and I can't remember where any longer - about the role of the brain or the brainstem in sleep patterns and that brain surgery may affect that. Maybe someone else here has more details on that. If it's really bothering you, you might want to ask your doctor if he/she can give you something to help you sleep. At my request, my doctor prescribed something for me to help me sleep during the whole trauma and emotional ordeal of my husband's surgery and it was a total lifesaver!!! Jennifer
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Dianne: I too am having trouble sleeping, my surgery was Sept. 6th (or whatever that Tues. was). My doctor gave me some sleeping pills and they do certainly help but I don't want to take them all the time because they can be highly addicting. I find I could sleep for hours in an afternnon nap but not at night....even when I force myself to stay up all day I won't sleep more than 6 hours total in broken sleep at night. I had this problem too the first time I had surgery (yes this is the second time, tumor regrew!) but at that time I can remember I couldn't get to sleep because I was convinced I would die....my first surgery was very traumatic, I was only given 50% chance of surviving the surgery and I was awake and on life support for a couple of days.
Some suggestions: warm milk, warm bath, try sleeping somewhere other than your bed (couch, spare room), if you can't sleep get up briefly and then go back, lie quietly so at least your body rests.
I know how frustrating this is...it doesn't make sense that you're so tired you can't stay awake and then once in bed you can't sleep.
I can't remember how long this lasted for the first time...then again as soon as I return to work I have disrupted sleeping patterns anyways (shift worker).
Kathleen
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I had Translab surgery on 8/4/04 for a 3.1cm AN. I had trouble sleeping for 4-6 weeks after surgery because of the steroids. I was only sleeping 2-3 hrs per night. After I started taking Ambien it went up to 4 hrs per night, but another benefit was that it cut out the tossing and turning and I would fall asleep within 10-15 minutes of taking it. After I finished the steroids, it took a couple weeks, but my sleep pattern graduallly shifted back to normal. My doctor told me ambien was not addictive and I had no problems stopping cold turkey.
One last note about the steroids, they made me hungry all the time and I was eating 6 meals a day when I was taking them.
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hey all
thanks for responding, I thought I was crazy. I can nap in the day but at night it is like that switch goes on "time to stay up". I am also eating and eating and eating, It is out of control. I can not belive how much I am eating, all this from some little old steroid. I had my surgery on 9-14 and I feel pretty good but I just wish I could do more to burn all the eztra food off and get tired enough to sleep at night. I am just really happy that the surgery is over and went well. I the dang this is out and now hopefully I can just move on to whatever normal can be. I hope that everyone else is doing as well as I am and I will keep you all in my thoughts for a good recovery.
Also please keep me updated on any changes you guys may have, it is interesting to me how our bodies can heal with a lot of the same outcomes
Thanks again
Dianne
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Hi Dianne,
I am 2 weeks out and having sleeping issues too. I also think it's the steroids. I am experiencing little improvements though. Up until a few days ago, I was just NOT sleeping without medication. I have since had 3 short but glorious, natural naps. I had to experient with the medication too and while I'm not crazy about what I've ended up with - it is working. I seem to sleep naturally for about 2 hours then wake up. I take a 5mg Ambien that seems to put me to sleep and an Ambien CR which will keep me asleep for exactly 4 hours for some reason. The Ambien does not make groggy the day after, the Lunesta did. Strangely enough, even before this new little cycle I was getting REST somehow, I didn't feel particularly sleep deprived. My schedule is really weird. I am up and feeling great at 4am and get generally tired around Noon. I'm extremely fortunate not to have to be working right now, so the schedule really isn't bothersome. This whole experiencing is so fascinating...I hope you can get a little cycle going for yourself! Best wishes!
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Oh boy...I'm not alone on this...we all sound very similar. I can sleep hard during the afternoon, but at night I'm exhausted, lay down and my brain will not shut down it runs full force. I've resulted to taking xanax at night as the ambien just wasnt' allowing more than 4 hours of sleep. I just got some ambien cr and yes they say it's not addicting but you can develop a dependency on it. Melatonin is a natural sleep aid that works, wine, I had my doctor tell me to get up at 6 am, walk and no more naps..I just laughed at him and said doc give me the cr LOL I have found that with tony's advice I'm getting better with the sleep thing some. I watch how long I lay down during the day, instead of sleeping hard for 3 hours I try to limit myself to an hour nap to recharge and reset my vestibular. I still wake up a lot during the night but am able to generally fall asleep without the aid of any meds. I dont' do the wine trick due to the meds I'm on for depression. I'm so tired of being tired!
