ANA Discussion Forum
General Category => Hearing Issues => Topic started by: Pablo on January 07, 2007, 04:40:59 am
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Hi,
Today I woke up and noticed that I hear some sort of resonance in the AN ear when a sound is perceived. Mostly is when people talk, some sort of distorted resonance, it's very distracting and annoying. I remember having this problem several years back nd having to put a ear plug to avoid hearing at all, but somehow it went away. Doe anybody have similar symptoms, are they permanent? I was wondering if it has to do with FSR I had seven months ago.
Thanks in advance
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It may be the treatment - and by all means check with your Doc
Meanwhile - I did get these symptoms - but did not have FSR
I would describe them as fairly typical AN effects
(why hearing tests are of limited value with ANs - they dont measure
distortion - which is quite common in the condition)
best regards
tony
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Thanks Tony, I will definitely check with my doctor. I would really like to believe this is not a permanent condition since it distracts me and irritates me too much.
Thanks again for your feedback, maybe this is not as uncommon as I thought.
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Sorry, one further thought, sometimes post-treatment swelling,
or even a minor cold can cause similar results.
The type over-the-counter pain killer that reduces swelling/inflammation
on soft tissue, taken in moderation, can sometimes improve things
good luck
tony
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Tony, right on.
I am just recovering from a bad cold I had recently. Do you mean stuff like Advil (Ibuprofen?)
Thanks again.
Pablo
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err yes - but dont overdo it
best regards
tony
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Thank you.
:D
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Pablo- I had FSR at Johns Hopkins 6 months ago- I also have this condition. IT is even worse because it is my only hearing ear. Sounds are distorted and I really cannot sometime make out what people say. I just had a 6 month MRI but have not heard back from Johns Hopkins. The preliminary report states that I have Chronic Mastoidus. Not knowing what this is i looked it up in the medical book. It is inflamation of the Mastoid bone. I have had this distortion for 3 months now. I do not know if this is permanent-I sure hope not. If I find any answers out or you do-please post on this thread. My AN is 2.4X2.2CM. I had 96% hearing before FSR-This has decreased to 90%. Ron
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Ron, Tony & all,
I'm one mo. out from FSR and I can't tell what is being said, very well. I have the severe "blown-up" ear feeling. I also have the rumble sound of people talking. I have of course, the high pitched "whine-sounds," and it is very hard to live with. With shrinkage say over a couple of years, I wonder if the FULLNESS of the ear can *ever* subside. My ear feels 24/7 like it is so very full. Can that go away, I wonder? Is it at all possible when some of the cells die and or the tumor shrinks, if it does at all. I think it is documented that one-third of the patients have a chance of shrinkage. Will people please elaborate on this. I tried Advil for swelling and no relief. I can't do steroids. I can't concentrate. I'm always aware of my ear. Oh, and I have a new type of cracke-shift (I call it) where it feels like the tumor is making noise also. It feels like the tumor is moving on and off a nerve. I actually feel it move. Is that the cells dying? I started these new symptoms at the first of the year. (one mo. out of the CK) I thinking of calling Stanford today but, I don't know what good that will do. (they just might tell me to take that steroid pill I still have) I'm having trouble thinking and losing interest in life, quite a bit. I'm having much trouble being productive and this bothers me. I was always a busy and productive person. I'm having a very hard time since the beginning of the year. (1st Jan.) I can relate to all of you! Thank you for your help to me and others on this subject.
Palace
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???
Hi again...
I did place a call into Stanford. I will try and let you know what they tell me. I'm awaiting a call back.
Pal
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Palace: Sorry to hear of your current condition. I am at work on my lunch period. Guess what. Lately my surgery ear from 18 years ago is driving me nuts. It screams and crackles at me like crazy sometimes. I cannot answer your questions at this time-but I can certainly relate. Sometimes I feel like you and say what the heck-but I know that is not an answer. We have too keep on going on hoping this will get better over time. I have never been one for patience-but I have too now. I have been waiting aliitle over a week now to hear from Johns Hopkins. I gave up along time ago trying to call them-e-mail is easier and faster. I hope you start feeling better. Take it one day at a time-you are in my thoughts. Ron
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Palace,
Sorry to hear about your problems.
I found email is very effective with Stanford. You should in addition to calling send them an email. They have been very good in getting back to me by email especially if there is an urgency.
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I had translab at HEI more than 2 yrs ago and should have no sound in my AN side, but I get an occasional howling sound that lasts 1-2 sec ??? Could be a phantom sound, like the pain of a phantom limb that had been amputated. Anyone w/ similar ex. after translab surgery??. Not really disturbing, but academically interesting.
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HI Palace,
I would be very surprised if the cells would start to feel like they're dying, especially not so soon after CK. Might be some swelling of the AN? I had a full ear sensation after CK for about a month, but not that severe. Shrinking of tumour can happen a good while after CK, depending on the protocol. Some shrink after six months maybe, mine only shrank a bit now after two years.