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I think most of you are not retired, but I want to say not working or not having to go to work is really confusiing for your body and inner clock.
So, you might be experiencing problems of sleeping after steriod use but also because you are not doing the work/eat/sleep pattern right now. Your routine is all out of whack.
As for sleeping in a lounge chair in a quiet room, both my husband and I discovered that this is an effective way to handle temporary sleep problems. Fighting the pillow and the mattress are not necessarily the best way to rest.
I agree that naps should be short if you have any hope of sleeping the night.
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Battyprincess: Beware of using Melatonin! I actually had a sleep study done this summer and saw a sleep specialist.......I have a sleep disorder, likely caused by working nights for so many years. He mentioned that Melatonin is an option for this disorder but that this is contraindicated in people who have had brain surgery! (can't remember if you had "surgery" or radiation but the same may apply for the radiated population). Was this a treatment OK'd by your doctor?
Kathleen
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Thanks for the info..my doctor says to take benadryl which totally baffles me. Yes, it will put you to sleep but it's like taking a medicine you don't need. Haven't checked with surgeon.
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I don't know if there's any counterindications for this, but Valerian is the herbal med for helping with sleep. You can find it in Celestial Seasonings Sleepytime Extra tea...works pretty good, but for the most part I go to sleep and within a few minutes I'm out like a rock. I'm lucky to not have any problems now that I'm off the steroids/pain meds.
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dianneh1:
I'm now 4 months out from retrosigmoid AN surgery (6/7/06) and while I had one night where I woke up a few hours earlier than usual (while still on the steroids) my sleep has been fairly regular since then. I'm retired but I always go to bed and get up at approximately the same times. I'm fairly active and do not take naps, although I often doze while watching TV in the evening, something I did before the surgery, so I see no real connection. We are all different of course and while I'm grateful that I do not have sleep problems I tend to think that yours may well be coming from the steroids....or stress. I had terrible hiccups (that actually kept me awake) while in the hospital, still in the SICU, but they disappeared within a week of my coming home. I asked my wife's gastroenterologist about this and he said the hiccups were probably related to stress over the finding of the AN and the resulting surgery. Once the problem was resolved, the stress subsided and the hiccups disappeared. He didn't even charge me a fee for the 'diagnosis'! ;)
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batty: Benadryl is often ordered by our doctor's at the hospital to help people sleep, especially if they are "small" in body size. I hope it works for you.
Kathleen
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Oh I'm def. not small in body size LOL
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Batty : is the Benadryl working?
Kathleen
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BP
Gosh, Benedryl is so drying......eyes and everything, right? I used to take it for sleeping a year ago!
Pal
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Yes the benedryl puts me to sleep but I feel yucky the next morning so I can't say that it's helping. I did get some ambien cr but it wired me up just like the rela something did. I will continue taking the xanax at bedtime as needed. I'm seeing a new dr in november to see about regulating my meds or giving me something for the ADD I've developed since surgery.
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Hey Batty! :-*
Benedryl, being an antihistimine, does cause drowsiness... but since it's also used for allergies and such, it will be drying to your eyes, sinuses, etc. If you are going to use it, also try using a humidifier as well (just a suggestion)
Melatonin, even in 3mg tablets, needs to be used with extreme caution. For anyone that has been clinically diagnosed with any kind of depression, etc, it can enhance those emotions. If used, should only be used slightly on a monthly basis, not every night.
I likey the idea of SleepyTime teas (camomilles, etc).
As for sleep, I'm getting approx 6 hrs/night and hate it. The fatique sets in too easy and hate relying on coffee... which I know is a no-no anyway.
Add me to the list of non-sleepers.
Phyl
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You have to get Sleepy Time Extra, it has chammomile and Valerian. It's helpful, because I use it when I need it about 1/2 hour before bedtime, and I carve out a quiet area for me to sip my tea and read a book, thus a ritual that helps with sleep. Good luck!!!!