As for the trouble thinking and loosing interest in life and being productive, i KNOW! I had exactly the same thing!!! I felt like I was really loosing it big time, just couldn't comprehend stuff that wass going on around me. VERY scary. It lasted like that for a while, but it gradually got better, over time. All I can say is from personal experience: what helped me the most is accept the eefect, adjust to them and the new situation, reduce the workload temporarily, and hope like mad that things would improve. I slowed down dramatically! It worked!! Now, I'm back to normal, more or less, better than before CK.
hang in there, remember, we may have had the non-surgical option, but it is still a MAJOR surgery, and the body needs time to recover. Stress and even depression would be quite normal I would think; someone even suggested Post traumatic Stress Syndrome. Wouldn't be surprised.
All the best, take care of yourself.
Lorenzo
Sam, that could be tinnitus too. Not all tinnitus is constant, it can change pitch, type, frequency and even vanish and reappear, as far as I know.
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Hello you nice people:
It was just after five in the afternoon today that Stanford called me back .
I was told that I need to get an audiologist test right away to compare if I'm losing what I have left of my hearing!(what Stanford tried to save)
If that is the case, I'd need steroids right away if I were to try and save what is left of my hearing in the right ear. I told the nurse of my experience on steriods and going to ER. (the anyphalaxis shock symptoms)
She did say to take the pain medication if I need it and so far I was holding out on that. I have some of those pills left. She did say to have a doctor look in my ear to see if I had an ear infection. If you have followed my postings, I just was there very recently (ENT) and he looked in my ears. I'm OK on that.
Yes, I might have extreme swelling right now. Since the ENT place just closed. I will call in the morning and see how soon I can get in. If it is a long time from now, I may have to go to Stanford for the hearing testing, right away.
There is a storm on Thursday but, the weather is looking good for traveling a bit.
Thanks to all of you for your kind words of support. Peace of mind helps just knowing I called Stanford and it is being handled some how some way. I shouldn't take steroids again but, stay tuned and we shall see the results of the hearing test.
Thanks to all who posted your experience and that you were there for me.........
Palace
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Sam,
At one year out I think I hear an occasional whisk of air in my AN side...sort of like a car window cracked open and the sound wisks in. But who knows maybe I am hearing it on the good side, so how do I know it is from the AN side or not. Sort of the tree falling in the forrest thing. :-\
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Pablo- I had FSR at Johns Hopkins 6 months ago- I also have this condition. IT is even worse because it is my only hearing ear. Sounds are distorted and I really cannot sometime make out what people say. I just had a 6 month MRI but have not heard back from Johns Hopkins. The preliminary report states that I have Chronic Mastoidus. Not knowing what this is i looked it up in the medical book. It is inflamation of the Mastoid bone. I have had this distortion for 3 months now. I do not know if this is permanent-I sure hope not. If I find any answers out or you do-please post on this thread. My AN is 2.4X2.2CM. I had 96% hearing before FSR-This has decreased to 90%. Ron
Thanks Dealy for your updates. It looks we have similar conditions after about the same time from FSR. I sent a note to my doc to find out about this but haven't gotten any response just yet. In my case it's weird because after FSR other than a slight high freq drop in hearing I didn't get any other symptoms. It was just three days ago I woke up with this condition. Hearing people talking is really annoying and became hypersensitive to normal life noise. 12 year ago I had something similar which followed a sudden deafness condition. (without knowing at that time I had the tumor). I was given stereoids treatment for a week and my conditions improved drastically. I asked my doctor if it makes sense to take any medicine at this point in case that symptoms persist.
I will update as soon as anything new is going on.
Regards
Pablo
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Hello: ::)
I will ask about resonance in the AN ear, today. I'm leaving soon. I got the audi. appt. for this morning. I'm 5 week post CK. I'll fax the report in (to Stanford) when I return. I still have severe pressure in the ear since the first of January and mega facial pain. This is why I'm going for a hearing test so soon after CK. I was told I might be one of the unusual cases and the doctors would need to save the rest of my hearing I guess, with sterioids. (not a thought to my liking after steroids/Pred., landing me in ER for the night last year)
If you can think of any questions that might be appropriate for the Audiologist, please let me know either privately or most within the hour. (outta here in the 24 degrees, soon)
Have a good day Pirate People
More later.....
Palace
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Hi Palace: I e-mailed Stanford a couple of days ago as I am experiencing the increase in pain, ear pressure, imbalance. I am a few days short of three months since my CK. I believe others on the forum have reported the increase symtoms are as a result of the normal swelling of the tumor after treatment; however, I wanted to hear directly from my treating doctor if this is, in fact, what is causing this and what time frame to expect for improvement and what, if anything, can be done in the meantime. I am waiting for their reply.
I am glad you are going to see them and you can pass on that you are not alone in this and we, on the forum, will benefit from what they tell you.
Thanks .
Bev
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Hi Palace and BevM,
About 2 - 3 months after CK, my symptoms increased somewhat (but not the degree you are experiencing). However they are all subsided mostly by now except tinnitus. Still feels a little almost unnoticeable facial numbness, little headache and once a while funny feeling on the tongue but no facial pain. I wrote to my Stanford doctors who said the causes are likely swelling and / or radiatoin of surrounding structures including nerves and they all assured me that these residual effects should be diminishing overtime. And also said they are rarely longlasting.
I sincerely hope what you are going through are also temporary. Nerve pains are most excruciating. I feel really sorry to hear about your ordeal. Prayers and best wishes to you.
Mary
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My doctor also said that symptoms improve with time. I also had a bad time the first three months, but now I feel better (other than this resonance, however I notice that it is getting better for the last few days). My hearing has deteriorated after the treatment especially in the high frequencies but I still have 100% discrimination. The interesting thing is that I was expecting swelling shown in my first MRI 6 months after the treatment and by surprise, the MRI doctor indicates that there is no change and my radiosurgery doctor said that the tumor is even slightly smaller, based on a more accurate measurement protocol they use (about 1 - 2mm), he also mentions that there are necrosis signs right in the middle.
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Palace,
Curious if high altitude and cold temperature may have any effect? I find that if it is really cold (not comparing to our NE or midwest friends but I am spoiled by Southern California weather), I don't like it as well, whole body wise... And I am quite bad with altitude. I still remember going up to Pikes Peak in Colorado and my ears were so clogged...
Just curious may be the doctor can shed some light.
Take care driving down the mountains.
Mary
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Hello Friends:
I'm so sorry it took me so long to post but, I just got back home, again. (two doctor day)
The ear is huge fluid built up on the ear drum. I have a spray for once a day and some pills to take now. (Nasonex and Guaifenex 600/120) If they don't work (in three weeks) the doctor will lance it and let it drain out. (at the office) The pills for the ear can keep you awake at night and make your heart race. (they are supposed to make you jittery) If I'm not jittery enough with everything I'm going through. All of you know how it can be and especially, the people who had the bigger surgery of head incision.
I was always afraid of that bungy-cord toy with the tennis balls at each end. I held one end and either dog would pull and shake it. (that caused the shoulder tear, I'm sure)
My husband and I traded off playing "bungee pull toy" with the dogs and it whipped my shoulder. I now have my joint sticking out between the bones in the shoulder. I go for a bone density test tomorrow down in Santa Cruz. (back to the same building I was in today but, the stom is really coming in good now so, we will see how it plays out) I will have an X-ray of my shoulder! It is very painful and hard to type. They can do orthoscopic surgery on something like this. (surgery number 21 coming up)
I'm going to be a "lurker" for awhile. It is so hard to type. My arm needs to be in a sling and ice up top where the big bump is. (joint out) I appologize if I have to "drop-out" for awhile. I will try to go online to read.
Oh, one more thing you all might find interesting........the audiologist said a hearing aid is of no value to me at present time. My new hearing test today showed almost no change since CK but, it has only been five weeks.
That is really GOOD NEWS on the fluid buld up because, that means once that is taken care of, I won't be living with this much pressure for the rest of my life. (here I thought, is this what it is like after CK and what I must live with for the rest of my life) It should get better. I just wish I didn't have the next injury "back-to-back." I'm going to toast tonight with supper and all of you. A glass of wine is "warrented, this evening." Take care all of you and I'm thinking of you even if you don't hear (parden the pun) from me. Typing is out for me, for awhile. (plus many doctor appointments)
*I'm reporting back now 12 hours after taking the Nasonex and the Guiafenex and it has hleped me by half the fullneess feeling going away, ALREADY! It is working for me. Now, to get this should X-rayed and find a surgeion right away for surgery.
I was hoping to fill out the headache thread but, that is on the "back-burner" for awhile. It will be there once I can type again. Someone might need to remind me to fill it out. It is long for right now. unless I could dictate it to my husband who does, "hunt and peck." I think I will wait until I can type again.
My dog is booked for major surgery on Tuesday.
I'm going broke.
Thank you all again for being so kind and lots of love to all of you,
Palace
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Pal,
I'm sorry to hear that you are going through all this. Hopefully the meds will help your ear drain and you will have relief from the pressure. Also sorry to hear about your arm. I had severe tendonitis in my hands/arms before and through alot of the holidays, it was awful. I was a lurker myself at that time, we all understand and just want you to be better. My dog is going to the vet tomorrow to see when she can get spayed. I'll be thinking about you and here if you need me for anything. Hugs to you and your dog and hopes that you both get better real soon!
~Karen
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Hey Palace, so sorry for what you've been through but so glad they found a cause for the "fullness" in your ear. That symptom drove me crazy when I had it. It subsided on it's own and I am so glad that at least one of my symptoms went bye-bye. Take care and I hope you and your doggy will be better soon. :)
Sue in Vancouver, USA