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You can add me to the sleepless list. I had a sleep study done and I suffer from a sleep disorder. Any other Aners end up having a diagnosed sleep disorder post An treatment, I wonder?
Windsong
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Hi Diane - yea, sleep is a problem - the mind won't quit. But I had this problem before the surgery 4.5 months ago. Geuss I'll be in rare form for work today. Although, I'm alive and "life is a box of chocolates, you never know what you're gonna get" (Forrest Gump).
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Hi
I have never been able to sleep and wondered if anything I took before to sleep might have caused AN. Of course, you wonder everything. I'm on the Ambien until my CK which seems like years. My heart goes out to anyone having "real thing surgery." Waiting for any of this is so difficult and not the doctor prescribed Vicodin for my pain. (about three days ago) I haven't taken any yet. (holding out)
Regards,
Palace
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After my first surgery for the shunt installation, I was prescribed 60 Endocets. Endocet is acetometaphine and oxycondin. It's a generic version of Percocet. Upon my release from the hospital I never took one. If I needed anything, Advil proved more than sufficient. One month later, I went in for the tumor resection - a much harder surgery and prolonged recovery period. I was in pain and was given "dilaudid". I carried the script for the Endocet with me on my return to the hospital and never touched it. Even after my release three weeks later I never touched it. All I needed was Advil - lucky me! I went for 8 months without taking so much as an aspirin! I really hate polluting my body with drugs of any kind.
A little over a month ago I hurt my lower back. Talk about PAIN!!! I'll take the brain surgery any day before this crap! This is when I began to take the Endocet. But I'd only take two a day and only at bedtime. The medicine was prescribed for me to take 1-2 every 4-6 hours for so many days until they were gone.
I didn't do that. As a result, I still have some. My point is: talk about NIRVANA and relaxation!! Waves of warmth and painless bliss comforted me as I drifted off to sleep. I can see how people can get addicted to that stuff. But I'd never, ever allow that to happen to me. Example: here it is 9:40 at night. It's dark and cold and I'm going jogging for 3 miles! I'm done with the pain meds. But I really don't want to be stuck without them in the event of a situation like a lower back sprain. Those Endocets really helped me to relax and sleep.
   Paul
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Yahoooooooooooooo,
I finally got sleep! I got seven straight hours the night before, on my new Valium prescription. Last night I got eight hours straight (no wake-ups) and feel better. The Ambien was helping me awake with a migraine headache each morning at midnight. I was starting my days at midnight with tea, building a fire and staying up for the day. My neck is better with all of your help and perhaps the Valium. I haven't had a good night like the past two, in over a year now.
THANK YOU so much on all of your ideas and encouragement,
Your forum-friend........Palace
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Windsong: I have been diagnosed with a sleep disorder but it was working shift work all the time that was blamed for the developement of it. Apparently it takes me 4 hours to reach REM sleep when I sleep at night, the sleep doctor felt this likely doesn't happen when I sleep in the day, he believe if it was happening I'd be much worse off than I am. It was because of my having had brain surgery he wouldn't give me melontonin, he says it's contra-indicated in those with "brain damage" (the scar tissue issue).
Kathleen
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HI All you Night Owls.
You'll usually find me reading on this here forum or watching infomercials at 2-3am. I practically nod off the second I hit the pillow because I am so sleep deprived, but then I just can't stay asleep. If the slightest thing wakes me up, I instantly hear the #*#*# tinnitus and can't go back to sleep. I usually toss around for about an hour before giving in to the "Inner head symphony" and get up to watch the same ole infomercials trying to get exhausted enough to go back to bed. I used to take a drug called "trazadone" which I liked much better than benidryl. Never felt crummy the next day after the trazadone. No side effects and not addictive. I hear ambion can be addictive. But one does develope a tollerance to it. i would take 1/2 a 25mg pill a night maybe 4-5 nights a week. it really helped. then I was up to a whole pill for a long time, and a few times I took 1 1/2, so i decdied maybe I should stop for a while. I'm just about to go back to them because I'm not sleeping agian. Wish the forum had instant messaging. It could be fun during the wee hours when were all up.
Patti UT